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Prostate Cancer Support Group

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Experience with radiation cystitis & repair of bladder neck
Prostrate removed Jan. 2024. After 34 rounds of radiation completed July 2024, complicated by bladder neck contracture. April 2025 Iowa City preformed a DVIU balloon...
Support Group: Prostate Cancer
Last active: Apr 24 11:44am
Did your Artificial Urinary Sphincter (AUS) fail before activation?
To make it short,02/08/*2021 had RP,left me totally incontinent.Dr. was urging me for years to get AUS.I thought it was medieval and there had to...
Support Group: Prostate Cancer
Last active: Feb 1, 2025
41-days of salvage RT - your experience with side effects?
Hello, First time post, but second go ‘round with prostate cancer. Let me start with my request to the group, then I’ll summarize my history.I...
Support Group: Prostate Cancer
Last active: Aug 4, 2025
Recurrence post Tulsa Pro
Married 33 years, two kids, and don't want PCa being a real drag on my life and family. Here is my history, plus where I...
Support Group: Prostate Cancer
Last active: Apr 9 9:27am
What I’ve learned in the 6 weeks since my RARP
This is my attempt to compile what I‘ve learned and tips/tricks to help cope with RARP and its side effects (while it's still fresh). Much...
Support Group: Prostate Cancer
Last active: Feb 13 1:03pm
How will I know EBRT has worked?
I'm writing to share with you my journey with Prostate Cancer. I am 73 years old, from Calcutta, India and getting treated at Tata Medical...
Support Group: Prostate Cancer
Last active: Mar 26, 2023
Knowledge Is Power
Don't believe me? Ask Google, they became quite powerful peddling knowledge. I see some recurring lines of questions and concerns on here, I thought putting...
Support Group: Prostate Cancer
Last active: Jun 27, 2025
Seminal Vesicle Invasion & PR22/MIDS/SPORT Trials ADT & ART
Hello all, Thanks for reading. My father is 63 close to 64. He was diagnosed with prostate cancer (acinar adenocarcinoma) late last year 2022. We...
Support Group: Prostate Cancer
Last active: Aug 10, 2023
Yes - It Is Okay To Whine
In some of the recent comments that have been posted, I have detected a certain amount of snark. I like it. There is much that...
Support Group: Prostate Cancer
Last active: Jun 2, 2025
A quick Question
why is dying from prostate cancer more dramatic than dying from good health? by Someone Who’s Had Just About Enough of It If dying is...
Support Group: Prostate Cancer
Last active: May 24, 2025
Welcome to Prostate Cancer. A Playbook for the un-initiated
It always begins harmlessly. A checkup. A blood draw. Then the call: “Your PSA is a bit elevated.” Calm voice, a hint of tension. Like...
Support Group: Prostate Cancer
Last active: Apr 15, 2025
Newer surgery technique: da Vinci SP (single-port robot-assisted)
In reply to someone’s post I wrote about this new surgical procedure but realize if it is not a stand alone post, many may not...
Support Group: Prostate Cancer
Last active: Aug 16 1:00pm
Husband's prostate cancer story
My 64 yr old husband was having urination frequency and enlarged prostrate. Visited the urologist for at least two years. His PSA was around 4,...
Support Group: Prostate Cancer
Last active: Sep 21, 2023
Large fluid retention after RARP
I had robotic radical prostatectomy on 3/31/26 at Mass General Brigham (partner of Dana Farber) by a world-renowned surgeon. (I am 67, overall good health,...
Support Group: Prostate Cancer
Last active: Aug 18 11:05pm
A users guide to PCa treatment side effects
A dark, cynical, and painfully honest guide to treatment side effects—because someone has to say it. Treatments offer similar chances of survival. When you need...
Support Group: Prostate Cancer
Last active: Jan 7 2:53pm
So, looking over one's shoulder for the remaining time...
I have made the decision to have my prostate removed, with ED and inconti in my future.... PSA 8.7, stage 2, grade 3, Gleason 4+3,...
Support Group: Prostate Cancer
Last active: Jun 4 7:51am
Radiation instead of removal (surgery delayed due to illness)
I had to cancel my RP prostate surgery do to a cold. The doctors would not put me under with a cold. I have rescheduled...
Support Group: Prostate Cancer
Last active: Mar 14, 2024