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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (243)
PMR pain management with medical cannabis
Has anyone used medical cannabis for pain management/ treatment for PMR? Has it helped you taper Prednisone? Do you use it on a regular basis...
Last active: Oct 23, 2024
Using CBD to reduce inflammation
Hi, I'm interested if finding out if anyone has had success in reducing the inflammation associated with PMR using CBD? I'm trying to taper down...
Last active: Dec 31, 2024
kevzara and relapse
I started taking prednisone in October 2024 for pmr. My rheumatologist started me on kevzara the last week of December and it has been a...
Last active: Sep 16 4:29pm
Prednisone dosage split
Something that may help someone but confirm with your physician before implementing. I had a major flare up a few weeks ago. My Rheumatologist started...
Last active: Feb 27 10:29am
Actemra & Methotrexate for GCA treatment
Hello everyone,I was diagnosed with GCA on October, 2023 and started a 60mg/day treatment with Prednisone. I am now on Prednisone (10mg/day) and Methotrexate (17.5mg/week)....
Last active: May 5, 2024
Keep encouraged, tapering second time is working
My husband (now 80) diagnosed with PMR 2020; went on prednisone; tapered down, but in 2023 it came back. Dr. retired. We found a new...
Last active: Jan 19 11:44am
Covid and pmr
I am on 8 mg of prednisone and tapering 1 mg. Per month. I just got Covid and I’m very achy and sick. Did anyone...
Last active: Sep 14, 2024
how to know how much to increase Prednisone dosage during flare
I have PMR and tapered down from 20mg/day to 2 mg/day of Prednisone over 15 months. Then, yesterday I woke up stiff and in pain...
Last active: Jul 17, 2024
Glucocorticoid-induced Adrenal Insufficiency
Finally some guidance from endocrinologists. This is recent information about a topic that is near and dear to me. It discusses many of the problems...
Last active: Apr 28 11:16am
Possibly Misdiagnosed?
I never had any bloodwork inflammation markers for PMR. Tested twice now. But due to age and joint stiffness in neck, hips, thighs, legs, I...
Last active: Aug 2, 2024
Has anyone used an anti inflammatory diet to get off prednisone ?
I have had pmr for 2 plus years now and down to 2mg but each time I taper I have had more pain. My goal...
Last active: Sep 10, 2024
Can PMR cause Balance problems?
I’m currently in a taper after a slight relapse @ 7mg now tapering 1mg a month started 4mg (3mg AM 1mg PM) 11/1 but began...
Last active: Nov 13, 2022
What mg of prednisone to take when a person gets a flare up?
When a person gets a flare up from PMR are they supposed to go up to a mg where they don't have any pain and...
Last active: Jun 6, 2024
Heating pad or ice pack
I’m having a major flare with arm/shoulder pain and thigh pain. Prednisone up to 20 mg from5 (was hoping to taper off in a few...
Last active: Jul 26, 2024
Tapering down and inflammation markers up
Diagnosed Feb with PMR/ GCA. Slowly tapered and now I am down to 10 mg from 40 mg with no flare ups 🙏🙏 Had SED...
Last active: Aug 4, 2023
PMR symptom flare from a head cold
I have been on prednisone (started at 30mg) since May and now have tapered to 5mg with no issues. This week Santa has brought me...
Last active: Dec 27, 2023
PMR tapering
I am new to this forum. I had to cut winter vacation short and head home because of aching shoulders, hips and lower back aches...
Last active: May 7 5:55am
Inflammation on Low Doses of Steroids
New to this group. Was diagnosed in November of 2024. Started on Prednisone and no real impacts. Was told that some people (me) cant metabolize...
Last active: Aug 28 7:45am
Any suggestions getting or not getting RSV, flu, covid vaccines?
I am traveling out of the country for 3 months , will be tapering to 8 or 8.5 prednisone in a week and just wondering...
Last active: Oct 25, 2023
Switching From Prednisone to Methotrexate!?
I was diagnosed with PMR 10 years ago and have been on low dose Prednisone (5mg) ever since. Flares happen about once a year on...
Last active: Aug 16 4:17am