Post-COVID Recovery & COVID-19 Support Group

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Comments (487)

My daughter developed POTS after a viral illness and had many similar symptoms - exhaustion, physical...

https://connect.mayoclinic.org/comment/795190/

Discussion: Returning to work as an RN with long Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 11, 2023

I have gone through the U of M Post Covid Recovery Group Clinic. I loved it...

https://connect.mayoclinic.org/comment/801864/

Discussion: Post-Covid dizziness/off-balance, as most troubling symptom

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 26, 2023

I have had the same symptoms on and off. It's very disturbing and I feel unsure...

https://connect.mayoclinic.org/comment/738396/

Discussion: Post-Covid dizziness/off-balance, as most troubling symptom

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 17, 2022

Yes, diagnosed with POTS Use a blood pressure cuff at home and take pressure on each...

https://connect.mayoclinic.org/comment/1410994/

Discussion: Has anyone had a spell of severe dizziness that resulted in fainting?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 8 7:54am

I had very early Covid and never felt well after that. Covid affects your immune system...

https://connect.mayoclinic.org/comment/1229756/

Discussion: Long Covid & High BP when standing

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 5 6:07am

If dysautonomia (POTS or other types of orthostatic issues) are present, you could try to get...

https://connect.mayoclinic.org/comment/1333234/

Discussion: Long COVID providers/specialists?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 23 7:52am

For anyone with POTS after Covid, there is a clinical trial of a medication called efgartigimod...

https://connect.mayoclinic.org/comment/838567/

Discussion: Anyone else diagnosed with POTS after having Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 6, 2023

With my ET I had what docs thought was Long Covid. I then saw a cardiologist...

https://connect.mayoclinic.org/comment/1164458/

Discussion: Any tips for LC dizziness?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 29, 2024

Hi- Just wanted to say that I had an appointment with Dr. Tae Chung in the...

https://connect.mayoclinic.org/comment/1075041/

Discussion: Anyone have any success with going to an LC clinic?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 26, 2024

I’ve had pots for a very long time. Fludrocortisone helps push my pressure quickly but I...

https://connect.mayoclinic.org/comment/1139980/

Discussion: Newest and best long covid recovery treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 11, 2024

Did anyone else’s POTs or CFS/ME meds stop working for them after Covid, or become far...

https://connect.mayoclinic.org/comment/978721/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 11, 2023

I take, as needed, Meclizine. This was given to me for vertigo, or motion sickness. It...

https://connect.mayoclinic.org/comment/1165148/

Discussion: Any tips for LC dizziness?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 30, 2024

I have POTS. I tend to eat regular salt as much as I can. My PCP...

https://connect.mayoclinic.org/comment/1153531/

Discussion: recommendations for electrolytes (for POTS)

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 7, 2024

I can’t tell if my leg problems are from LC or my POTS. I had early...

https://connect.mayoclinic.org/comment/1332403/

Discussion: Has anyone else experienced leg problems

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 22 6:17am

I had long Covid which caused ET, essential Thrombocytosis, and then POTS. I have different meds...

https://connect.mayoclinic.org/comment/1139751/

Discussion: Newest and best long covid recovery treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 11, 2024

My son has had a bad case of POTS. I´m a doctor and one of my...

https://connect.mayoclinic.org/comment/828317/

Discussion: Anyone else diagnosed with POTS after having Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 19, 2023

Im not sure if you've already seen a cardiologist but that's where you should go. Sounds...

https://connect.mayoclinic.org/comment/1410769/

Discussion: Has anyone had a spell of severe dizziness that resulted in fainting?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 7 6:43pm

I hope someone responds. I’m interested in this info too, though I don’t have POTS. I...

https://connect.mayoclinic.org/comment/1152734/

Discussion: recommendations for electrolytes (for POTS)

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 6, 2024

Thanks for asking this question. I’m also super curious about the Truvaga, as I have POTS...

https://connect.mayoclinic.org/comment/1147885/

Discussion: Anyone out there on Guanfacine?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 26, 2024

Hey, I also have worsened pots after covid and LC. I live in Raleigh and am...

https://connect.mayoclinic.org/comment/1122181/

Discussion: Failed tilt table test

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 12, 2024

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