Polymyalgia Rheumatica (PMR) Support Group

My PMR was finally diagnosed in January 2024 after my having what I now know were classic symptoms starting in November 2023. Symptoms started slowly,...

I was on the prednisone for just shy of two years

Hi, I’m Terri! I was diagnosed with PMR January 21, 2025, but I have lived with chronic pain for the last 20 years. I’m also...

I am a 75 year old male and I was diagnosed w poly myalgia rheumatica (pmr) two months ago while I was at Rochester while...

I was diagnosed in March for PMR at the age of 64. At the time I could not raise my shoulders and my hips, both...

I tapered to 1 mg three days ago. Up until now, I’ve only had minor setbacks. Increased soreness, or a brief return of spasms in...

I have been dealing with hip, shoulder,neck and back pain besides other joints for a few years now. Have had injuries ruled out and have...

I have been tapering for 5 months. I just started 5mg this week. Each time I have tapered after getting below 10mg I always seemed...

So I have been on prednisone and plaq for 20 years. this is because originally they thought i had lupus. I do not. fast forward...

I have had pmr for 2 plus years now and down to 2mg but each time I taper I have had more pain. My goal...

PMR started Feb. 2022. Having had a flare up at 6mg (Sept. 2022 while tapering by 1mg/month) I then was put back to 15mg for...

I have had pmr for 1 year now I reduced to 8 mg by last December when I had my first flare. I went up...

I have many of the classic PMR symptoms and responded immediately to a 15 mg dosage of Prednisone. I’ve been tapering since the original prescription...

I am 69 and very active. I loved to play golf but have been unable since onset of PmR. My PMR was diagnosed a year...

I have an appointment at Dr. Surgery on the 24th about my hip which I am 90% sure is not PMR flare. So hopefully they...

I just started Kevzara and hope to tape of Prednisone. I live in a retirement home and enjoy social life around joint meals. With the...

https://www.nadf.us/secondary-adrenal-insufficiency.html ---------------------- The following explains the challenges we need to overcome. I believe this is exactly what happened to me. "The most difficult issue is...

Hi all, I'm new to this group. I'm finding alot of useful info! I self diagnosed myself with PMR when PT failed to help with...

Good morning everyone.Well, yesterday was my first dose of Kevzara and day one of my taper down to 15mg of prednisone. We'll see how that...

Good stuff in my opinion! This was how my endocrinologist approached my low cortisol level when I tapered off prednisone. I couldn't continue my taper...