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Discussion
Managing Post-Exertional Malaise (PEM): What can help?
What can help Post Exertional Malaise crashes that is common with Long Covid same as with ME/CFS?
Last active: May 12, 2025
Discussion
Post Exertional Malaise with Long Covid: How do you cope?
I have always been the family "Energizer Bunny". But this was my last family gathering I can host.5yrs of fighting long covid, since Spring 2020....
Last active: Jan 7 10:29am
Discussion
NIH to Open Clinical Trials for Long COVID Post Exertional Malaise
If anyone is interested, I just came across this clinical trial. They don't have all the locations listed yet, but the first site will be...
Last active: Sep 12, 2024
Discussion
Anyone had success with Low-Dose Naltrexone for PEM, Chronic Fatigue?
I have Long Covid with Post Exertional Malaise / Chronic Fatigue. I just started Low-Dose Naltrexone last week. Has anyone found this helpful?
Last active: Apr 8 6:26pm
Discussion
Are your heart symptoms worse in morning, better as day progresses?
For those suffering with tachycardia, fatigue, orthostasis and post exertional malaise: do you notice symptoms are worst in the morning and gradually improve throughout the...
Last active: Oct 9, 2022
Discussion
PEM What is your reaction? A new study from the Netherlands
I am well over a year with Post/Long Covid and the never-ending, long list of dreadful and painful symptoms. Like many of you, one of...
Last active: Jan 17, 2024
Discussion
Resource to share with doctors who don't know what to do for you!
This attachment is for people who have Long COVID with Chronic Fatigue Syndrome. Chronic Fatigue includes PEM (Post-Exertional Malaise). That means you get excessively fatigued...
Last active: Apr 8 11:37am
Discussion
Important JAMA study from May 2023
This important JAMA study from last May hasn't been mentioned recently: https://www.nih.gov/news-events/nih-research-matters/toward-deeper-understanding-long-covid. The researchers proposed a scoring system for diagnosing long covid. At the top...
Last active: Jan 20, 2024
Discussion
Has any long hauler been diagnosed with thinning optic nerve/glaucoma?
I had covid in April 2022. Many symptoms have lingered since then, most notably post exertional malaise, shortness of breath, coughing, GI problems, autoimmune disease,...
Last active: Jun 20, 2023
Discussion
Any experience with Post-exertion Malaise (PEM) symptom of Long Covid?
I am diagnosed with Long Covid and symptoms include fatigue, insomnia, and post exertion malaise (PET). I can’t find much research on PET especially the...
Last active: May 6, 2025