Polymyalgia Rheumatica (PMR) Support Group | Page 25

Yes, off prednisone at 12 mths. No pain from it at all once I started Prednisone...

https://connect.mayoclinic.org/comment/1530345/

Discussion: Anybody achieve full remission within one year?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19 4:27am

I have Giant Cell Arteritis (GCA). A brief-ish history: Early June 2025: First symptoms (headaches mostly)...

https://connect.mayoclinic.org/comment/1531490/

Discussion: C Reactive Protein levels while tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 20 1:32pm

I am 5'3" and 120 pounds and was given 10mg of prednisone. It took two or...

https://connect.mayoclinic.org/comment/1532275/

Discussion: Newly diagnosed still having pain after three days of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21 4:43pm

@tjw17 Hi. Here is a pic (graph) from the Kevzara website regarding PMR. (Don’t be confused...

https://connect.mayoclinic.org/comment/1530188/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 18 6:42pm

My advise would be to demand that they eliminate asymptomatic GCA. I have a similar story...

https://connect.mayoclinic.org/comment/1531103/

Discussion: Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 20 6:27am

The short answer is yes. The rather long story is as follows: I'm a retired ER...

https://connect.mayoclinic.org/comment/1527001/

Discussion: Has anyone with PMR been able to get off prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14 6:40pm

@dadcue Thank you for you thorough answer. I can identify with your last sentence. I am...

https://connect.mayoclinic.org/comment/1535319/

Discussion: First meeting with endocrinologist

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25 5:32pm

@csimmonds I think doctors were taught that PMR was supposed to last 1-2 years in most...

https://connect.mayoclinic.org/comment/1535290/

Discussion: First meeting with endocrinologist

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25 4:39pm

@kjoed53 I’m retired and my wife still works so I’m accustomed to the gig. She’s finally...

https://connect.mayoclinic.org/comment/1536121/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26 7:01pm

@dadcue Mike, the potential side affects of Actemra concern me. There is some concern in my...

https://connect.mayoclinic.org/comment/1529395/

Discussion: PMR recurrence

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 17 6:53pm

I am on 10mg of Prednisone and am on a tapering off schedule. So far so...

https://connect.mayoclinic.org/comment/1536110/

Discussion: Moderate Use of Alcohol

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26 6:44pm

I started a GLP-1 called Wegovy soon after being referred to an endocrinologist who helped me...

https://connect.mayoclinic.org/comment/1537144/

Discussion: GLP-1 Drugs Effects on PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28 9:25am

I'm down to 2.5 mg of prednisone, monthly Tyenne infusions. I started PT because shoulder pain...

https://connect.mayoclinic.org/comment/1539893/

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31 6:02pm

Thanks for all the replies! I was diagnosed with PMR in February 2026, starting taper down...

https://connect.mayoclinic.org/comment/1541932/

Discussion: I have recently switched from Actemra to Tyenne due to insurance.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3 10:57am

Began PMR and GCA last OCT with CRP almost 300, confusion, fever, vomiting, severe pain and...

https://connect.mayoclinic.org/comment/1506629/

Discussion: Who is on Rinvoq for GCA vs Actemra?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15 4:21pm

I have tapered down to 0 due to problems with too much Methylprednisolone in my system....

https://connect.mayoclinic.org/comment/1080188/

Discussion: Tapering and Dealing with a Flareup

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

I took DEX for myself. I had self diagnosed myself and I had Dex available. So...

https://connect.mayoclinic.org/comment/1080128/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

I never had my IL-6 level checked. However, I'm taking a medication that inhibits the IL-6...

https://connect.mayoclinic.org/comment/1079602/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

I stopped prednisone 6 months ago. While tapering stiffness and some pain followed me. I still...

https://connect.mayoclinic.org/comment/1079170/

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

I am getting the Kevzara for free. I called Kevzara Connect at 844-538-9272. They are very...

https://connect.mayoclinic.org/comment/1078863/

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024