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Comments (4,848)
@pmr100 In short: yes. I had flu vaccine and COVID booster shot 17 NOV 2025 and...
https://connect.mayoclinic.org/comment/1563820/
Thank you all for your comments. I am fortunate that due to a cancellation I will...
https://connect.mayoclinic.org/comment/1564887/
@judy15 Rheumatologists have tried various medications trying to get me off Prednisone. I didn't react well...
https://connect.mayoclinic.org/comment/1566276/
This is mainly an update. I finally have an appointment with a Rheumatologist!!! Not until the...
https://connect.mayoclinic.org/comment/1567183/
@caroljeand . Thanks for your interesting take on the fatigue issues that you have, post steroid...
https://connect.mayoclinic.org/comment/1567577/
Thanks for this discussion - it's very helpful. I was diagnosed in February 2026, have been...
https://connect.mayoclinic.org/comment/1569198/
@dswilson913 I was off for approx 6 months after a long taper and the Actemra infusion...
https://connect.mayoclinic.org/comment/1570213/
@seniormed DHEA supplements are somewhat controversial but I tried that too for a period of time....
https://connect.mayoclinic.org/comment/1570337/
If you have adrenal insufficiency from long term Prednisone use then the best thing you can...
https://connect.mayoclinic.org/comment/1570273/
I was able to taper off of Prednisone, 11 months after I started Actemra infusions. Once...
https://connect.mayoclinic.org/comment/1571549/
@elizabethannr all... Suggestion: Ask your doctor next visit why he thinks you may have rheumatoid arthritis....
https://connect.mayoclinic.org/comment/1564942/
@reaton1indracom My story is very similar to yours. Immunotherapy for metastatic melanoma which was working great...
https://connect.mayoclinic.org/comment/1574158/
@mave14 There isn't any "standard taper schedule" that has been studied in clinical trials that has...
https://connect.mayoclinic.org/comment/1577151/
@pmrnew You seem to be cutting your dose in half every 7 days. I don't know...
https://connect.mayoclinic.org/comment/1581834/
@jabrown0407 Indeed, indeed. Thank you for stating this so clearly. Just, after reading this forum, it...
https://connect.mayoclinic.org/comment/1581878/
@sassysaveur Symptoms of prednisone withdrawal are similar to PMR symptoms so it is hard to differentiate...
https://connect.mayoclinic.org/comment/1582283/
I was diagnosed with PMR and started taking prednisone January 23, 2026. After 2 months extreme...
https://connect.mayoclinic.org/comment/1581460/
At height of my dosage (20mg), took 15mg in morning as my rheumatologist preferred, and 5mg...
https://connect.mayoclinic.org/comment/1582742/
I was diagnosed with PMR in Dec2020, tested negative for Covid, but then got sicker and...
https://connect.mayoclinic.org/comment/1366437/
After 39 months I have tapered off prednisone. Been off for 4 weeks no ill effects
https://connect.mayoclinic.org/comment/1523494/
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