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Discussions (294)
Prednisone is like running UP a DOWN staircase
Hi all. The unpredictability of prednisone is what causes me the most problems. I know the Myriad of side effects, both physical and mental, are...
Has anyone "self-tapered" (increase or decrease prednisone)
This is my husband's second bout with PMR. Afer it flared again, doctor restarted on pred. (20 mg) By mid-March appt, on 10 mg, he...
PMR with hand/wrist pain and swollen veins?
Hi, I've been struggling with PMR since May '22. Most of my symptoms are typical though apparently unusually stubborn; I'm currently on 40mg/day prednisone and...
Knee Replacement surgery and PMR
Hello - does anyone have information on, or experience with, PMR and total knee replacement (TKR). I have had diagnosed PMR for a year and...
Rheumatoid Drs
I was diagnosed with PMR in August of 2023. My family doctor has been all I have seen about my disease. I was ok with...
Kevzara and elevated liver enzymes ALT AST
Ten weeks after starting Kevzara my ALT & AST readings went from normal to very high values. (ALT = 137, AST = 54) As a...
New Methotrexate Study in PMR
As seen on X, another study showing no benefit in PMR using methotrexate. I watch a lot of the RheumNow videos on YouTube as they...
PMR AND CRP QUESTION
I have had PMR for 5 years with all the ups and downs that this disease brings .I have been on 5 mg am and...
After PMR and return to good health
I had PMR for twenty months and thanks to Prednisone, good doctors and advice from Mayo Connect I was able to taper my way back...
PMR flare -Shoulder and neck pain..and headaches
I’ve had PMR now for a 18 months. Mostly pain in my hips, thighs, and lower back. I have been trying to taper down the...
CRP and SED levels
Hello - I am so happy to find this forum. There is nothing better than actual experience to help us make decisions about medications, diet,...
Autoimmune changes
I have allergic contact dermatitis, and the allergen being formaldehyde, there hadn't been any way to avoid the itchy rash. But after I was diagnosed...
Golf and PMR
Presently on 5mg/day Prednisone from 6 mg/day and taper hasn’t been all that successful as I experienced an increase in symptoms in my shoulders, right...
Does GCA ever present with mild symptoms ?
Does GCA ever present in a mild form, too difficult to confirm without biopsy. I am currently 18 months into a second bout of PMR...
Weight based prednisone dosing
I was diagnosed with PMR in early December 2024. Classic symptoms. Prednisone rapidly relieved symptoms. Was initially given 40 mg but weaned quickly to 20....
Actemra & Methotrexate for GCA treatment
Hello everyone,I was diagnosed with GCA on October, 2023 and started a 60mg/day treatment with Prednisone. I am now on Prednisone (10mg/day) and Methotrexate (17.5mg/week)....
Do we actually “recover”?
Will there be a time when the PMR actually goes away, or is this a lifetime diagnosis? I have to taper off prednisone rather quickly,...
Anyone have discomfort or pain when tapering off prednisone?
I am currently on a 3 dose of prednisone. I have some shoulder discomfort that goes down my back on either side. The left side...
Still Struggling with that last mile on the path to 0 mg
After two months on 1/2mg of prednisone, various setbacks, and revisiting PT, I started to feel quite a bit of improvement, which led me to...
PMR relapse- anyone mild and quick recovery?
I originally came down with PMR in March 2020 after the Shingrix vaccine and needed a very slow prednisone taper from 15 mg down to...