Polymyalgia Rheumatica (PMR) Support Group

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@skiing Your proposed taper plan sounds reasonable (up 5 mgs. and then drop when you are...

https://connect.mayoclinic.org/comment/717593/

Discussion: PMR flare without a dose reduction

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 14, 2022

On 20 mg. Prednisone started Jan 5/22, my symptoms were much as yours since Sept. of...

https://connect.mayoclinic.org/comment/715136/

Discussion: Prednisone only mildly helpful for my PMR, is this common?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2022

Hi @kbuzard, a dramatic response to steroids with a cessation of symptoms is used to confirm...

https://connect.mayoclinic.org/comment/714882/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2022

Find someone new. yes I have jaw pain. It was sever enough that I went to...

https://connect.mayoclinic.org/comment/713397/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2022

So sorry that on top of everything else, you had a bad experience with your rheumatologist....

https://connect.mayoclinic.org/comment/713328/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2022

I was diagnosed with osteoporosis in 2019 and my doctor recommended Prolia treatment. However, before I...

https://connect.mayoclinic.org/comment/713047/

Discussion: Anyone take a bisphosphonate for osteoporosis while on prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2022

My first indication something was wrong was constant pain in my left shoulder deep inside. Then...

https://connect.mayoclinic.org/comment/712426/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2022

@emma321, One thing I think might really help since you just started is to keep a...

https://connect.mayoclinic.org/comment/707694/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2022

Hey mikeshell, After dealing with a great deal of discomfort in my upper legs and upper...

https://connect.mayoclinic.org/comment/704175/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 30, 2022

I am newly diagnosed with PMR. I just started 20MG of Prednisone yesterday and feeling the...

https://connect.mayoclinic.org/comment/702687/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26, 2022

I agree! This is my third episode of PMR over the past 30 years. Now during...

https://connect.mayoclinic.org/comment/702253/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2022

I would strongly suggest seeing a rheumatologist if possible. My diagnosis was delayed because my family...

https://connect.mayoclinic.org/comment/702221/

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2022

I too suffer from severe fatigue and am on Methotrexate along with Prednisone. Right now on...

https://connect.mayoclinic.org/comment/700810/

Discussion: Feeling tired! Do others with PMR feel significantly more tired?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 20, 2022

Yes the hip and leg pain were excruciating. Thankfully Prednisone took this all away within a...

https://connect.mayoclinic.org/comment/698063/

Discussion: Buttock/tailbone pain, sitting or lying down - symptom of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2022

See if you can get an RX for the 1 mg and 2.5 mg prednisone tablets....

https://connect.mayoclinic.org/comment/696728/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 7, 2022

Hi @tricialynn, I would have a heart to heart discussion with your rheumatologist on the tapering....

https://connect.mayoclinic.org/comment/696110/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2022

I am dismayed by the pain some experience because of bad tapering advice. If you felt...

https://connect.mayoclinic.org/comment/694130/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2022

After getting my PMR under control, my MD suggested a tapering schedule and said to call...

https://connect.mayoclinic.org/comment/694089/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2022

Hi @abbeyc. Since my ESR and CRP were always normal (that's true for about 20% of...

https://connect.mayoclinic.org/comment/693912/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2022

I have been tapering now for almost 2 years. I started at 80 mg. and now...

https://connect.mayoclinic.org/comment/692681/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24, 2022

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