How many of you are on your second flare-up?
How many people have come off of Prednisone only to have it reoccur a month later? I have had PMR for 3.5 years and was finally able to wean off of Prednisone (after several flare-ups.) I was doing really well after I took my last pill, no pain, no symptoms, then Wham!!! I held off calling my rheumy thinking it would improve, but the pain just got worse. Couldn't sleep or get out of bed without shoulder and hip pain.
Here we go again. Now I'm back to 10 mgs Prednisone tapering 1/2 pill every three days. So sick of this disease. At least my wonderful rheumy got back to me within two hours. Thank goodness for Patient Portals.