Polymyalgia Rheumatica (PMR) Support Group

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Welcome @knyhus, Tapering off of prednisone can be difficult when you get below 5 mg. My...

https://connect.mayoclinic.org/comment/931873/

Discussion: Anyone else have PMR with some serious sternum/rib cage pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 18, 2023

Hi Folks, I am new to PMR, just over 2 months on Prednisone (had symptoms 6...

https://connect.mayoclinic.org/comment/931839/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 18, 2023

Hi @barbsnow, Not sure I could have made it through my 2 occurrences of PMR without...

https://connect.mayoclinic.org/comment/931152/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 16, 2023

Well, as I expected, after skipping the morning prenisone dose, the shoulder pain arrived earlier than...

https://connect.mayoclinic.org/comment/926962/

Discussion: Diagonsis of PMR is not exactly nailed down

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 9, 2023

Hi @isc, I would like to add my welcome to Connect along with @fam8284 and others....

https://connect.mayoclinic.org/comment/926469/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 8, 2023

@marymckeith, If the prednisone worked great when you first started and it's not working now, maybe...

https://connect.mayoclinic.org/comment/925966/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

Hi @gcaunder50, terrible fatigue is one of the symptoms of PMR/GCA. It can be caused by...

https://connect.mayoclinic.org/comment/925392/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 6, 2023

I was diagnosed with PMR in 2007. I was on moderately high doses of prednisone for...

https://connect.mayoclinic.org/comment/924693/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 5, 2023

I'm trying to figure out how much exercise/activity is too much. I've had PMR for about...

https://connect.mayoclinic.org/comment/924654/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 5, 2023

I don't know how avid of a golfer you are but you might want to cut...

https://connect.mayoclinic.org/comment/923676/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 3, 2023

Hi @napapos, I hope you don't mind but I thought I would reply to your private...

https://connect.mayoclinic.org/comment/922665/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 1, 2023

I have the same experience. I started H in March 2023 after taking Prednisone for 3...

https://connect.mayoclinic.org/comment/921886/

Discussion: Treating PMR with Prednisone and Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2023

Thanks for your reply @samara66 My a.m. cortisol level was tested and found to be low....

https://connect.mayoclinic.org/comment/920038/

Discussion: Does adrenal insufficiency with unregulated inflammation cause flares?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2023

Has anyone in remission noticed a lingering muscle weakness from PMR? After 18 months of taking...

https://connect.mayoclinic.org/comment/916569/

Discussion: Peripheral Neuropathy - Result of PMR or Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2023

Hello @jaq, Welcome to Connect. You will notice that we moved your post to an existing...

https://connect.mayoclinic.org/comment/912813/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 14, 2023

I started on methotrexate a month ago with the plan of tapering down from 40 mg...

https://connect.mayoclinic.org/comment/911809/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023

You may be interested the Treat-to-target link given by John in his post above. Having searched...

https://connect.mayoclinic.org/comment/910993/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2023

I think a person's weight should be considered. I'm not sure how often weight is considered....

https://connect.mayoclinic.org/comment/910935/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2023

My very first injection of Actemra was January 1st, 2019. I started with injections every 2...

https://connect.mayoclinic.org/comment/910262/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2023

John, thanks for your comments. I will read the links tonight. I have been following an...

https://connect.mayoclinic.org/comment/906462/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2023

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