Polymyalgia Rheumatica (PMR) Support Group

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So sorry to hear you've had a relapse. I hope you do well on your taper...

https://connect.mayoclinic.org/comment/1060442/

Discussion: GCA Relapse - A Slow Burn

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1, 2024

"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...

https://connect.mayoclinic.org/comment/1057041/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

My endocrinologist wasn't exactly an "adrenal specialist" but she had insight into the problem with adrenal...

https://connect.mayoclinic.org/comment/1056816/

Discussion: Clinical Information or Fishbowl?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

I was also diagnosed in December 2023, symptoms started in mid-November. When 20 mg of prednisone...

https://connect.mayoclinic.org/comment/1053597/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19, 2024

I wouldn't say I'm completely over it but I'm getting close. I sometimes think about everything...

https://connect.mayoclinic.org/comment/1048583/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

How long were you on Kevzara before you could taper off Prednisone? And how long do...

https://connect.mayoclinic.org/comment/1048317/

Discussion: Is it PMR (and/) or Osteoarthritis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

How is anyone supposed to know when PMR "burns out" or "self limited itself? If PMR...

https://connect.mayoclinic.org/comment/1048211/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

Adrenal insufficiency is an often overlooked ramification of long term prednisone use. It may be a...

https://connect.mayoclinic.org/comment/1047294/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8, 2024

I have a different perspective on this because I’m a daughter of someone with PMR. I...

https://connect.mayoclinic.org/comment/1046360/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 6, 2024

Thank you for sharing that. I feel fortunate that I was able to figure out he...

https://connect.mayoclinic.org/comment/1045559/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

HI @glinda47, I was fortunate not to wind up in the ER with Prednisone IV. I...

https://connect.mayoclinic.org/comment/1045476/

Discussion: Does untreated PMR lead to GCA, organ inflammation and osteoporosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

My very first injection of Actemra was on January 1st, 2019. I thought it was appropriate...

https://connect.mayoclinic.org/comment/1045355/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

Hello all, Several folks asked me to report on my Kevzara experience when I could, so...

https://connect.mayoclinic.org/comment/1044434/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2024

My husband was diagnosed with PMR in May 2023 and Giant Cell Arteritis (GCA) in February...

https://connect.mayoclinic.org/comment/1043812/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2024

I have had PMR for over a year. My markers are high but still negative. I...

https://connect.mayoclinic.org/comment/1042734/

Discussion: Is this a possible relapse to PMR or something entirely different??

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2024

Yes, you are lucky! I was diagnosed eight months ago and am still on 11 mg...

https://connect.mayoclinic.org/comment/1042362/

Discussion: Finally coming to an end!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2024

You might want to give this tapering plan a try to see if it can help...

https://connect.mayoclinic.org/comment/1041777/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2024

Welcome @veronicamac, Sorry to hear that you have been struggling for 9 years with PMR. When...

https://connect.mayoclinic.org/comment/1041733/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2024

Am also taking risendronate weekly for past 2 years with no side effects. Took prednisone for...

https://connect.mayoclinic.org/comment/1041339/

Discussion: PMR, Osteoporosis and Fosamax?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 27, 2024

"Would you mind sharing what medication you took to take off the Prednisone? Do you still...

https://connect.mayoclinic.org/comment/1040764/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2024

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