Support Groups

Prostate Cancer Support Group

Public Support Group
1,448 total results
Discussions (112)
"Sexual Problems" Top Concern After Prostate Cancer Treatment
A UK study of 650 men (ages 50 and up, diverse ethnicities and sexual orientations) found "sexual problems" the top concern after prostate cancer treatment....
Support Group: Prostate Cancer
Last active: 5 days ago
Advice on Penis pumps
I am 4 months post prostate surgery and soon to start radiation since some cancer still evident. The mental stress of cancer is bad enough...
Support Group: Prostate Cancer
Last active: Feb 8 11:09am
Lupron and Nubeqa (darolutamide): Anyone on this protocol?
I have advanced PC with metastasis in the lymph nodes and pelvis. Gleason 6-9 and PSA>20. Began with 3-month Lupron injection. Began Darolutamide (Nubeqa) at...
Support Group: Prostate Cancer
Last active: Jul 27, 2024
Fatigue after Eligard and proton Beam
In November 2020 I had a six month Eligard shot, then completed 44 proton beam treatments on April 9, 2021. Today August 2, I have...
Support Group: Prostate Cancer
Last active: Aug 3, 2021
MRI guided SBRT. Where is it offered and best radiation oncologist?
Has anyone had MRI guided SBRT outside of the clinical trials. I don't mind participating in a trial, but I can't find an open one....
Support Group: Prostate Cancer
Last active: Dec 15, 2023
Why isn't hormone therapy used in all prostate cancers?
An observation and insightful comment by one group member here: "Lupron/Eligard both shrink the prostate and stops the production of testosterone which feeds the growth...
Support Group: Prostate Cancer
Last active: Apr 5, 2023
Blood sugar levels, GLP-1 agonists, weight gain and cancer cell growth
I listened to a podcast this morning, where “sugar” was discussed as an accelerator for cancer cell growth. Turns out, it does, but not for...
Support Group: Prostate Cancer
Last active: Dec 23, 2024
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
Support Group: Prostate Cancer
Last active: Feb 3, 2024
Hip Bone Metastasis: What treatment did you have?
My last PET scan showed a "sclerotic lesion on my right acetabulum" measuring 1.5 x 1.5 cm (PSA was 0.18 and testosterone 37 at the...
Support Group: Prostate Cancer
Last active: Mar 19 7:46am
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
Support Group: Prostate Cancer
Last active: Mar 17 8:08am
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Hot Flashes and Symptoms
This question is just because of my curiosity. I have been on Testosterone blockers (Orgovyx) for 17 months and I get hot flashes somewhat frequently....
Support Group: Prostate Cancer
Last active: Aug 12, 2024
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Support Group: Prostate Cancer
Last active: Sep 12, 2024
Defeating Prostate Cancer
Diagnosed @age 76 PSA 20 Gleeson Score 9 all the urologists wanted to take it out.After interviewing 12 men who had the cut done It...
Support Group: Prostate Cancer
Last active: Jan 31, 2023
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Support Group: Prostate Cancer
Last active: Jul 16, 2024
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Jansen clinical trial ADT & Erleada and surgery
I am 75 years old and a year ago my biopsy indicated that I had NM advanced aggressive Gleason score 9 prostate cancer and my...
Support Group: Prostate Cancer
Last active: Dec 15, 2022
Been on Orgovyx for four months. Should I stop taking finasteride?
Diagnosed with prostate cancer via a biopsy August 2024. Six cores were negative, one core Gleason 7, five cores Gleason 9. Negative for perineural invasion....
Support Group: Prostate Cancer
Last active: Feb 3 11:47am
Question regarding resistance training.
Greetings: Background: I was diagnosed in February 2023 with Gleason 9 PC, PSA 25 and 9/12 cores positive. The PSMA-Pet showed no spread, however the...
Support Group: Prostate Cancer
Last active: May 7, 2024
Prednisone tapering
I finished ADT on 12/21 and I’m having a difficult time tapering off of the prednisone I was given along side the Zytiga along with...
Support Group: Prostate Cancer
Last active: Feb 17 4:00pm