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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (226)
Rheumatologist has now diagnosed me with Rheumatoid Arthritis
My rheumatologist has now diagnosed me with Rheumatoid Arthritis due to extremely painful wrists beginning in April of this year. I was diagnosed with PMR...
Last active: Jun 18 1:46pm
Circulating cortisol levels -- Does it have an effect on PMR?
I was once told that cortisol levels had "nothing to do with PMR symptoms". I'm more and more convinced that cortisol levels have a lot...
Last active: Jul 10, 2024
How much Prednisone to increase?
Tapered from 10 mgm Prednisone to 7.5 mgm and it was too much. Increased to 10 mgm 10 days ago, but I'm still having pain...
Last active: Sep 1, 2024
Weaning off Prednisone
Here is something I think may be strange. I am down to 1 mg. Prednisone with no stiffness or thigh/leg aches. Now, am trying to...
Last active: Aug 23, 2024
Weight based prednisone dosing
I was diagnosed with PMR in early December 2024. Classic symptoms. Prednisone rapidly relieved symptoms. Was initially given 40 mg but weaned quickly to 20....
Last active: Jun 17 5:46am
Methotrexate vs Prednisone
I have decided after researching and discussing with my Dr to ween off Prednisone while switching to methotrexate. I do not like how prednisone makes...
Last active: Aug 23, 2024
Foot pain
Hello all. I haven’t been able to find another thread on this, but apologize if there is. Does anyone experience severe foot pain? One of...
Last active: May 27, 2024
PMR Dosages and Managing Symptoms
I've read through the discussions and note all the different dosages of prednisone, different lengths of time taking prednisone, plus the addition of other meds,...
Last active: Jul 27, 2024
Safe dose and tapering on Glucocorticoid therapy.
British Medical Journal article. This is the most informative article i have read so far and answers questions about tapering schedules, split dosing and why...
Last active: Mar 7, 2024
Mental fog and slight dizziness on Actemra
I've had PMR for almost 13yrs, starting in my late '50s. (Btw...Both my paternal grandfather and father had it.) Started on the 20mg prednisone that...
Last active: Jun 26 10:16am
Initial Dosage of Prednisone Impacts Long Term Recovery
https://academic.oup.com/rheumatology/article/55/2/347/1822760 Higher initial dosages LOWERED the total time needed to taper to 5mg of prednisone. This study was for Giant Cell Arteritis, a closely related...
Last active: Mar 29, 2023
Where to go for comprehensive evaluation?
Wanted to know where in the United States to go for a comprehensive evaluation for PMR? Not responding to prednisone taper and Kevzara. Looking for...
Last active: May 25, 2024
Prednisone increase amount to treat flare up
I developed a very severe case of PMR 2 years ago. I started on a fairly high dose of prednisone and responded well quickly. I...
Last active: Apr 3, 2024
Mental confusion side effect from Steroids
hi. I started 20mg Prednisone/Methylpredisolone one month ago. I am noticing that my brain doesn’t function like it used to. very forgetful and the strangest...
Last active: Feb 24, 2022
New to PMR diagnosis
Hi, I am new here and just finding my way. I have some questions. I was recently diagnosed with PMR. I took the initial diagnostic...
Last active: Apr 26 12:55pm
Prednisone and neuropathy
Before prednisone and PMR, I had a very, very mild case of non-diabetic neuropathy. I've been on pred for five months and in the last...
Last active: May 23 3:21pm
Facial puffiness? PMR/GCA on Prednisone/Actemra
My husband has PMR since May 2023 and GCA since February 2024. He’s on 50 mg of prednisone and weekly shots of Actemra since developing...
Last active: May 5, 2024
Prednisone is like running UP a DOWN staircase
Hi all. The unpredictability of prednisone is what causes me the most problems. I know the Myriad of side effects, both physical and mental, are...
Last active: Jul 6, 2024
Has anyone tried stem cell therapy
I’m going on 3 years now with PMR and my rheumatologist indicates she’s done all she can. I am now on kevzara and tapering down...
Last active: Aug 28 9:07am
What is the goal when tapering?
I was diagnosed with PMR in November. Started on 65mg of prednisone. I have now tapered to 20mg, but the pain is debilitating. What is...
Last active: Apr 25 4:32pm