Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussions (213)
Has anyone used an anti inflammatory diet to get off prednisone ?
I have had pmr for 2 plus years now and down to 2mg but each time I taper I have had more pain. My goal...
Last active: Sep 10, 2024
Heating pad or ice pack
I’m having a major flare with arm/shoulder pain and thigh pain. Prednisone up to 20 mg from5 (was hoping to taper off in a few...
Last active: Jul 26, 2024
Can PMR cause Balance problems?
I’m currently in a taper after a slight relapse @ 7mg now tapering 1mg a month started 4mg (3mg AM 1mg PM) 11/1 but began...
Last active: Nov 13, 2022
Tapering down and inflammation markers up
Diagnosed Feb with PMR/ GCA. Slowly tapered and now I am down to 10 mg from 40 mg with no flare ups 🙏🙏 Had SED...
Last active: Aug 4, 2023
PMR symptom flare from a head cold
I have been on prednisone (started at 30mg) since May and now have tapered to 5mg with no issues. This week Santa has brought me...
Last active: Dec 27, 2023
Any suggestions getting or not getting RSV, flu, covid vaccines?
I am traveling out of the country for 3 months , will be tapering to 8 or 8.5 prednisone in a week and just wondering...
Last active: Oct 25, 2023
Has anyone tried stem cell therapy
I’m going on 3 years now with PMR and my rheumatologist indicates she’s done all she can. I am now on kevzara and tapering down...
Last active: Aug 15, 2024
Still confused about tapering
Hi there, I was diagnosed with PMR about 4 months ago ... my rheumatologist gave me a "schedule" for tapering but I haven't been able...
Last active: Dec 18, 2024
How many of you are on your second flare-up?
How many people have come off of Prednisone only to have it reoccur a month later? I have had PMR for 3.5 years and was...
Last active: Oct 7, 2023
Prednisone to Kevzara
I am 69 and very active. I loved to play golf but have been unable since onset of PmR. My PMR was diagnosed a year...
Last active: Jun 18, 2024
PMR relapse after a fall
I notice that some members of this group mentioned having a PMR flare after a fall and thought I would share this link to an...
Last active: Oct 30, 2022
Pain ever goes away on its own?
I was on Prednisone from the previous July through May this year for PMR, tapering off. I felt ok for a while, with minor pain...
Last active: Oct 13, 2024
Pre-diabetes, likely due to long-term steroid use: Anyone else?
I was dismayed yesterday at a doctor’s visit, that my A1C was now is the “pre-diabetes” range. I knew this was a possible side effect...
Last active: Mar 25, 2022
New to PMR and worried about Prednisone
I am a 75 year old male and I was diagnosed w poly myalgia rheumatica (pmr) two months ago while I was at Rochester while...
Last active: Sep 28, 2017
PMR relapse- anyone mild and quick recovery?
I originally came down with PMR in March 2020 after the Shingrix vaccine and needed a very slow prednisone taper from 15 mg down to...
Last active: Apr 17 9:10am
Possible GCA
I had some symptoms of GCA, headaches, jaw stiffness and mild pain, sore throat, night sweats. I'm waiting on blood work results and in the...
Last active: Feb 23 1:13pm
PMR and Hip Osteoarthritis
Hello everyone, I was diagnosed with PMR in August. At the time, my rheumatologist took hip X-rays which showed moderate to severe osteoarthritis but I...
Last active: Feb 13 7:02am
Is it PMR (and/) or Osteoarthritis?
My encounter with PMR began in November 2022, when suddenly I was beset with the pain and stiffness you are all familiar with. Even rolling...
Last active: Apr 10, 2024
Post-surgery symptoms
Had lumbar spinal fusion three weeks ago. Was on 2.5 mg prednisone pre- and post-surgery, now at 2mg. Stopped my leflunomide (Arava) 10 days before...
Last active: Nov 19, 2024
Magnesium & PMR/GCA & digestive homeostasis
I've had to double my magnesium supplementation for "digestive homeostasis" (ie so I can poop regularly) since getting ill. I'm using magnesium glycinate & magnesium-threonate....
Last active: Mar 24, 2023