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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (282)
C Reactive Protein levels while tapering
When I was first diagnosed with PMR in August 2022, my C reactive protein (CRP) level was elevated: 25 mg/L should be < 7.0 mg/L...
Last active: Mar 22 2:26pm
Prednisone and vertigo
Hi all. As I taper down (6.5), I'm having intermittent vertigo. Dr. Internet tells me this is yet another symptom of our dear Predni. Others...
Last active: Apr 14, 2025
PMR: Anyone have Stress Fractures while on prednisone?
Anyone have any experience about having stress fractures while on prednisone? I was diagnosed with PMR almost 2 years ago. Started on 15 mgs. prednisone...
Last active: Jun 30, 2022
Cortisone Injection while taking Prednisone
Hello, I have been successfully tapering from 60 mg to 5 mg of Prednisone since diagnosed with PMR in April 2024. I am contemplating having...
Last active: Feb 6, 2025
Prednisone love/hate support group
For anyone interested in a good source of information, the Prednisone Pharmacist is prolific with making videos on a wide variety of topics about prednisone....
Last active: Dec 12, 2025
When to start tapering
I've been doing ok on 25mg of prednisone for 2 weeks now. Started at 10mg, increased over time until I felt "good". I do sometimes...
Last active: Dec 1, 2025
How long to take Kevzara and how to taper off Kevzara?
I have been taking Kevzara for 16 months now. It allowed me to taper off Prednisone within about 4 months after the first injection. I...
Last active: Jan 28 1:14pm
The importance of seeing a rheumatologist
I have been dealing with PMR symptoms since November 2024. Diagnosed (?) in May 2025. Was Told by 2 PRP s that I couldn’t possibly...
Last active: Apr 18 10:50am
Aching from the most minor of exercise
Diagnosed with PMR early this year. Shoulders, elbows and knees. Started with Prednisone, tapered to 5 mg, but pain is back. I am now experiencing...
Last active: Sep 15, 2024
Is This a Safe Taper as Prescribed by my doctor?
I’ve been on prednisone for about 18 months trying to taper. I was down to 7.5 mg daily in December but totally debilitated with PMR...
Last active: Feb 24, 2025
Loss of smell and taste
DOES PREDNISONE CAUSE THIS?? IT STARTED A WEEK AGO I HAVE BEEN TAPERING DOWN FROM 60MG VERY SLOWLY JUST STARTED ON 15 MG. YESTERDAY FROM...
Last active: May 20, 2020
Increasing Prednisone Dosage
I have been on this site before, but I can’t seem to find my way back to the link. Today I was told that I...
Last active: Jun 6, 2019
Mental fog and slight dizziness on Actemra
I've had PMR for almost 13yrs, starting in my late '50s. (Btw...Both my paternal grandfather and father had it.) Started on the 20mg prednisone that...
Last active: Jun 26, 2025
I have PMR can tapering bring about GCA?
I am 64 year old female and an avid cyclist. I came home from a south pacific cycling/cruise trip in May. I started a prescription...
Last active: Sep 9, 2025
PMR and tapering -- will blood work change?
I received a private message from @alanbruce that I think a lot of you may be interested in or thinking about. Alan said it was...
Last active: Jul 6, 2021
Has anyone else had pain return after reducing pred by only 2.5 mg?
I'd been taking 15 mg of prednisone for two months after being diagnosed with PMR in early August (I am 62). I saw my doctor...
Last active: Oct 24, 2023
Golf and PMR
Presently on 5mg/day Prednisone from 6 mg/day and taper hasn’t been all that successful as I experienced an increase in symptoms in my shoulders, right...
Last active: May 4 5:28pm
Anyone tapered down as directed, but increased back up on their own?
I'm new to these discussions and my husband's PMR. His Dr. wrote RX for Prednisone starting at 20 mg tapering down by 2.50 mg every...
Last active: Apr 12, 2024
Successful (so far) approach to a super slow taper
I have suffered from PMR since 2019, first starting treatment in February 2020 at 20 mg of prednisone, which was immediately effective, and I subsequently...
Last active: Nov 3, 2025
Extremely anxious
Is it normal to be extremely anxious while tapering? I am now taking 2.5mg of prednisone every other day and Kevzara bi weekly. It's so...
Last active: Oct 22, 2024