Polymyalgia Rheumatica (PMR) Support Group

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Welcome, @alisongrundy. I moved your questions about side effects tapering off of prednisone to this existing...

https://connect.mayoclinic.org/comment/1102309/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

Welcome to the club none of us wanted to join! I am 7 months in and...

https://connect.mayoclinic.org/comment/1102300/

Discussion: How do I handle the ups and downs of PMR? So many questions.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

How does one manage no weight gain while on prednisone? I am on 5 mg and...

https://connect.mayoclinic.org/comment/1102132/

Discussion: Newly Diagnosed with PMR: Anyone 51 or had it a long long time?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

In my experience, the main lifestyle change needed was diet. Keep a log of what you...

https://connect.mayoclinic.org/comment/1101478/

Discussion: How do I handle the ups and downs of PMR? So many questions.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8, 2024

Nothing much to add except that I had an identical event. Extensive, bilateral, multiple, and massive...

https://connect.mayoclinic.org/comment/1100757/

Discussion: Blood Clots - Connected with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

It may not be the prednisone that's the cause of your up and down days, it...

https://connect.mayoclinic.org/comment/1100591/

Discussion: Prednisone is like running UP a DOWN staircase

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2024

It depends what you mean by success. From what I understand, we are to take prednisone...

https://connect.mayoclinic.org/comment/1100541/

Discussion: Prednisone is like running UP a DOWN staircase

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2024

Hi, great question. Personally, my dose began in April, low 10 mg, and I am on...

https://connect.mayoclinic.org/comment/1100474/

Discussion: Prednisone is like running UP a DOWN staircase

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2024

I'm not an expert in anything. The thing I learned from the whole ordeal was how...

https://connect.mayoclinic.org/comment/1099962/

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

@tuckerp I definitely got the feeling that Dadcue is the king of prednisone and PMR. He...

https://connect.mayoclinic.org/comment/1099951/

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

Yes ... there are 1 mg tablets of prednisone. I didn't need the 1 mg tablets...

https://connect.mayoclinic.org/comment/1099866/

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

Oh my goodness. I think it might be a combination of the PMR breaking through the...

https://connect.mayoclinic.org/comment/1099374/

Discussion: Prednisone is like running UP a DOWN staircase

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2024

I'm sure there are other ways of dealing with prednisone tapering. I only offered this as...

https://connect.mayoclinic.org/comment/1098675/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2024

I wish you well in your journey. I am prednisone free almost two weeks. I was...

https://connect.mayoclinic.org/comment/1097346/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2024

Excellent response!! There really isn't much that can be done to increase cortisol levels. The treatment...

https://connect.mayoclinic.org/comment/1096871/

Discussion: Good information to know about prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

Pmr is such a dilemma. In my 6th year. Original dose was 20mg. Easily got below...

https://connect.mayoclinic.org/comment/1096673/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

I started at 20mg in May 2023, tapered off and stopped in May 11, 2024. I...

https://connect.mayoclinic.org/comment/1093765/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2024

Fortunately for you it might be easier to tell. Literature mostly says PMR can last 1-3...

https://connect.mayoclinic.org/comment/1093324/

Discussion: PMR or PREDNISONE

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2024

My guess is the shakes and insomnia are more likely prednisone side effects. I took prednisone...

https://connect.mayoclinic.org/comment/1093322/

Discussion: PMR or PREDNISONE

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2024

I had cortisone shot in right shoulder for PMR pain while tapering off prednisone, only helped...

https://connect.mayoclinic.org/comment/1093186/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2024

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