Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Lock icon Public Support Group
Clear Search
6,560 total results
Discussions (334)
Has anyone "self-tapered" (increase or decrease prednisone)
This is my husband's second bout with PMR. Afer it flared again, doctor restarted on pred. (20 mg) By mid-March appt, on 10 mg, he...
Last active: May 13, 2024
PMR with hand/wrist pain and swollen veins?
Hi, I've been struggling with PMR since May '22. Most of my symptoms are typical though apparently unusually stubborn; I'm currently on 40mg/day prednisone and...
Last active: May 16, 2025
kevzara and relapse
I started taking prednisone in October 2024 for pmr. My rheumatologist started me on kevzara the last week of December and it has been a...
Last active: Sep 16, 2025
PMR AND CRP QUESTION
I have had PMR for 5 years with all the ups and downs that this disease brings .I have been on 5 mg am and...
Last active: Feb 8, 2025
Rheumatoid Drs
I was diagnosed with PMR in August of 2023. My family doctor has been all I have seen about my disease. I was ok with...
Last active: Mar 13, 2024
Kevzara and elevated liver enzymes ALT AST
Ten weeks after starting Kevzara my ALT & AST readings went from normal to very high values. (ALT = 137, AST = 54) As a...
Last active: Jan 29, 2025
New Methotrexate Study in PMR
As seen on X, another study showing no benefit in PMR using methotrexate. I watch a lot of the RheumNow videos on YouTube as they...
Last active: Jul 29, 2025
Anyone experienced low-grade headaches as they ended the tapering?
I've had PMR for a year. Started prednisone in January tapering up from 1 to 8 mg. My side effects were horrendous so I started...
Last active: Sep 1, 2025
PMR flare -Shoulder and neck pain..and headaches
I’ve had PMR now for a 18 months. Mostly pain in my hips, thighs, and lower back. I have been trying to taper down the...
Last active: Jun 14, 2024
After PMR and return to good health
I had PMR for twenty months and thanks to Prednisone, good doctors and advice from Mayo Connect I was able to taper my way back...
Last active: Jan 19, 2024
CRP and SED levels
Hello - I am so happy to find this forum. There is nothing better than actual experience to help us make decisions about medications, diet,...
Last active: Feb 10 10:11am
Does GCA ever present with mild symptoms ?
Does GCA ever present in a mild form, too difficult to confirm without biopsy. I am currently 18 months into a second bout of PMR...
Last active: Oct 4, 2023
Do we actually “recover”?
Will there be a time when the PMR actually goes away, or is this a lifetime diagnosis? I have to taper off prednisone rather quickly,...
Last active: May 14, 2025
Actemra & Methotrexate for GCA treatment
Hello everyone,I was diagnosed with GCA on October, 2023 and started a 60mg/day treatment with Prednisone. I am now on Prednisone (10mg/day) and Methotrexate (17.5mg/week)....
Last active: May 5, 2024
Anyone have discomfort or pain when tapering off prednisone?
I am currently on a 3 dose of prednisone. I have some shoulder discomfort that goes down my back on either side. The left side...
Last active: Sep 11, 2025
Autoimmune changes
I have allergic contact dermatitis, and the allergen being formaldehyde, there hadn't been any way to avoid the itchy rash. But after I was diagnosed...
Last active: Dec 12, 2023
Golf and PMR
Presently on 5mg/day Prednisone from 6 mg/day and taper hasn’t been all that successful as I experienced an increase in symptoms in my shoulders, right...
Last active: Aug 23, 2025
PMR relapse- anyone mild and quick recovery?
I originally came down with PMR in March 2020 after the Shingrix vaccine and needed a very slow prednisone taper from 15 mg down to...
Last active: Apr 17, 2025
PMR symptoms worse in winter? Seasonal?
My PMR was finally diagnosed in January 2024 after my having what I now know were classic symptoms starting in November 2023. Symptoms started slowly,...
Last active: Dec 5, 2024
I have PMR can tapering bring about GCA?
I am 64 year old female and an avid cyclist. I came home from a south pacific cycling/cruise trip in May. I started a prescription...
Last active: Sep 9, 2025