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Public Support Group 1,095 total results
Discussions (75)
Am I the only one who doesn't care about testosterone?
I'm just curious. None of my doctors ever brought it up. A few months ago I brought it up with my urologist (because many people...
How do you prevent testosterone levels from going up again?
My husband is taking Lupron shots every3 months to control his Psa. He had prostatectomy 4 years ago. Psa began elevated last year. My question...
Low baseline testostrone and overall survival after treatment
My husband has a baseline testosterone of 202. He started ADT and will be doing internal and external radiation for stage 4 A advanced regional...
T and PSA levels 6 month post SBRT and 1 month post Orgovyx
Prior to any treatment my PSA was 7.8 and my testosterone was 517. After 9 days of Orgovyx my testosterone was 27.17 At six months...
Post treatment update #3
Exactly 1 year since 45mg Lupron hormone therapy injection that was followed by 20 radiation sessions. 90 day post treatment PSA test showed no cancer...
Muscle loss and muscle building
Since starting my ADT treatments in February, I've been concerned about muscle loss due to the lowering of my testosterone. I'm not a body builder...
Lab tests
Has anyone encountered a lab making mistakes on the testosterone & PSA tests…..it was done at a different lab that we normally go to.
3 Month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8...
Penile Numbness after Prostate Cancer treatment: What can be done?
I had prostate cancer. I went through 18 weeks of radiation. Afterward I was placed on orgovyx. I am still able to have an erection...
Difficulty with androgen deprivation (ADT): what helps?
I am taking Eligard for a year now and gained 25 lbs and have depression and fatigue. I have a friend taking degarilix and he...
Husband not responding to ADT
My husband was diagnosed with aggressive and advanced prostate cancer in spring 2022. Started Orgovyx in July 2022, and did 25 radiation treatments. At appointment...
Treatment options: radiation without ADT?
Researching treatment options.79 yr old, sexually active, good healthGleason 4+3, PSA 12.91 (tripled within last yr), Testosterone 435, PSMA PetScan No metastases, Decipher .95Radiation oncologist...
What does "This abuts the prostate margin over 6mm" mean?
Hello everyone – 61 years of age. PSA 9.7, 15%fPSA, Velocity 1.05 (1.5 jump from June to December 2023), PSA density .12, two lesions PIRADS...
Lupron: Anyone have muscle weakness and severe leg pain?
I have PC and have been on Lupron injections every 3 months for 15 months. I am experiencing severe leg pain in hamstrings and glutes....
Starting TRT now.
I'm 75 now. My prostate was removed in 2021. The cancer spread to my T3 vertebrae. That was treated with radiation. I was put on...
Stage 4 Radiation challenge: How to avoid risk to bladder?
Hello, I’m stage 4 post Radical, post comprehensive radiation, coming off ADT, waiting for Testosterone to return, looking at next steps. When they did the...
Is this true?
I was starting to do a lot better but then I read that it can take 18 months to get my testosterone back to my...
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
Resolution of Side Effects after Stopping ADT/Lupron
Hello everyone. I am 70 years old and was diagnosed with PC about 2 and a half years ago, G9 with extra capsular extension but...
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
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