Post-COVID Recovery & COVID-19 Support Group

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Comments (447)

I had very early Covid and never felt well after that. Covid affects your immune system...

https://connect.mayoclinic.org/comment/1229756/

Discussion: Long Covid & High BP when standing

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 5 6:07am

For anyone with POTS after Covid, there is a clinical trial of a medication called efgartigimod...

https://connect.mayoclinic.org/comment/838567/

Discussion: Anyone else diagnosed with POTS after having Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 6, 2023

With my ET I had what docs thought was Long Covid. I then saw a cardiologist...

https://connect.mayoclinic.org/comment/1164458/

Discussion: Any tips for LC dizziness?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 29, 2024

Hi- Just wanted to say that I had an appointment with Dr. Tae Chung in the...

https://connect.mayoclinic.org/comment/1075041/

Discussion: Anyone have any success with going to an LC clinic?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 26, 2024

I’ve had pots for a very long time. Fludrocortisone helps push my pressure quickly but I...

https://connect.mayoclinic.org/comment/1139980/

Discussion: Newest and best long covid recovery treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 11, 2024

I take, as needed, Meclizine. This was given to me for vertigo, or motion sickness. It...

https://connect.mayoclinic.org/comment/1165148/

Discussion: Any tips for LC dizziness?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 30, 2024

Did anyone else’s POTs or CFS/ME meds stop working for them after Covid, or become far...

https://connect.mayoclinic.org/comment/978721/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 11, 2023

I have POTS. I tend to eat regular salt as much as I can. My PCP...

https://connect.mayoclinic.org/comment/1153531/

Discussion: recommendations for electrolytes (for POTS)

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 7, 2024

I had long Covid which caused ET, essential Thrombocytosis, and then POTS. I have different meds...

https://connect.mayoclinic.org/comment/1139751/

Discussion: Newest and best long covid recovery treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 11, 2024

My son has had a bad case of POTS. I´m a doctor and one of my...

https://connect.mayoclinic.org/comment/828317/

Discussion: Anyone else diagnosed with POTS after having Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 19, 2023

Hey, I also have worsened pots after covid and LC. I live in Raleigh and am...

https://connect.mayoclinic.org/comment/1122181/

Discussion: Failed tilt table test

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 12, 2024

I hope someone responds. I’m interested in this info too, though I don’t have POTS. I...

https://connect.mayoclinic.org/comment/1152734/

Discussion: recommendations for electrolytes (for POTS)

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 6, 2024

Thanks for asking this question. I’m also super curious about the Truvaga, as I have POTS...

https://connect.mayoclinic.org/comment/1147885/

Discussion: Anyone out there on Guanfacine?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 26, 2024

I had my second bout of Covid January 2022. I had dizzy spells, could barely walk....

https://connect.mayoclinic.org/comment/765288/

Discussion: Post-Covid dizziness/off-balance, as most troubling symptom

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 25, 2022

Same. I can be sitting in a chair and suddenly get bursting balloons of whatever that...

https://connect.mayoclinic.org/comment/758684/

Discussion: Anyone else hitting cardio levels (on Fitbit) when doing simple tasks?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 8, 2022

Good to hear that you passed your second tilt table test. Haven’t really called myself as...

https://connect.mayoclinic.org/comment/1126364/

Discussion: Failed tilt table test

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 18, 2024

Compression stockings may help with the dizziness upon standing, staying hydrated, etc. I have POTS so...

https://connect.mayoclinic.org/comment/1028574/

Discussion: what is your most disabling symptom and what did you do to treat it?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 6, 2024

So sorry to hear about the balance issues. If you see a connection to Covid would...

https://connect.mayoclinic.org/comment/1055619/

Discussion: Has anyone experienced balance issues after covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 23, 2024

Ask your doctor for Corlanor (ivabradine). It is wonderful, particularly if you have POTS. There are...

https://connect.mayoclinic.org/comment/1112255/

Discussion: What helps post COVID shortness of breath?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 26, 2024

From Cleveland Clinic: What is postural orthostatic tachycardia syndrome (POTS)? Postural orthostatic tachycardia syndrome (POTS) is...

https://connect.mayoclinic.org/comment/994221/

Discussion: Extreme exhaustion after normal exertion?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 9, 2024