Parkinson's Disease Support Group

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Comments (202)

Hello. I have just recently been diagnosed with MSA - C and P. I do not...

https://connect.mayoclinic.org/comment/1374988/

Discussion: Anyone have experience with Multiple System Atrophy (MSA)?

Support Group: Brain & Nervous System

Posted: Aug 20, 2025

@sillyblone Fresh out of ER visit. Uncontrolled high BP 220/107. Husband now diagnosed with Parkinson Plus...

https://connect.mayoclinic.org/comment/1347882/

Discussion: Autonomic Dysfunction/Erratic BP Numbers

Support Group: Parkinson's Disease

Posted: Jul 14, 2025

Thank you! I greatly appreciate the information. We built a barndominium. Lots of interior work to...

https://connect.mayoclinic.org/comment/1346717/

Discussion: Looking Back - What Were Your Early Warning Signs of Parkinson's?

Support Group: Parkinson's Disease

Posted: Jul 12, 2025

I have had 2 experiences with rehab. Each was disappointing. Both were before I had my...

https://connect.mayoclinic.org/comment/1305877/

Discussion: Negative effects of rehab on Parkinson's symptoms

Support Group: Parkinson's Disease

Posted: May 17, 2025

Thank you for your reply. Your husband is blessed to have you advocating for him and...

https://connect.mayoclinic.org/comment/1250993/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 5, 2025

Hi, I have been diagnosed for almost 1 year . It has been the worst year...

https://connect.mayoclinic.org/comment/1240281/

Discussion: Living with Parkinson's Disease - Meet others & come say hi

Support Group: Parkinson's Disease

Posted: Feb 18, 2025

Thanks Lisa - sorry to hear about your boyfriends hip. Ouch! I hope he's back in...

https://connect.mayoclinic.org/comment/1205977/

Discussion: Anybody with Parkinson's bicycling?

Support Group: Parkinson's Disease

Posted: Jan 7, 2025

Hi, @jeffwillapa - for safety purposes, new Connect members wait a few days before they can...

https://connect.mayoclinic.org/comment/1162302/

Discussion: Nicotinamide riboside: Has the NoPark study been discussed?

Support Group: Parkinson's Disease

Posted: Oct 24, 2024

Proper self discipline of Exercise and diet foods will increase dopamine. Use Google to learn of...

https://connect.mayoclinic.org/comment/1046366/

Discussion: PD and restlessness in the afternoon?

Support Group: Parkinson's Disease

Posted: Apr 6, 2024

I found this video that explained some of Stanford's work: https://www.youtube.com/watch?v=vlqpr-Projw. It is very scientific but...

https://connect.mayoclinic.org/comment/929574/

Discussion: Help for Functional Tremor

Support Group: Parkinson's Disease

Posted: Sep 13, 2023

I tried a number of smartphone apps, but now use the free Medisafe app on my...

https://connect.mayoclinic.org/comment/926100/

Discussion: Multiple conditions and keeping track of all your medications

Support Group: Aging Well

Posted: Sep 8, 2023

Hello @colleenl2008, When I first started with neurological symptoms, it was hard to diagnose as well....

https://connect.mayoclinic.org/comment/922275/

Discussion: Amantadine alone or with CL/LD

Support Group: Parkinson's Disease

Posted: Aug 31, 2023

I am 73; diagnosis of PD 03/2018 and on carbi/levo 25 tid since then. I am...

https://connect.mayoclinic.org/comment/787097/

Discussion: Sharing symptoms and experiences

Support Group: Parkinson's Disease

Posted: Dec 20, 2022

Hello @rhuck513, I see that you have been a member of Connect for a while now,...

https://connect.mayoclinic.org/comment/768447/

Discussion: Sharing symptoms and experiences

Support Group: Parkinson's Disease

Posted: Nov 2, 2022

My experience with DBS occurred in 2021. After the scars healed and a lighter parkinson's cocktail...

https://connect.mayoclinic.org/comment/751255/

Discussion: PD will be curable with cortisol article

Support Group: Parkinson's Disease

Posted: Sep 18, 2022

Hello @bvoelschow, You last posted about a month ago and I was wondering how you and...

https://connect.mayoclinic.org/comment/699003/

Discussion: Living with Parkinson's Disease - Meet others & come say hi

Support Group: Parkinson's Disease

Posted: Apr 14, 2022

Hi @shar1438 Here is a link to a video that you might find helpful, https://m.youtube.com/watch?v=6s4A6HFkjGo&feature=youtu.be. The...

https://connect.mayoclinic.org/comment/689043/

Discussion: Living with Parkinson's Disease - Meet others & come say hi

Support Group: Parkinson's Disease

Posted: Mar 13, 2022

My husband with Parkinson also has the same constipation problem. He walks almost everyday for 50...

https://connect.mayoclinic.org/comment/634106/

Discussion: Bad constipation with Parkinson’s

Support Group: Parkinson's Disease

Posted: Sep 9, 2021

Thanks so much Teresa! You always have such good information and advice! As you have read(I...

https://connect.mayoclinic.org/comment/273493/

Discussion: Bad constipation with Parkinson’s

Support Group: Parkinson's Disease

Posted: Aug 27, 2019

Hello @susan62 I would encourage you to take a look at the Davis Phinney website and...

https://connect.mayoclinic.org/comment/273491/

Discussion: Bad constipation with Parkinson’s

Support Group: Parkinson's Disease

Posted: Aug 27, 2019

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