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Public Support Group 536 total results
Discussions (34)
recommendations for electrolytes (for POTS)
Hi all, I'm looking for recommendations for electrolytes with high salt content because I've been diagnosed with POTS. I'm looking for something with high sodium,...
Some possible answers: Diagnosed with POTS
So, I had my first Long Covid Recovery Care appointment and was diagnosed with POTS. Which the doctor feels was brought on by Covid. He...
Anyone with Long Covid, POTs, CFS have a Colonoscopy?
I just had a Positive Cologuard test so I know I am facing a Colonoscopy. Has anyone undergone a Colonoscopy while having these conditions? What...
Anyone else diagnosed with POTS after having Covid?
Has anyone else been diagnosed with POTS after having Covid? Now my fasting glucose level is also high and I am having gut issues.
Diagnosed a while ago with POTS but my BP...
I was diagnosed with POTS about 8 months ago when at my PCPs, I was dizzy and my face went numb. 180/120. A quick dose...
Low dose Naltrexone for POTS helping alot
Hello all. Hope lots of you are getting better. My son has/had POTS. I put him on LDN and he is so much better. So...
POTS, Pre- or Post-COVID: Where did you find treatment and what helps?
Hello- I’m looking for others diagnosed with POTS, whether you had it before or after COVID. I’d like to know if you’re willing to share:...
autonomic dysfunction
If I was previously diagnosed with POTS and orthostatic intolerance (based on the active stand test), which is now mostly under control with meds, but...
Failed tilt table test
Had Covid in Dec. of 21 and then again in August of 22. Multiple symptoms and illness left its wake. Received a diagnosis of long...
Newest and best long covid recovery treatments?
Has anyone had any substantial or helpful treatment for severe long covid? Interested to hear any novel therapies being explored. At this point, I am...
Has anyone had Daily Persistent Headache after covid?
My 16 year old son has had Daily Persistent Headache for over two years now along with low iron and pots. He has a headache...
3 yrs 8 months still unable to work
RN here still on medical leave, almost 4 years later. Losing hope. Anyone out there experience improvements this far into Long Haul? I have one...
Long covid, MCAS, fluid rentention, rash, bleeding
My 31 year old daughter has had long covid for 2.5 years. POTS is under control with electrolytes, ivabradene. Has had skin rashes for entire...
Vomiting liquids post covid
Anyone else experience daily vomiting post covid? I had Delta variant 8/21 and Omnicron 1/22 and have been vomiting since. I had a virus in...
Anyone experiencing post covid heart issues?
hello, I am 19yrs old and have had Covid twice, once at the start of the year 7th Jan and recently 8th of July. I...
My muscles, including my tongue is on fire
This is my first time actually asking all question. 55 yr old, COVID about 2022. I have been to a LONG COVID program but I...
NIH RECOVER + FOIA = “they bungled it” I can’t speak to the veracity
Who knows? It would seem like government grants, bureaucracy, private vs public funding and politics, and a new complicated disease would cause confusion. This article...
Any tips on coping w/isolation, loss of support. LC since 2020
Hello. I was infected in Nov 2020. Began mild & then progressed to SVT, POTS, severe cognitive issues, laundry list you all know. Was in...
Decreased tolerance to visual and auditory stimuli
My 61 year old husband is 4 years post-covid pneumonia and has experienced a vast array of troubling long covid symptoms over the years. His...
How does the Vagus Nerve play a part in PASC
I have heard about a clinic has succeeded in reducing the pain of PASC by stimulating the Vagus Nerve and offering other physical treatments. I...
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