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Prostate Cancer Support Group

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Discussions (241)
How many PSMA/PET scans Medicare will cover, in a year?
I am on Medicare with local metastatic PC, have had one PSMA/PET 2-months ago now will have pelvic lymph node EBRT. Was curious to know...
Support Group: Prostate Cancer
Last active: Jul 30 3:34pm
3 negative PSMA PET scans with PSA doubling every 4 weeks
Prostatectomy 10 years ago, Gleason 4-3 with 1/3 bladder positive. PSA going up after 1 year then 39 radiation followed by Lupron then Eligard. Took...
Support Group: Prostate Cancer
Last active: Aug 25 11:58am
Does Mayo do PSMA pet scans, and offer proton beam radiation?
I had robotic RP performed almost 4 weeks ago - pathology determined invasion in both seminal vesicles plus one lymph node. Recommended for ADT plus...
Support Group: Prostate Cancer
Last active: Dec 3, 2023
What do you do when one lymph node on PSMA is inconclusive ?
We got PSMA results with clear uptake in right lobe of prostate which was expected but one lymph node on the left side in iliac...
Support Group: Prostate Cancer
Last active: Sep 28 3:33pm
Has anyone gotten or heard of the new treatment LU-PSMA-617?
Has anyone gotten or heard of the new treatment LU-PSMA-617? When will this be readily be available? What is the long term outcome ? Thank...
Support Group: Prostate Cancer
Last active: Feb 16, 2023
PET/PSMA / Decipher test results back (0.69). Radiation/hormone now.
Well. Was diagnosed with PC back in Oct of last year (53 year old). My numbers are/were Gleason 7, Stage 2, PSA 8.8, so intermediate...
Support Group: Prostate Cancer
Last active: Sep 13, 2024
Breaking News: Kit for PSMA PET imaging agent gains FDA approval
The Prostate Cancer Foundation is reporting that the highly sensitive prostate cancer diagnosis scan called PSMA PET imaging will become more widely available in the...
Support Group: Prostate Cancer
Last active: Dec 20, 2021
How long after biochemical failure for positive PSMA PET scan?
Robotic radical prostatectomy April 2015. PSA: .1 Jan. 2023; .44 Nov. 2024 and .5 March 2025 (from a different lab so not sure if this...
Support Group: Prostate Cancer
Last active: Mar 27 12:28pm
PSMA Pet Scan 1 week after biopsy, is that too soon?
Is it too soon to have a PSMA PET Scan 1 week after biopsy or how long would be good to wait? Biopsy was Gleason...
Support Group: Prostate Cancer
Last active: Apr 29 1:48pm
Is a PSMA-PET scan of value if you have already started ADT treatment?
An acquaintance had a RP in mid July and while the pathology report had some positives his Gleason score increased from a 7 to an...
Support Group: Prostate Cancer
Last active: Oct 10, 2024
How quickly should I have radical surgery after my PSMA scan
I had my PSMA scan today which showed no spread. My urologist is suggesting I get the surgery which I want asap but as you...
Support Group: Prostate Cancer
Last active: Feb 11 8:09am
Why would PSMA-PET scan fail to detect known primary GG2 tumor?
Background: I had a recent TRUS biopsy resulting in 4 out of 12 cores positive, one 7(3+4) and 3 were 6(3+3) for a GG2 Favorable...
Support Group: Prostate Cancer
Last active: Dec 13, 2024
PET Scan Results in
IMHO, this is the best news possible! I haven't talked to my Doc yet, but to me, it sounds good. Results Impression 1. Intense PSMA...
Support Group: Prostate Cancer
Last active: Aug 21, 2024
Has anyone had trouble having Medicare pay for the radiologist charges
Has anyone had trouble having Medicare pay for the radiologist charges for a PSMA PET SCAN? I have their Medicare Summary Notice from my scan...
Support Group: Prostate Cancer
Last active: Jul 9, 2023
ADT, maybe not? Anyone opted out of ADT?
Has anyone opted out of ADT? I think its effects are possibly too much to sacrifice (at my age, or any age, maybe), but no...
Support Group: Prostate Cancer
Last active: 2 days ago
Seed Implant old treatment?
Hello everyone, I’m newly diagnosed with PC with Metastatic Gleason 9, I have an upcoming PSMA appointment next week and after that I have to...
Support Group: Prostate Cancer
Last active: Apr 21 6:50pm
Radiology second opinion
What is the process to initiate a second opinion on radiology. Want to get a second interpretation on the psma pet scan?
Support Group: Prostate Cancer
Last active: Dec 21, 2023
Totally confuse-How to move forward with my RO & 2nd opinion
Totally confused 67 years, Had HolEP (March 2025) biopsy 3+4=7 Decipher 0.17 TNM=0, PSA 1.2 (8/10/25) PSMA all clear except a small liaison ECE 2nd...
Support Group: Prostate Cancer
Last active: Nov 1 12:24pm
Just joined, biopsy shows 4+4 (Group 4)
My rising PSA, 5 years after Proton treatment prompted a PSMA/PET scan, followed by biopsy at Johns Hopkins. Biopsy shows 4+4 (Group 4) cancer, Can...
Support Group: Prostate Cancer
Last active: Oct 16 11:58am
Nuclear Medicine Bone Scan
I have to go for a Nuclear Medicine Bone Scan in a couple weeks. I just had a PSMA PET scan and a DEXA Bone...
Support Group: Prostate Cancer
Last active: Aug 17 7:49am