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Post-COVID Recovery & COVID-19 Support Group

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496 total results
Discussions (29)
recommendations for electrolytes (for POTS)
Hi all, I'm looking for recommendations for electrolytes with high salt content because I've been diagnosed with POTS. I'm looking for something with high sodium,...
Last active: Dec 21, 2024
Some possible answers: Diagnosed with POTS
So, I had my first Long Covid Recovery Care appointment and was diagnosed with POTS. Which the doctor feels was brought on by Covid. He...
Last active: Dec 22, 2023
Anyone else diagnosed with POTS after having Covid?
Has anyone else been diagnosed with POTS after having Covid? Now my fasting glucose level is also high and I am having gut issues.
Last active: Apr 6, 2023
Low dose Naltrexone for POTS helping alot
Hello all. Hope lots of you are getting better. My son has/had POTS. I put him on LDN and he is so much better. So...
Last active: Apr 20, 2023
Diagnosed a while ago with POTS but my BP...
I was diagnosed with POTS about 8 months ago when at my PCPs, I was dizzy and my face went numb. 180/120. A quick dose...
Last active: Dec 19, 2024
POTS, Pre- or Post-COVID: Where did you find treatment and what helps?
Hello- I’m looking for others diagnosed with POTS, whether you had it before or after COVID. I’d like to know if you’re willing to share:...
Last active: Apr 3 2:02pm
autonomic dysfunction
If I was previously diagnosed with POTS and orthostatic intolerance (based on the active stand test), which is now mostly under control with meds, but...
Last active: May 10 9:20am
Failed tilt table test
Had Covid in Dec. of 21 and then again in August of 22. Multiple symptoms and illness left its wake. Received a diagnosis of long...
Last active: Aug 18, 2024
Newest and best long covid recovery treatments?
Has anyone had any substantial or helpful treatment for severe long covid? Interested to hear any novel therapies being explored. At this point, I am...
Last active: Jun 30 12:25pm
Has anyone tried at-home vagus nerve stimulators for Long COVID?
I did a quick search and didn’t find a post dedicated to this, just a few comments, so here goes: Has anyone tried at-home vagus...
Last active: Jan 14 9:06pm
3 yrs 8 months still unable to work
RN here still on medical leave, almost 4 years later. Losing hope. Anyone out there experience improvements this far into Long Haul? I have one...
Last active: Jun 24 8:16am
Has anyone had Daily Persistent Headache after covid?
My 16 year old son has had Daily Persistent Headache for over two years now along with low iron and pots. He has a headache...
Last active: Feb 7 12:53pm
Vomiting liquids post covid
Anyone else experience daily vomiting post covid? I had Delta variant 8/21 and Omnicron 1/22 and have been vomiting since. I had a virus in...
Last active: May 31, 2023
Anyone experiencing post covid heart issues?
hello, I am 19yrs old and have had Covid twice, once at the start of the year 7th Jan and recently 8th of July. I...
Last active: Oct 22, 2023
NIH RECOVER + FOIA = “they bungled it” I can’t speak to the veracity
Who knows? It would seem like government grants, bureaucracy, private vs public funding and politics, and a new complicated disease would cause confusion. This article...
Last active: Aug 21, 2024
My muscles, including my tongue is on fire
This is my first time actually asking all question. 55 yr old, COVID about 2022. I have been to a LONG COVID program but I...
Last active: Apr 6 10:03am
Any tips on coping w/isolation, loss of support. LC since 2020
Hello. I was infected in Nov 2020. Began mild & then progressed to SVT, POTS, severe cognitive issues, laundry list you all know. Was in...
Last active: Oct 31, 2023
How does the Vagus Nerve play a part in PASC
I have heard about a clinic has succeeded in reducing the pain of PASC by stimulating the Vagus Nerve and offering other physical treatments. I...
Last active: Jan 28 3:32pm
Decreased tolerance to visual and auditory stimuli
My 61 year old husband is 4 years post-covid pneumonia and has experienced a vast array of troubling long covid symptoms over the years. His...
Last active: Jan 14 10:03am
I feel like I’m slowly dying and nobody is helping
I’m at a complete loss. I feel like this is my one last ditch effort at reaching out for support. I only had Covid once...
Last active: Jan 15 7:43pm