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Pancreatic Cancer Support Group

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Discussion
PAC-MANN, New Diagnostic Blood Test?
I’ve have been reading about a number of new diagnostic blood tests for early detection of cancer, including PAC. Specifically a test called PAC-MANN which...
Support Group: Pancreatic Cancer
Last active: Apr 18, 2025
Discussion
Pancreatic mass
Because of a BRCA gene variant, I had a pancreatic ultrasound done with my endoscopy. He found a mass on the pancreatic tail and did...
Support Group: Pancreatic Cancer
Last active: Sep 25, 2023
Discussion
Questions about maintenance chemotherapy
After 6 rounds of chemo and my gallbladder surgery, my pancan stats are looking good--so of course, now I have more questions! As a reminder,...
Support Group: Pancreatic Cancer
Last active: Nov 7, 2023
Discussion
How high a CA19-9 have you had/seen?
I’ve done a little reading to see general thoughts on prognosis with really high pre treatment CA19-9 levels. The highest I have seen was an...
Support Group: Pancreatic Cancer
Last active: May 28, 2024
Discussion
Who else has had Gem-Abraxane chemo regimen and for how long?
I am understanding this disease as I journey with my husband who had a distal pancreatectomy and splenectomy. No signs of active cancer activity anywhere...
Support Group: Pancreatic Cancer
Last active: Jan 4, 2025
Discussion
Interesting case of new lesions, pain, but decreasing CA19-9
Yesterday I went to ER with intense and acute pain in my right side. After CT&US it was found that my previous lesion in liver...
Support Group: Pancreatic Cancer
Last active: Dec 31, 2024
Discussion
CA19-9 going up and back pain at night - recurrence?
I was diagnosed with pancreatic cancer in July 2022 - stage III, borderline resectable. I had 12 treatments of FOLFIRINOX and followed by a Whipple...
Support Group: Pancreatic Cancer
Last active: Nov 16, 2023
Discussion
Travel & timing after local recurrence
Hello. I have appreciated people's openness and support on this site. This is my first time posting. My 64-year-old husband was diagnosed with PDAC in...
Support Group: Pancreatic Cancer
Last active: 3 hours ago
Discussion
Have had 38 cycles with Abraxane & Gemczar. CA19-9 rising.
I have had 3 years of chemo with Abraxane & Gemczar: 75 treatments with a break of 4 months 2024. My CA19-9 seems to have...
Support Group: Pancreatic Cancer
Last active: Aug 16, 2025
Discussion
I'm back: increasing CA19-9 was accurate indicator of recurrence.
I had posted back in mid-November that my CA19-9 levels had been increasing and I was experiencing back pains at night, but there was no...
Support Group: Pancreatic Cancer
Last active: Jun 3, 2025