Polymyalgia Rheumatica (PMR) Support Group

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Good luck with Actemra and I hope it works for you. It will take some time...

https://connect.mayoclinic.org/comment/836001/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2023

After 2 initial Pfizer shots in March 2021, experienced fatigue, myalgia, balance issues, leg rash, ringing...

https://connect.mayoclinic.org/comment/835552/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2023

So glad to hear this. 👏Today is my 52nd day with PMR and 20 MG prednisone....

https://connect.mayoclinic.org/comment/835064/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2023

Like you, I have had the PMR symptoms for more than 2 years but normal blood...

https://connect.mayoclinic.org/comment/833360/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2023

Just for contrast about how one person can feel one way about something and another person...

https://connect.mayoclinic.org/comment/831735/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2023

Hi Susan, I agree this "new normal" is no fun. I am operating at about 30%...

https://connect.mayoclinic.org/comment/831553/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24, 2023

My ophthalmologist didn't like me being on prednisone either. My intraocular pressures seemed to vary depending...

https://connect.mayoclinic.org/comment/831351/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24, 2023

I would ask your doctor how long will he/she want you to take prednisone? When their...

https://connect.mayoclinic.org/comment/831058/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24, 2023

I know that is what I was thinking ! Everything I read !! Scary ! I...

https://connect.mayoclinic.org/comment/829414/

Discussion: Prednisone Taper from 40 mg to 7.5 in one day ‘

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2023

I was on Actemra for several months a couple of years ago. My doctor’s office had...

https://connect.mayoclinic.org/comment/829388/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2023

Greetings @saltyg I hope the combination of Embrel and prednisone is working for you. AS and...

https://connect.mayoclinic.org/comment/826632/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15, 2023

Hi @abbeyc The biologic I'm currently on is called Actemra (tocilizumab). It has been FDA approved...

https://connect.mayoclinic.org/comment/826631/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15, 2023

Wow, reading your tapering off situation. It’s also very confusing. I was diagnosed with PMR and...

https://connect.mayoclinic.org/comment/826320/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15, 2023

Thanks. 60 mg of prednisone is mostly stopping my pain, and my last blood test showed...

https://connect.mayoclinic.org/comment/825886/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

Thanks for continuing to describe your LDN experience. In terms of LDN's impact on the taper,...

https://connect.mayoclinic.org/comment/825025/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 12, 2023

I have taken 60 mg many times. I would only take 60 mg for a few...

https://connect.mayoclinic.org/comment/824291/

Discussion: PMR, prednisone and Poor Sleep or Insomnia

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

Do you still take Actemra for PMR? Have you been able to stay in remission when...

https://connect.mayoclinic.org/comment/824157/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

I am 4 months into prednisone and one week into LDN. It is too early to...

https://connect.mayoclinic.org/comment/823794/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

I have been on 15mg of Prednisone since July for PMR. I get my health care...

https://connect.mayoclinic.org/comment/821074/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5, 2023

Thank you, thank you, thank you. This is so helpful. Just from a logical viewpoint, tapering...

https://connect.mayoclinic.org/comment/818865/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

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