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Prostate Cancer Support Group

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PSA fell from 20 to 3.02 and testerostone is now 18
After 30 days on orgovyx PSA fell from 20 to 3.02. Testosterone now 18. Just started Nebqua. What can I expect. Bone metastatic
Support Group: Prostate Cancer
Last active: May 3 12:30pm
Lab result differences
File this under Good to Know (and WTH!).... I had labs for PSA and Testosterone done recently - results came back as follows: PSA =...
Support Group: Prostate Cancer
Last active: Oct 7, 2025
Penile Numbness after Prostate Cancer treatment: What can be done?
I had prostate cancer. I went through 18 weeks of radiation. Afterward I was placed on orgovyx. I am still able to have an erection...
Support Group: Prostate Cancer
Last active: Apr 7, 2024
I am new to group. Metastatic prostate cancer. Gleason score 9. PSA 20
Started orgovynx 30 days ago. PSA now 3.02 and testosterone 18. Just started Nubeqa. Hope to see further improvement. Anyone with experience in similar condition?
Support Group: Prostate Cancer
Last active: Apr 16 12:13pm
Orgovyx works fast
Two weeks ago, I decided to resume hormone therapy with Orgovyx & Nubeqa . At that time my testosterone was at 600 & slowly climbing....
Support Group: Prostate Cancer
Last active: Apr 2 6:17pm
Lung metastasis: Curiosities from VATS to BATS
“Metastasis to the lung is present in more than 40% of men with metastatic prostate cancer (3); however, lung metastases without any bone or lymph...
Support Group: Prostate Cancer
Last active: Aug 10, 2025
Lab tests
Has anyone encountered a lab making mistakes on the testosterone & PSA tests…..it was done at a different lab that we normally go to.
Support Group: Prostate Cancer
Last active: Jul 8, 2023
Urologist said I could stop Orgovyx. Your thoughts?
Age 73, in very good health. Diagnosed with Gleason 9, August 2024. Been taking Orgovyx since then, Not quite 20 months. Completed 28 sessions of...
Support Group: Prostate Cancer
Last active: May 26 3:29pm
Exercise and ADT
Dr. Kerry Courneya has been studying the effect of exercise on cancer for more than 25 years. He directs the Exercise Oncology Research Lab at...
Support Group: Prostate Cancer
Last active: Apr 1 10:04am
Hybrid Approach to metastatic prostate cancer
Have one lymph node with cancer. Is there a good reason to not choose having the prostate surgically removed, recover, and then start oral treatments...
Support Group: Prostate Cancer
Last active: Jun 9, 2025
Post RARP routine physical and blood work
To help with PSA anxiety my PCP thought it was best to test my PSA in their lab and test my Testosterone for levels after...
Support Group: Prostate Cancer
Last active: Sep 30, 2025
ADT, Hot Flashes and Ashwagandha: Is it safe?
I have received 3, three-month Lupron shots and radiation therapy for Gleason 3+4 prostate cancer. After the final shot in June, my PSA was <...
Support Group: Prostate Cancer
Last active: Nov 25, 2025
Radiation & ADT no real problem. Kidney stone lithotripsy terrible
Diagnosed in August 2024 Gleason 9. Started Orgovyx immediately. Then 28 sessions of IMRT, finished April 2025. Colonoscopy January 2026, unremarkable. Latest PSA March 2026...
Support Group: Prostate Cancer
Last active: May 11 1:07pm
What if this prevents cancer from becoming resistant?
I saw a thread about half-dose medications. Guys, what do you think about whether resistance can be avoided? Read below. Another option is to use...
Support Group: Prostate Cancer
Last active: May 19 10:43am
ADT paradox study.
I found a recent study that challenges the established ADT dogma. I found that the study suggests that androgen levels might have a more nuanced...
Support Group: Prostate Cancer
Last active: Dec 7, 2025
Nubeqa Monotherapy vs Dual Therapy with ADT
Interested if anyone is on monotherapy with Nubeqa. I have been on Nubeqa for 28 days and my PSA dropped from 3.24 to 0.27. My...
Support Group: Prostate Cancer
Last active: 1 day ago
Lupron: Anyone have muscle weakness and severe leg pain?
I have PC and have been on Lupron injections every 3 months for 15 months. I am experiencing severe leg pain in hamstrings and glutes....
Support Group: Prostate Cancer
Last active: 5 days ago
I have been on Orgovyx for last two months.
I have been on Orgovyx for last two months and my testosterone is now < 50. But my PSA has not changed at all. Has...
Support Group: Prostate Cancer
Last active: May 23 10:54am
Completed EBRT recently, first blood test readings done. Any advice?
I was a Gleason 9 when I began taking Orgovyx in September 2024. Testosterone was 825, PSA 6.0 Had 28 sessions of EBRT which concluded...
Support Group: Prostate Cancer
Last active: May 8, 2025
Salvage radiation aftermath
Can anyone share their experience with salvage radiation/ADT after what was told to me as a very successful DaVinci surgery? I’m a 71 year old....
Support Group: Prostate Cancer
Last active: Oct 6, 2025