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Pancreatic Cancer Support Group

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Discussions (121)
Occasional sharp back pain after whipple
Hello! I had Whipple for cancerous tumor in head of my pancreas on February 9th. Some lymph node and nerve tissue involvement, but margins clear....
Support Group: Pancreatic Cancer
Last active: Nov 19, 2024
Extreme loss of appetite since starting chemo for pancreatic cancer
My husband had Whipple surgery Feb 2, 2023 for a Stage 1B pancreatic tumor. He is receiving the Folfirinox chemo regimen. The 1st round was...
Support Group: Pancreatic Cancer
Last active: May 26, 2023
What to expect from Gemcitibine chemo/radiation?
I was diagnosed with stage III pancreatic cancer in Jan 2021. Whipple surgery was performed the following month, followed by 12 treatments of Folfirinox. All...
Support Group: Pancreatic Cancer
Last active: Jul 11, 2023
Biomarker mutations question
Hello I recently had the Tempus 684 gene panel done to identify biomarker mutations. I would be interested in hearing from others who have had...
Support Group: Pancreatic Cancer
Last active: Aug 7, 2024
chemo round 2 or radiation after aborted Whipple
My wife was diagnosed borderline resectable PDAC in Oct 2023. Her 13 cycle Folfirinox chemo ended 5/31/24. CT suggested surgery. Her Whipple was aborted 7/22/24...
Support Group: Pancreatic Cancer
Last active: Sep 6, 2024
Successful treatment of recurrence?
I had successful treatment in 2021, completing in 2022. Whipple, adjuvant Folfirinox 6 1/2 months, brief SBRT for undetermined hazy mass in pancreatic bed. I...
Support Group: Pancreatic Cancer
Last active: Mar 9, 2023
Bone (Skeletal) Metastases
At the end of January my mother was diagnosed with ductal adenocarcinoma in the head of the pancreas measuring no more than 3 cm. All...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2023
Swelling or bumps in blood vessels following chemo regimen
Finished now with 12 rounds of Folfirinox. For a couple months now I’ve noticed small lumps in a couple places, along possibly lymph nodes, both...
Support Group: Pancreatic Cancer
Last active: Jan 11 12:10pm
Low platelet count and delay of chemo
Have had 8 rounds of Folfirinox, strong chemo, have had 3 after the Whipple procedure done June 10 2025; , supposed to have 4 more...
Support Group: Pancreatic Cancer
Last active: Nov 8, 2025
Reverse BRCA2 mutation
https://www.nature.com/articles/s41467-022-34109-8 This will be a lengthy post as I don't know how to pose my question to members here without considerable background info. I was...
Support Group: Pancreatic Cancer
Last active: Feb 2, 2025
Father's Recurrence After 4 Years
Hello, Thank you for the opportunity to join this group. I'm here because we found out last month that my father has had a recurrence...
Support Group: Pancreatic Cancer
Last active: Jun 24, 2021
Looking for Clinical Trial for MRD (min. resid. disease) Immunotherapy
I have been NED for 10 months following a Whipple (2021) and chemo (Folfirinox). In January, tumor markers rose and ctDNA because positive (after being...
Support Group: Pancreatic Cancer
Last active: Mar 27, 2023
Time between chemo and radiation
Hello all, My mom has gone through 13 sessions of Folfirinox and was found to have had a complete metabolic response. We went to Mayo...
Support Group: Pancreatic Cancer
Last active: Mar 27, 2023
My Sister's Battle with pancreatic ductal adenocarcinoma (PDAC)
Well, we are now at about 10 months from the time she became jaundiced. We got to Mayo within ten days or so, had full...
Support Group: Pancreatic Cancer
Last active: Mar 28, 2023
Has anyone been able to have surgery for tumor in the tail?
Has anyone been able to have surgery for tumor in the tail of the pancreas, stage 4, metastasized to the lymph nodes. My husband's oncologist...
Support Group: Pancreatic Cancer
Last active: Mar 10, 2025
Stage IV Adenosquamous pancreatic ca: finished SBRT, what's next?
Hello! It's Dale Gantous here again, 67 year old female. Briefly, I was diagnosed Stage 1 or 2 pancreatic cancer December 2023, had Whipple February...
Support Group: Pancreatic Cancer
Last active: Mar 18, 2025
StageIV with Peripheral Neuropathy
My spouse was diagnosed with stageVI Pancreatic cancer on July 3, 2023, the tumor is located on an artery which means no whipple. Her C19...
Support Group: Pancreatic Cancer
Last active: Jan 17, 2024
Oxaliplatin & Nab-paclitaxel Neuropathy - Longer Infusion Time?
My dad was diagnosed with pancreatic cancer in late January 2023 with encasement of PV/SMV and abutment/180degree encasement of SMA (he was deemed to be...
Support Group: Pancreatic Cancer
Last active: May 28, 2024
Suggestions for tracking medications, etc?
Hello, my mother just finished her first cycle of Folfirinox. Today is day 7. Does anyone have suggestions for tracking medications and fluids? She's rotating...
Support Group: Pancreatic Cancer
Last active: May 6, 2024
Success stories and working
Hi All, I am new here. I was diagnosed last year with Pancreatic Cancer (adenocarcinoma). I had a distal pancreatectomy with splenectomy and was staged...
Support Group: Pancreatic Cancer
Last active: May 22, 2025