Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Lock icon Public Support Group
Clear Search
6,560 total results
Discussions (334)
Itching After Discontinuing Pred?
Greetings. I was on prednisone for 4 1/2 years, have been off since early October 2025, following slow taper. Glad to be done (also aware...
Last active: Jan 27 5:43am
Video: Steroids and PMR - International Panel of Doctors
This video confirms what I believe ... The doctors don't know how to treat PMR or how to taper steroids. There aren't any precise answers....
Last active: Aug 28, 2025
Shortness of breath ..dyspenia..while on prednisone
I entered rheumology land when my c- reactive was off the charts. Pred at 15 mg brought it down to like 1! But on the...
Last active: Jun 4, 2025
Heat affects stamina?
I have been diagnosed with PMR. Heat and humidity really affects my stamina. On a cool day I can walk slowly for 40 minutes or...
Last active: Feb 8 1:43pm
Chronic Fatigue while tapering Prednisone for PMR
I’ve had PMR since April 2020. I started on Prednisone 20 mg/day and at 18 months, I had gradually reduced to 7 mg/day. When I...
Last active: Mar 24, 2025
Healthy safe alternatives to tums / rolaids for indigestion?
I've been taking Tums for frequent but fairly mild indigestion. Mostly burning and a feeling of almost gerd starting to bubble up, with occasional painful...
Last active: Oct 12, 2024
Can PMR present in the clavicle too?
I’m a 62 year old female, who was diagnosed in summer of 2020 with PMR. About two weeks before the PMR symptoms happened, I had...
Last active: Feb 14, 2025
Traveling body weaknes
I have been in Kevzara for 14 weeks, prednisone taper down to 1 mg. Over this time I have noticed weakness, and or, soreness in...
Last active: Jul 16, 2025
Prednisone and Antidepressants
I’m 63 and was diagnosed with PMR 4 months ago. My life is upside down. I have tapered down to 20mg Prednisone, not without a...
Last active: Jan 8, 2025
Pill splitting
I have had two rheumatologists discourage pill splitting. I have to believe they have what I'll call 'medical logic' for discouraging their patients splitting prednisone...
Last active: Jan 22, 2025
Pre-diabetes, likely due to long-term steroid use: Anyone else?
I was dismayed yesterday at a doctor’s visit, that my A1C was now is the “pre-diabetes” range. I knew this was a possible side effect...
Last active: Mar 25, 2022
Antibiotic induced flare of PMR while on prednisone and MTX
I have been on prednisone for 13 months and was happily tapering down to 10 1/2 mg. Also injecting MTX weekly 40-50 ml. I developed...
Last active: Jan 16, 2022
Length of time with pmr and multiple autoimmune disorders
How long has your pmr been active? I was diagnosed in August 2024. Been on taper schedule with steroids from 15 - now 7.5 with...
Last active: Jul 26, 2025
Prednisone love/hate support group
For anyone interested in a good source of information, the Prednisone Pharmacist is prolific with making videos on a wide variety of topics about prednisone....
Last active: Dec 12, 2025
Moonface
I was diagnosed in late November. Started at 20mg of prednisone and am currently on 15mg. I hope to taper to 12.5 next week. I...
Last active: Jan 30, 2025
Random rapid heart rate tapering off of prednisone?
I started taking prednisone December 2024 20mg. I just tapered down to zero two weeks ago. I noticed about the last 3-4 months I seem...
Last active: Feb 6 10:23am
Inflammation on Low Doses of Steroids
New to this group. Was diagnosed in November of 2024. Started on Prednisone and no real impacts. Was told that some people (me) cant metabolize...
Last active: Aug 28, 2025
Prednisone dosage split
Something that may help someone but confirm with your physician before implementing. I had a major flare up a few weeks ago. My Rheumatologist started...
Last active: Feb 27, 2025
Prednisone is like running UP a DOWN staircase
Hi all. The unpredictability of prednisone is what causes me the most problems. I know the Myriad of side effects, both physical and mental, are...
Last active: Jan 9 4:54pm
Knee Replacement surgery and PMR
Hello - does anyone have information on, or experience with, PMR and total knee replacement (TKR). I have had diagnosed PMR for a year and...
Last active: Jun 30, 2022