Polymyalgia Rheumatica (PMR) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

5,133 total results

Comments (4,849)

My very first injection of Actemra was on January 1st, 2019. I thought it was appropriate...

https://connect.mayoclinic.org/comment/1045355/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

Hello all, Several folks asked me to report on my Kevzara experience when I could, so...

https://connect.mayoclinic.org/comment/1044434/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2024

My husband was diagnosed with PMR in May 2023 and Giant Cell Arteritis (GCA) in February...

https://connect.mayoclinic.org/comment/1043812/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2024

I have had PMR for over a year. My markers are high but still negative. I...

https://connect.mayoclinic.org/comment/1042734/

Discussion: Is this a possible relapse to PMR or something entirely different??

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2024

Yes, you are lucky! I was diagnosed eight months ago and am still on 11 mg...

https://connect.mayoclinic.org/comment/1042362/

Discussion: Finally coming to an end!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2024

You might want to give this tapering plan a try to see if it can help...

https://connect.mayoclinic.org/comment/1041777/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2024

Welcome @veronicamac, Sorry to hear that you have been struggling for 9 years with PMR. When...

https://connect.mayoclinic.org/comment/1041733/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2024

Am also taking risendronate weekly for past 2 years with no side effects. Took prednisone for...

https://connect.mayoclinic.org/comment/1041339/

Discussion: PMR, Osteoporosis and Fosamax?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 27, 2024

"Would you mind sharing what medication you took to take off the Prednisone? Do you still...

https://connect.mayoclinic.org/comment/1040764/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2024

Hi @deborah57, If you aren't already keeping a daily log with your level of pain when...

https://connect.mayoclinic.org/comment/1040225/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2024

It saddens me to hear that people went through the same trauma as me. I too...

https://connect.mayoclinic.org/comment/1038348/

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22, 2024

Prednisone has lingering side effects after we taper off. When I tapered off prednisone, having no...

https://connect.mayoclinic.org/comment/1037398/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 20, 2024

Welcome @ddonnagirl1, You are spot on, movement is critical with PMR. I wake up with some...

https://connect.mayoclinic.org/comment/1036397/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19, 2024

Hello @dj13, I would like to add my welcome to Connect along with @dadcue and others....

https://connect.mayoclinic.org/comment/1035211/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 17, 2024

Welcome to the forum. You might be one of the many people who have problems when...

https://connect.mayoclinic.org/comment/1035177/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 17, 2024

Yikes. I’m sorry to hear this, but glad it sounds like you’re on the mend. Hopefully...

https://connect.mayoclinic.org/comment/1034898/

Discussion: How to go from a 7 day 50 mg prednisone to the previous 14 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16, 2024

Thank you. My Dr did put in a referral so now I just wait for an...

https://connect.mayoclinic.org/comment/1033064/

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2024

I agree with finding a good rheumatologist. The rate at which you taper off prednisone can...

https://connect.mayoclinic.org/comment/1029934/

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8, 2024

Hi @deborah57, I had PMR for a year, undiagnosed, pain on a scale of 10 out...

https://connect.mayoclinic.org/comment/1029374/

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2024

I'm so sorry your doctor misled you and had to quit abruptly. Everything you read says...

https://connect.mayoclinic.org/comment/1027038/

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3, 2024

1
…
25
26
27
28
29
…
243

Follow

19403

28 minutes ago

Follow

4924

1 hour ago

Autoimmune Diseases

Follow

20164

1 hour ago

Follow

15473

3 hours ago

Visiting Mayo Clinic

Follow

6916

4 hours ago