Post-COVID Recovery & COVID-19 Support Group

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Comments (508)

I have similar symptoms, including POTS. My neurologist said my symptoms are similar to the data...

https://connect.mayoclinic.org/comment/1051845/

Discussion: What am I actually supposed to be doing to get better?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 16, 2024

As promised, I am reporting back after my Tilt Table Test. It brought back my Covid...

https://connect.mayoclinic.org/comment/929483/

Discussion: Susceptibility to Stress and Depression

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 13, 2023

@baker00l Hi, I was recently diagnosed with POTS-like condition/sinus tachycardia after having COVID this summer. I...

https://connect.mayoclinic.org/comment/772691/

Discussion: Anyone else hitting cardio levels (on Fitbit) when doing simple tasks?

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 13, 2022

I’ve considered the same thing, but I think it probably depends on the clinic and how...

https://connect.mayoclinic.org/comment/1025400/

Discussion: Anyone have any success with going to an LC clinic?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 1, 2024

I also developed POTS with Long Covid. My doctor prescribed Low Dose Naltrexone to combat inflammation....

https://connect.mayoclinic.org/comment/837384/

Discussion: Low dose Naltrexone for POTS helping alot

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 4, 2023

Check for Lupus SLE and Sjogren’s, MECFS MCAS and pots. All of these diseases can be...

https://connect.mayoclinic.org/comment/1370519/

Discussion: Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 14, 2025

Yes. From the onset of LC Sept 2020, so, in my 6th year... SOB/Dx POTS and...

https://connect.mayoclinic.org/comment/1538942/

Discussion: Post Covid, night time, shortness of breath and racing heart.

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 30 3:00pm

Perhaps he had covid while waiting for the shots to kick in. Or if you have...

https://connect.mayoclinic.org/comment/995458/

Discussion: Anyone think that it’s no longer long Covid? just permanent damage?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 11, 2024

Yes, I was diagnosed first with ET (essential Thrombocytosis) Later diagnosed with POTS. Postural orthostatic tachycardia...

https://connect.mayoclinic.org/comment/1261628/

Discussion: do you have fatigue , muscle aches and shortness of breath?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 19, 2025

Hello! Your story resonates and hurts my heart at the same time. I feel your weariness...

https://connect.mayoclinic.org/comment/1022256/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 25, 2024

Yes, since 2020 here as well. I worked for local city Fire Department in the Chief’s...

https://connect.mayoclinic.org/comment/1250923/

Discussion: I’m being interviewed by NBC Chicago on long Covid this week. Help

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 5, 2025

Hi there- I started taking LDN before I got long covid—for chronic pain (central sensitivity syndrome,...

https://connect.mayoclinic.org/comment/894711/

Discussion: Anyone taking Naltrexone for Long COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 12, 2023

I also don't go to Mayo either. I did undergo autonomic nervous system testing, but in...

https://connect.mayoclinic.org/comment/1189349/

Discussion: Anybody have trouble regulating body temperature after COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 12, 2024

I had an appt on Tuesday with another cardiologist. This time at Tampa General Hospital. Said...

https://connect.mayoclinic.org/comment/708180/

Discussion: Possibly autonomical dysfunction

Support Group: Post-COVID Recovery & COVID-19

Posted: May 14, 2022

You have some good doctors who seem to be thinking outside the box! That’s awesome. I...

https://connect.mayoclinic.org/comment/798143/

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 17, 2023

I go to Johns Hopkins in Baltimore. I am a patient at their POTS/Long COVID clinic....

https://connect.mayoclinic.org/comment/1211625/

Discussion: I feel like I’m slowly dying and nobody is helping

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 14, 2025

Hi Kitty2, I don't have orthostatic hypotension, I have orthostatic intolerance and POTS. I cannot stand...

https://connect.mayoclinic.org/comment/1037987/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 21, 2024

I am relieved for you! I’m so glad you didn’t have to have lymphoma added to...

https://connect.mayoclinic.org/comment/931474/

Discussion: Does anyone have enlarged lymph nodes in their neck from Long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 17, 2023

Hi @kentkemmerling1949. Just suggestion as learned from PT, neurologist our brain adapts to getting up the...

https://connect.mayoclinic.org/comment/824120/

Discussion: Post-Covid dizziness/off-balance, as most troubling symptom

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 10, 2023

I thought all my weird symptoms were LC. It turned out I have ET, Essential Thrombocytosis,...

https://connect.mayoclinic.org/comment/1152204/

Discussion: Who here have LC so bad they can’t work or hardly leave the house?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 5, 2024

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