Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,993 total results
Discussions (213)
Anti-inflammatory diet and supplements for PMR
Hi, I have been dealing with polymyalgia rheumatica for a little over three months and have been taking 25 mg pf prednisone per day with...
Last active: Jan 22 7:39am
Can ultrasound help confirm PMR diagnosis?
Diagnosed with PMR Jan 2024. Did the 20 mg prednisone to start, tapered down to 7.5 by August when symptoms returned. Back up to 20...
Last active: Feb 7 7:40am
Circulating cortisol levels -- Does it have an effect on PMR?
I was once told that cortisol levels had "nothing to do with PMR symptoms". I'm more and more convinced that cortisol levels have a lot...
Last active: Jul 10, 2024
How much Prednisone to increase?
Tapered from 10 mgm Prednisone to 7.5 mgm and it was too much. Increased to 10 mgm 10 days ago, but I'm still having pain...
Last active: Sep 1, 2024
Weaning off Prednisone
Here is something I think may be strange. I am down to 1 mg. Prednisone with no stiffness or thigh/leg aches. Now, am trying to...
Last active: Aug 23, 2024
PMR 2ys and 4mos. Tapering to 1.5mg
PMR started Feb. 2022. Having had a flare up at 6mg (Sept. 2022 while tapering by 1mg/month) I then was put back to 15mg for...
Last active: Jun 17 1:41pm
Down to 1mg prednisone and then extreme fatigue sets in.
I was diagnosed with PMR in January after ending up in emergency with extreme pain and unable to walk. In the hospital they gave me...
Last active: Jul 8 4:06am
Foot pain
Hello all. I haven’t been able to find another thread on this, but apologize if there is. Does anyone experience severe foot pain? One of...
Last active: May 27, 2024
Methotrexate vs Prednisone
I have decided after researching and discussing with my Dr to ween off Prednisone while switching to methotrexate. I do not like how prednisone makes...
Last active: Aug 23, 2024
Initial Dosage of Prednisone Impacts Long Term Recovery
https://academic.oup.com/rheumatology/article/55/2/347/1822760 Higher initial dosages LOWERED the total time needed to taper to 5mg of prednisone. This study was for Giant Cell Arteritis, a closely related...
Last active: Mar 29, 2023
PMR Dosages and Managing Symptoms
I've read through the discussions and note all the different dosages of prednisone, different lengths of time taking prednisone, plus the addition of other meds,...
Last active: Jul 27, 2024
Mental confusion side effect from Steroids
hi. I started 20mg Prednisone/Methylpredisolone one month ago. I am noticing that my brain doesn’t function like it used to. very forgetful and the strangest...
Last active: Feb 24, 2022
Safe dose and tapering on Glucocorticoid therapy.
British Medical Journal article. This is the most informative article i have read so far and answers questions about tapering schedules, split dosing and why...
Last active: Mar 7, 2024
Prednisone increase amount to treat flare up
I developed a very severe case of PMR 2 years ago. I started on a fairly high dose of prednisone and responded well quickly. I...
Last active: Apr 3, 2024
Where to go for comprehensive evaluation?
Wanted to know where in the United States to go for a comprehensive evaluation for PMR? Not responding to prednisone taper and Kevzara. Looking for...
Last active: May 25, 2024
Shortness of breath ..dyspenia..while on prednisone
I entered rheumology land when my c- reactive was off the charts. Pred at 15 mg brought it down to like 1! But on the...
Last active: Jun 4 6:08pm
New to PMR diagnosis
Hi, I am new here and just finding my way. I have some questions. I was recently diagnosed with PMR. I took the initial diagnostic...
Last active: Apr 26 12:55pm
Facial puffiness? PMR/GCA on Prednisone/Actemra
My husband has PMR since May 2023 and GCA since February 2024. He’s on 50 mg of prednisone and weekly shots of Actemra since developing...
Last active: May 5, 2024
Glucocorticoid-induced Adrenal Insufficiency
Finally some guidance from endocrinologists. This is recent information about a topic that is near and dear to me. It discusses many of the problems...
Last active: Apr 28 11:16am
Prednisone is like running UP a DOWN staircase
Hi all. The unpredictability of prednisone is what causes me the most problems. I know the Myriad of side effects, both physical and mental, are...
Last active: Jul 6, 2024