PMR symptoms? Still searching for answers

Posted by betsyhase @betsyhase, 4 hours ago

I have only been dealing with PMR since February and started on Prednisone 12.5mg mg. I am now on 9mg and my joints in my hands are visibly swollen, stiff and painful. My PCP doesn't think it has to do with PMR so tested for RA. Nothing showed up there. I am better on the Prednisone but still having major muscle pain that keeps me inactive. When I push to be on my feet doing simple chores or short distance walking to appointments, I am down for atleast 2 days. I am wondering if I am not on enough Prednisone or just lost so much strength that recovery is slow? Very frustrated!

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

seniormed | @seniormed | 2 hours ago

If you have access to a rheumatologist in your area get a referral for
better symptom control.

betsyhase | @betsyhase | 2 hours ago

In reply to @seniormed "If you have access to a rheumatologist in your area get a referral for better symptom..." + (show)

@seniormed
Thanks, but I have been referred but they haven't called me. I have checked with them but they have a reviewing process.

Colleen Young, Connect Director | @colleenyoung | 1 hour ago

In reply to @betsyhase "@seniormed Thanks, but I have been referred but they haven't called me. I have checked with..." + (show)

@betsyhase, reading through your past 2 discussions:
- Is this common? https://connect.mayoclinic.org/discussion/is-this-common/
- Prednisone tapering: How did you do it pain free? https://connect.mayoclinic.org/discussion/prednisone-tapering-4/

It looks like you and your PCP continue to search for propering dosing to manage your symptoms until you can see a specialist. Your pain sounds quite debilitating and definitely diminishing your quality of life. Have you been able to discuss increasing your dose of prednisone, the possible benefits and risks until you get an appointment with the rheumatologist?