Post-COVID Recovery & COVID-19 Support Group

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Comments (304)

Dear mindig, Welcome to this group. I’ve had Long Covid for 3 1/2 years and still...

https://connect.mayoclinic.org/comment/1180134/

Discussion: Do other long haulers suffer with brain changes? Seen any improvement?

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 26, 2024

Agreed! I found a LOT of great information in the Covid long-haulers group on Facebook and...

https://connect.mayoclinic.org/comment/770511/

Discussion: Almost dead from Long COVID! HELP!!!!!

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 7, 2022

My hair started shedding a little during Covid. I had a bad case of Covid starting...

https://connect.mayoclinic.org/comment/891580/

Discussion: Does anyone have problems with hair loss with post-COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 7, 2023

I have been on LDN for Long Covid as post viral anti inflammatory. It is compounded...

https://connect.mayoclinic.org/comment/922730/

Discussion: Low dose naltrexone for Post-Covid Recovery experiences?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 1, 2023

Found this about hepcidin What is the relationship between hepcidin and iron disorders? Hepcidin is elevated...

https://connect.mayoclinic.org/comment/1059389/

Discussion: Iron Depletion in Blood related to COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 29, 2024

Technically I believe the Pepsid is also an antihistamine if I am not mistaken. They work...

https://connect.mayoclinic.org/comment/1009025/

Discussion: Has anyone experienced Covid Gut? What helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 3, 2024

Bunzman, what is happening currently is that people's symptoms are being treated one by one, as...

https://connect.mayoclinic.org/comment/955405/

Discussion: Have you been cured of POST COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 28, 2023

Hi @joelsg,, the only evidence-based information that a Google Scholar search revealed referred to the potential...

https://connect.mayoclinic.org/comment/691696/

Discussion: Plasmapheresis for brain fog in Long COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 21, 2022

@law59 ENTs know that sinus inflammation can cause irritation of the Trigeminal nerves which I turn...

https://connect.mayoclinic.org/comment/1026967/

Discussion: Facial Pain as symptom of Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 3, 2024

I would not hesitate to participate in this trial if it were close enough to travel!...

https://connect.mayoclinic.org/comment/1253307/

Discussion: I’m being interviewed by NBC Chicago on long Covid this week. Help

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 8 1:15pm

I wrote about it to you here: https://connect.mayoclinic.org/comment/889113/ The most noticeable improvement was with improved energy....

https://connect.mayoclinic.org/comment/894504/

Discussion: Anyone out there on Guanfacine?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 12, 2023

Thanks a lot for replying. I used to have itchiness at the time my first internal...

https://connect.mayoclinic.org/comment/948629/

Discussion: What helped to reduce my internal vibrations

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 16, 2023

LDN is thought to increase endorphins and modulate glial cells (overactive glial cells are believed to...

https://connect.mayoclinic.org/comment/892122/

Discussion: Anyone out there on Guanfacine?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 8, 2023

Yes, I’ve been told I had it. A little over a year ago, I had covid...

https://connect.mayoclinic.org/comment/832943/

Discussion: ground-glass opacity in lungs

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 27, 2023

And by "good nutrition" does your Dr. mean anti-inflammatory and low histamine? Because that's what actually...

https://connect.mayoclinic.org/comment/770545/

Discussion: Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 7, 2022

I'm sorry it didn't work out for you. One of the things I liked about LDN...

https://connect.mayoclinic.org/comment/893292/

Discussion: Anyone out there on Guanfacine?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 10, 2023

Similar story here. I used to drive 10-12 hours a day comfortably and now can at...

https://connect.mayoclinic.org/comment/1062438/

Discussion: Difficulty Driving After COVID-19

Support Group: Post-COVID Recovery & COVID-19

Posted: May 5, 2024

What non prescription supplements or vitamins have you found helpful? I have been dealing with brain...

https://connect.mayoclinic.org/comment/832730/

Discussion: Anyone think that it’s no longer long Covid? just permanent damage?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 27, 2023

Hi Bridget, you're asking great questions regarding a possible cytokine storm of myopathy due to COVID....

https://connect.mayoclinic.org/comment/676113/

Discussion: Anyone experience Post-Covid Inflammatory Arthritis?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 29, 2022

It did for me for months-it's called post exertional fatigue. But there is hope. It is...

https://connect.mayoclinic.org/comment/843547/

Discussion: Does anyone else feel like exercising makes your symptoms worse?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 15, 2023