Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,807)

I like @johnbishop encouragement that you pause. I do hope you are able to get your...

https://connect.mayoclinic.org/comment/721433/

Discussion: PMR flare without a dose reduction

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27, 2022

I’ve been on Prednisone for at least ten years for PMR. I’ve spent most of the...

https://connect.mayoclinic.org/comment/720554/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2022

@dskellchock, I'm wondering if tapering off of prednisone might not be an issue if you are...

https://connect.mayoclinic.org/comment/720097/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2022

Hi @ksidorov, it's no fun that's for sure. With PMR I felt like I was wearing...

https://connect.mayoclinic.org/comment/717160/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 13, 2022

I've been slowly tapering off Prednisone and down to 4 mg and thinking about increasing it...

https://connect.mayoclinic.org/comment/713351/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2022

About a month after coming off of my prednisone taper for PMR, I started to have...

https://connect.mayoclinic.org/comment/712679/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2022

Hi @sloped483, In my non medical opinion based on my 2 occurrences of PMR, the goal...

https://connect.mayoclinic.org/comment/710175/

Discussion: What is the goal when first diagnosed with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2022

Hello @vas135, Welcome to Connect. We merged your post into an existing discussion on the same...

https://connect.mayoclinic.org/comment/709284/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2022

These are questions that I am still trying to answer after 9 months on prednisone. I...

https://connect.mayoclinic.org/comment/708750/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2022

Thanks for your kind comments. A slow taper is best. It took three months of gradual...

https://connect.mayoclinic.org/comment/708374/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2022

Thank you for your response. To answer your questions, no my primary doctor has not put...

https://connect.mayoclinic.org/comment/707676/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2022

I'd get a second opinion. Tapering from 20 to 10 mgs. in one shot is generally...

https://connect.mayoclinic.org/comment/703383/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28, 2022

Welcome @lsm47, I haven't had the ACTH test when my PMR was active but did have...

https://connect.mayoclinic.org/comment/703328/

Discussion: Feeling tired! Do others with PMR feel significantly more tired?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28, 2022

Welcome @shannaam, I've had two bouts of PMR. The first one lasted 3-1/2 years, the second...

https://connect.mayoclinic.org/comment/699824/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2022

I am on 3 mg prednisone per day and have should/back pain in the morning. I...

https://connect.mayoclinic.org/comment/699074/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14, 2022

Hi @monami, welcome. @pacarolyn started a discussion about back and shoulder pain that may interest you....

https://connect.mayoclinic.org/comment/696811/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 7, 2022

Hi @tricialynn, my rheumatologist told me that if I tapered prednisone and symptoms came back I...

https://connect.mayoclinic.org/comment/695638/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2022

I should have come back to report: that a mild case of COVID caused a flare....

https://connect.mayoclinic.org/comment/693233/

Discussion: Anyone tried CBD oil or medical marijuana for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2022

I have been on hydroxychloroquine for about a year based on my rheumatologist's advice to "spare...

https://connect.mayoclinic.org/comment/693028/

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2022

@christopherc, You mentioned struggling at 1 mg of prednisone. My first round with PMR took 3...

https://connect.mayoclinic.org/comment/690023/

Discussion: Feeling tired! Do others with PMR feel significantly more tired?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16, 2022

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