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Pancreatic Cancer Support Group

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Discussions (48)
Creon and stomach pain
I have had my pancreas and spleen removed and have stomachache every time I eat. I have had a day on broth only and no...
Support Group: Pancreatic Cancer
Last active: Nov 18, 2024
Can Creon be the cause of headaches and leg cramps?
Husbands last chemo was Aug. 29 yaaaaaaaaaaaaaaaaaaay He has been on Creon since his Whipple surgery in December. Has been feeling great. All of a...
Support Group: Pancreatic Cancer
Last active: Jan 14 7:36pm
CREON..Pancreatic enzyme supplement cost
If you’re using CREON, has anyone chef the difference in prices from CVS retail and CVC mail order? I paid $190 for a one month...
Support Group: Pancreatic Cancer
Last active: Apr 3, 2025
Can’t seem to locate Creon - 36000 units
All of my local pharmacies in New Mexico are unable to get Creon in 36000 units. They can get it in 6000 units. I’m supposed...
Support Group: Pancreatic Cancer
Last active: Oct 24, 2023
Bird picking at food after Whipple surgery and Creon
In a week I go in for my Whipple surgery. After the surgery my doctor and others on this forum have said I need to...
Support Group: Pancreatic Cancer
Last active: Jul 28, 2024
Creon capsule too large to swallow: Any tips?
Does anyone know if Ceon in the capsule can be inserted in a smaller capsule to make it easier to swallow? I don’t like mixing...
Support Group: Pancreatic Cancer
Last active: Oct 25, 2023
Any documented drug interactions between Keytruda and Creon?
I had lung surgery to remove a cancerous mass on my upper left lobe in June 2023. Entire lobe has been removed. In August 2023,...
Support Group: Pancreatic Cancer
Last active: Jan 19, 2024
Possible Creon side effects: What helped you?
I have a variety of Side Effects that are all listed as possibly related to Creon, the most troublesome being gas which seems to last...
Support Group: Pancreatic Cancer
Last active: Apr 18, 2025
Still losing weight: Does timing of Creon help?
Husband is still losing weght....too much!!!! We got his Creon dialed in correctly....wondering if he took the Creon after he ate if this would help...
Support Group: Pancreatic Cancer
Last active: May 18, 2023
Creon - am I taking too much or too little?
Hi - pancreatic cancer person here. (Surgery 14 years ago removed tail, recurrence on head a year ago, currently in remission after treatment including hi-dose...
Support Group: Pancreatic Cancer
Last active: Feb 27 9:09am
Anyone have stomach aches from Creon or developed SIBO?
Hi. Its Lilliejane2 again. I posted some good news about results of recent EUS, but I also have a question about ongoing abdominal discomfort and...
Support Group: Pancreatic Cancer
Last active: Aug 14, 2023
Is anyone taking Zenpep rather than Creon? If so what foods work?
I do not have diarrhea, but I have many bowel movements as my digestive system doesn't seem to get the nutrients needed. I go uup...
Support Group: Pancreatic Cancer
Last active: Nov 29, 2024
What are other survivors doing about pancreatic enzymes replacement?
I am a 4 year survivor of pancreatic cancer. I have been on creon since my Whipple. It is very expensive. I talked to someone...
Support Group: Pancreatic Cancer
Last active: Dec 7, 2025
Watery stool after Whipple surgery
I had Whipple surgery done two weeks ago, I have suffered watery stool ever since. Tried Imodium 4 times a day, started CREON with each...
Support Group: Pancreatic Cancer
Last active: Feb 3, 2024
Is GOODRX trustworthy?
Anyone have bad experiences getting their Creon thru GOODRX?
Support Group: Pancreatic Cancer
Last active: Feb 5, 2024
Anyone have chronic diarrhea while on digestive enzymes?
Has anyone experienced chronic diarrhea using digestive enzymes like Zenpep or Creon? If so, did adjusting the dosage help?
Support Group: Pancreatic Cancer
Last active: Jul 8, 2025
How to deal with stomach problems
My wife is stage IV, diagnosed in July 2023, she has endured 10 chemo sessions. Her C19 went form 880 to 1200 and is now...
Support Group: Pancreatic Cancer
Last active: Dec 20, 2023
Struggling to eat with pancreatic cancer: How do you manage?
I am really struggling to eat anything. I take creon 24000 unt with everything that I eat but constantly have stomach pain and diarrhea. What...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2020
Color me confused (2 questions)
Background: diagnosis = metastatic adenocarcinoma of the pancreas; Now receiving modified "rescue" Folfurinox regimen; following a course of G-A that had to be adjusted in...
Support Group: Pancreatic Cancer
Last active: Jul 5, 2023