Polymyalgia Rheumatica (PMR) Support Group

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Hello @rnm I am 76 and was diagnosed with pmr in Dec of 2018 if I...

https://connect.mayoclinic.org/comment/1305082/

Discussion: Osteopenia/ Osteoporosis and Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15 10:37pm

Before my diagnosis, it was a running joke in my family that mom falls down, it's...

https://connect.mayoclinic.org/comment/1306285/

Discussion: Falling or Tripping

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17 2:19pm

My doctor has me starting with 10mg Friday evening followed by 10 mg Saturday morning. I...

https://connect.mayoclinic.org/comment/1315662/

Discussion: Anyone having luck while taking methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 10:49am

Welcome to the club that you don't want to be a member of! I went through...

https://connect.mayoclinic.org/comment/1315656/

Discussion: PMR/GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 10:45am

I also tapered off prednisone with only small flares. No prednisone after January. About 3 months...

https://connect.mayoclinic.org/comment/1317104/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31 9:30am

I'm not sure about Actemra giving back control. In a way... prednisone takes control. Prednisone isn't...

https://connect.mayoclinic.org/comment/1317820/

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 9:42am

Terri, Really sorry to hear about your heart issues and prednisone. I certainly get the need...

https://connect.mayoclinic.org/comment/1309288/

Discussion: Fast Prednisone taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21 9:04am

Tapering down prednisone for me was not a straight line sometimes I could reduce and then...

https://connect.mayoclinic.org/comment/1310075/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 22 8:02am

I was also diagnosed with a mild case of PMR--surprisingly my legs and shoulders only hurt...

https://connect.mayoclinic.org/comment/1307522/

Discussion: Newly diagnosed with a mild case!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19 8:57am

What is your tapering plan when you get down to a very low Predisone dose? My...

https://connect.mayoclinic.org/comment/1309541/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21 12:18pm

I’ve been trying to lower my dose of pred for over a year. I’m on Actemra...

https://connect.mayoclinic.org/comment/1312730/

Discussion: Helpful morning routines

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 4:00pm

As per the taper: I started with 20mg Perd. and tapered 2.5mg each 30 days. All...

https://connect.mayoclinic.org/comment/1317430/

Discussion: Shortness of breath ..dyspenia..while on prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31 4:08pm

Hi John, Thank you for your welcome message. I feel like I have been in PT...

https://connect.mayoclinic.org/comment/1323144/

Discussion: New to this support group.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 8 4:09pm

"Actemra inhibits IL-6, but there are other substances that cause the inflammation from PMR and GCA,"...

https://connect.mayoclinic.org/comment/1322242/

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7 11:11am

I’ve been on Kevzara. For 12 weeks. Most successful. Able to taper prednisone easily and quickly....

https://connect.mayoclinic.org/comment/1324585/

Discussion: New to this support group.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10 7:48pm

I am to bring down now, like you I also feel like I have a very...

https://connect.mayoclinic.org/comment/1324411/

Discussion: New to this support group.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10 2:48pm

There are many approaches for tapering off Prednisone. Learning which approach works the best for every...

https://connect.mayoclinic.org/comment/1328838/

Discussion: Tapering pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17 5:20am

@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...

https://connect.mayoclinic.org/comment/1298146/

Discussion: Tapering pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6 11:16am

I recall being similarly despondent at the same 8mg point when some morning pain and fatigue...

https://connect.mayoclinic.org/comment/1299269/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 4:42pm

The recommendation from the Endocrine Society in the USA in collaboration with the European Society of...

https://connect.mayoclinic.org/comment/1319706/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:53pm

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