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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (283)
Urgent Question Regarding Prednisone Burst Dosage
Hello, I've had PMR for 2 years. After lots of struggles finally tapered to 5 mg daily. Currently on vacation hours from home, developed severe...
Last active: Aug 29, 2022
PMR and sleep apnea
Has anyone developed sleep apnea some time after being diagnosed with PMR? I recently have, and I think it's a redistribution of fat and/or weight...
Last active: Feb 12 1:49pm
Non-bilateral neck pain
I have many of the classic PMR symptoms and responded immediately to a 15 mg dosage of Prednisone. I’ve been tapering since the original prescription...
Last active: Jun 27, 2023
Kevzara and elevated liver enzymes ALT AST
Ten weeks after starting Kevzara my ALT & AST readings went from normal to very high values. (ALT = 137, AST = 54) As a...
Last active: Jan 29, 2025
New Methotrexate Study in PMR
As seen on X, another study showing no benefit in PMR using methotrexate. I watch a lot of the RheumNow videos on YouTube as they...
Last active: Jul 29, 2025
Autoimmune changes
I have allergic contact dermatitis, and the allergen being formaldehyde, there hadn't been any way to avoid the itchy rash. But after I was diagnosed...
Last active: Dec 12, 2023
Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA
I was diagnosed with PMR in 2007 which was in addition to reactive arthritis with recurring uveitis which was diagnosed in the early 1990's. I...
Last active: Dec 12, 2025
Rash with Actemra injections?
Hi, I was diagnosed with PMR in Sept 2024, and wasn't able to taper off prednisone even with methotrexate. I started Actemra weekly injections Jan...
Last active: Mar 4 5:33am
Using methotrexate with PMR
My husband, 72yo, was diagnosed with PMR in March of 2024. He had rather severe symptoms...couldn't get out of chair and pain in neck and...
Last active: Mar 31 4:36pm
Kevzara insurance denial options
I have been on Kevzara for three months and have been receiving repeated denials for approval for 2026. Any suggestions from anyone who has experienced...
Last active: Feb 9 5:48am
Heat affects stamina?
I have been diagnosed with PMR. Heat and humidity really affects my stamina. On a cool day I can walk slowly for 40 minutes or...
Last active: Feb 8 1:43pm
Traveling body weaknes
I have been in Kevzara for 14 weeks, prednisone taper down to 1 mg. Over this time I have noticed weakness, and or, soreness in...
Last active: Jul 16, 2025
PMR/GCA
Hello everyone, I am dealing with PMR/GCA and have experienced some brief episodes of double vision which my Ophthamologist says are inconsequential. I am slowly...
Last active: Apr 6 11:24pm
Can PMR present in the clavicle too?
I’m a 62 year old female, who was diagnosed in summer of 2020 with PMR. About two weeks before the PMR symptoms happened, I had...
Last active: Feb 14, 2025
Moonface
I was diagnosed in late November. Started at 20mg of prednisone and am currently on 15mg. I hope to taper to 12.5 next week. I...
Last active: Jan 30, 2025
PMR questions about prednisone, surgery limitations, pain and more
I'm relatively new to the PMR scene - diagnosed in June. I'm wondering if anyone has experience with unremitting pain in one or both shoulders....
Last active: Feb 27, 2023
Trouble being able to sleep more than 3-4 hours before
I was diagnosed with PMR October 2023 and had the symptoms since April 2023. Have been tapering off prednisone by .5mg every 2 weeks. Biggest...
Last active: Jul 6, 2024
symptoms present but lab markers aren't high
Hi! Recently diagnosed or at least leaning in the direction of PMR around March of this year. Did like most, got on Prednisone 20mg and...
Last active: Sep 15, 2024
Prescriptions
Have had PMR for 5 months. I am down to 10mg prednisone. I tried to drop to 7.5 about 3 weeks ago, but each time...
Last active: Feb 28, 2025
Does diet affect the occurrence and severity of pain?
I was diagnosed with PMR in May 2023. My GP agreed to start me on 10mg daily of prednisone. Blood markers both positive. I did...
Last active: Jun 6, 2024