Support Groups

Prostate Cancer Support Group

Lock icon Public Support Group
1,310 total results
Discussions (87)
Preparing for radiation
I visited with my urologist yesterday and it's approaching time for a new direction. I had surgery in November, Gleason 9 with some unpleasant indications...
Support Group: Prostate Cancer
Last active: Aug 10 5:05pm
Recurrent prostate cancer after 7 years
My doc has suggested short term adt. ..Has anyone used short term ADT therapy. I’m concerned about the side effects. I’m also considering proton therapy...
Support Group: Prostate Cancer
Last active: 1 day ago
Negative findings on PSMA scan
Had prostatectomy in 2006 . Because my PSA was 5.53. Gleason 3+4=7. Had 39 radiation treatments to my prostate bed in 2013 for recurrence. Now...
Support Group: Prostate Cancer
Last active: Feb 29, 2024
Darolutamide Monotherapy
I’m curious about the FDA’s June 5 approval of darolutamide (Nubeqa) as a monotherapy for mCSPC. My understanding is that the AR blocker would allow...
Support Group: Prostate Cancer
Last active: Jul 3 5:50pm
Recurrent Cancer - conflict with numbers and scans
Quick Background: I had a RP completed in September 2016. Undetectable PSA 2 years after, but started creeping up. Made a 2x jump in mid...
Support Group: Prostate Cancer
Last active: Jan 9 7:00pm
PSA goes up and then down
I am a 18 year survivor of Prostate cancer. I had a Prostatectomy done in 2006 and radiation in 2013. I’m currently on my second...
Support Group: Prostate Cancer
Last active: Feb 28 8:49pm
Artemisia annua coffee
Wondering if anyone is involved with this study, and if so, what is your experience so far? ArtemiCafe® Decaf is currently being evaluated in a...
Support Group: Prostate Cancer
Last active: May 22 10:32pm
PSA = 0.02 on second post-op test
Since my surgery in November showed me to be Gleason 9 (4+5) with some bladder neck invasion, I have assumed recurrence would happen at some...
Support Group: Prostate Cancer
Last active: Jun 30 9:40am
UltraSensitive PSA < 0.03
Hello, After my recurrence last year in May 2023, I underwent 20 sessions of IMRT and started receiving Zoladex 10.8 Injections every 12 weeks. Over...
Support Group: Prostate Cancer
Last active: Oct 10, 2024
Testosterone replacement after radiation and Orgovyx?
I had an RP in 2008 and a recurrence last year. I was treated with 5 months of Orgovyx and 37 radiation sessions, both of...
Support Group: Prostate Cancer
Last active: Dec 15, 2024
Recurrent prostate cancer: It's come back
In 2012 I had a positive Biopsy for prostate cancer. Initial Gleason score of 3+3. Chronology is as follows (w/Chart): *Dec 2012 - Brachytherapy PSA...
Support Group: Prostate Cancer
Last active: Jan 31, 2023
Radiation vs RARP for IDC prostate cancer with high Decipher?
70 years old, fit. PSA is 5 and slowly rising. Gleason 3+4. PIRADS 4. Localized. Clean PET. BUT, Biospy showed 6 positive cores - extensive...
Support Group: Prostate Cancer
Last active: May 7 12:04pm
What does Capsular Invasion mean? What are the next treatment options?
I’m having recurrence after triplet treatment (Lupron and darolutamide, then Chemo, then IMRT) for Gleason 9 metastatic. Thirteen months of Lupron ended last February. Continuing...
Support Group: Prostate Cancer
Last active: Jan 5 1:15pm
Prostate cancer care and Medicare
I'm almost 6 months post-RP and my first PSA was undetectable. But I'm 67, Gleason 9, so while I'm clear today recurrence seems likely at...
Support Group: Prostate Cancer
Last active: Apr 29 7:07am
Comparison of PSA test results from Quest and Labcorp
Quest and Labcorp use different instrumentation/standards for PSA testing. A 2005 web article by Dr. William J. Catalona has stated that these different instrumentation/standards can...
Support Group: Prostate Cancer
Last active: Sep 11 10:17am
Gleason7(3+4) - treatment options recommendation
Got recently diagnosed with Gleason group 2, 7(3+4). Was in state of shock to know about the cancer. I’m 56 year old and fortunately I’m...
Support Group: Prostate Cancer
Last active: Oct 7, 2024
Apa-RP Study: ADT + Apalutamide (Erleada)
We all spend considerable time and effort looking at pCA information. One of the studies that keeps rising to the surface, for me, is this...
Support Group: Prostate Cancer
Last active: Jul 2 5:21pm
Supplies recommendations post prostatectomy
I was recently diagnosed with mid grade prostate cancer (Gleason 4+3). I was given option of either Proton Beam+Hormone treatment or nerve sparing prostatectomy. I’m...
Support Group: Prostate Cancer
Last active: Mar 13 11:38pm
SBRT shows tolerability in high-risk and recurrent prostate cancer
Presentation at the 2024 Radiosurgery Society (RSS) Meeting in Chicago, Illinois. https://www.urologytimes.com/view/sbrt-shows-tolerability-in-high-risk-and-recurrent-prostate-cancer
Support Group: Prostate Cancer
Last active: Mar 27, 2024
What are the pros/cons of HIFU and TULSA-PRO treatments?
I have Pca Gleason 3+4 in left medial apex, plus a couple atypical spots. Size of prostate is 56cc. My surgeon raised the idea of...
Support Group: Prostate Cancer
Last active: Jun 13 4:00pm