Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,809)

This seems like a high initial dose and a very fast taper to me. I have...

https://connect.mayoclinic.org/comment/765352/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2022

Hi @marieameehan, I started taking prednisone mid-May of 2021 for PMR and GCA, 40 mg. I...

https://connect.mayoclinic.org/comment/765001/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 24, 2022

Hello @t619, Welcome to Connect. Before I was actually diagnosed with PMR and was having severe...

https://connect.mayoclinic.org/comment/762879/

Discussion: Cramping/ spasms while standing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 18, 2022

My PMR (Sept 2019) began in my hands and wrists, then shoulders and neck. My physician...

https://connect.mayoclinic.org/comment/761604/

Discussion: What's a good anti inflamation drug (not prednisone) for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 15, 2022

I can't believe I found this group, thank you all for your openness and compassion to...

https://connect.mayoclinic.org/comment/761148/

Discussion: What's a good anti inflamation drug (not prednisone) for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 14, 2022

I feel your pain literally. I am off Prednisone after 3 years. I'm going to see...

https://connect.mayoclinic.org/comment/759020/

Discussion: Increasing unrelenting pain - PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2022

@keetaboy I was pain free when I started at 15 mgs., but some people require 25...

https://connect.mayoclinic.org/comment/756182/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2022

Hi, yes, I know anything above 20mg is unusual. Unfortunately, 40mg was the only level that...

https://connect.mayoclinic.org/comment/754791/

Discussion: PMR progressing to GCA? Broken vessels in eye

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2022

Hello there, all of my PMR and giant cell arteritis symptoms came after my second vaccine...

https://connect.mayoclinic.org/comment/754237/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2022

Oh my gosh - I didn't know the on-going inflammation can trigger GCA. That is scary!...

https://connect.mayoclinic.org/comment/753132/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 23, 2022

Hi @vandyms1974, I read that about 30% of those with PMR develop GCA. I also read...

https://connect.mayoclinic.org/comment/751282/

Discussion: Anyone with PMR have experience with 4th COVID vax jab?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 18, 2022

I’m new to this site and so glad I found it. I’m also fairly new to...

https://connect.mayoclinic.org/comment/750003/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2022

Hi Meredith @meredith101, Welcome to Connect. Sorry to hear you joined the PMR club but you...

https://connect.mayoclinic.org/comment/748777/

Discussion: PMR: Pain moving around your body

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12, 2022

I am so glad that my comments were helpful. I think the collective info and experience...

https://connect.mayoclinic.org/comment/745423/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4, 2022

Hi Mickie @njtodctode, It does sound like you may be tapering down too fast. My rheumatologist...

https://connect.mayoclinic.org/comment/745258/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4, 2022

I contracted PMR after my second COVID vaccination in March 2021 (? coincidence?) I have been...

https://connect.mayoclinic.org/comment/742672/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2022

@hfoster, I've always been told to listen to my body and only taper when I had...

https://connect.mayoclinic.org/comment/741044/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24, 2022

Welcome @polykendancer, I am fortunate that my primary care doctor got me a referral to a...

https://connect.mayoclinic.org/comment/739239/

Discussion: PMR and Sciatica with Back Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19, 2022

@joeblo746 If you have PMR and are not getting enough prednisone your pain will not subside....

https://connect.mayoclinic.org/comment/738974/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2022

Great questions @elizabethjoan. I think we are each different. I had similar episodes during my first...

https://connect.mayoclinic.org/comment/738383/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2022

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