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Discussions (138)
Lupron: Anyone have muscle weakness and severe leg pain?
I have PC and have been on Lupron injections every 3 months for 15 months. I am experiencing severe leg pain in hamstrings and glutes....
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
Gleason 8. High risk. Prostate swelling-cancer is contained for now.
Age: 56. Physically/mentally: Strong. Gleason 8 - High Risk. Stage: IIIa Cancer tumor: Contained within prostate for now. Tumor protruding outward. Recommendation: Per radiologists, surgeons,...
How Concerning is this?
Five years ago, I had my prostate removed, with no radiation or chemo. For the first four years, my PSAs were always < 0.1. Last...
Starting TRT now.
I'm 75 now. My prostate was removed in 2021. The cancer spread to my T3 vertebrae. That was treated with radiation. I was put on...
Advice on Penis pumps
I am 4 months post prostate surgery and soon to start radiation since some cancer still evident. The mental stress of cancer is bad enough...
Fatigue after Eligard and proton Beam
In November 2020 I had a six month Eligard shot, then completed 44 proton beam treatments on April 9, 2021. Today August 2, I have...
Stage 4 Radiation challenge: How to avoid risk to bladder?
Hello, I’m stage 4 post Radical, post comprehensive radiation, coming off ADT, waiting for Testosterone to return, looking at next steps. When they did the...
MRI guided SBRT. Where is it offered and best radiation oncologist?
Has anyone had MRI guided SBRT outside of the clinical trials. I don't mind participating in a trial, but I can't find an open one....
Hormone Levels after 90+ days Lupron
Background: @ age 62 Radical Prostatectomy May 2020. Post RP pathology report stated high risk, confirmed 4+3 Gleason, positive margins, Perineural invasion, as well as...
Lupron and Nubeqa (darolutamide): Anyone on this protocol?
I have advanced PC with metastasis in the lymph nodes and pelvis. Gleason 6-9 and PSA>20. Began with 3-month Lupron injection. Began Darolutamide (Nubeqa) at...
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
How much value to put on the numbers in the Decipher Grid?
https://connect.mayoclinic.org/discussion/how-much-value-to-put-on-the-numbers-in-the-decipher-grid/
Have you paid any attention to the numbers in your Decipher grid? Or are you just focused on the overall score? The grid pages say...
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Defeating Prostate Cancer
Diagnosed @age 76 PSA 20 Gleeson Score 9 all the urologists wanted to take it out.After interviewing 12 men who had the cut done It...
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
Why isn't hormone therapy used in all prostate cancers?
An observation and insightful comment by one group member here: "Lupron/Eligard both shrink the prostate and stops the production of testosterone which feeds the growth...
Blood sugar levels, GLP-1 agonists, weight gain and cancer cell growth
I listened to a podcast this morning, where “sugar” was discussed as an accelerator for cancer cell growth. Turns out, it does, but not for...
Have erection but can't have an orgasm
71, SBRT completed last July, 4 months of Orgovyx. Fortunately, PSA remains undetectable. Testosterone back to my normal limits. Using Trimix now and I can...
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