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Pancreatic Cancer Support Group

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Discussions (110)
chemo round 2 or radiation after aborted Whipple
My wife was diagnosed borderline resectable PDAC in Oct 2023. Her 13 cycle Folfirinox chemo ended 5/31/24. CT suggested surgery. Her Whipple was aborted 7/22/24...
Support Group: Pancreatic Cancer
Last active: Sep 6, 2024
Successful treatment of recurrence?
I had successful treatment in 2021, completing in 2022. Whipple, adjuvant Folfirinox 6 1/2 months, brief SBRT for undetermined hazy mass in pancreatic bed. I...
Support Group: Pancreatic Cancer
Last active: Mar 9, 2023
Bone (Skeletal) Metastases
At the end of January my mother was diagnosed with ductal adenocarcinoma in the head of the pancreas measuring no more than 3 cm. All...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2023
Reverse BRCA2 mutation
https://www.nature.com/articles/s41467-022-34109-8 This will be a lengthy post as I don't know how to pose my question to members here without considerable background info. I was...
Support Group: Pancreatic Cancer
Last active: Feb 2 10:22am
Time between chemo and radiation
Hello all, My mom has gone through 13 sessions of Folfirinox and was found to have had a complete metabolic response. We went to Mayo...
Support Group: Pancreatic Cancer
Last active: Mar 27, 2023
Father's Recurrence After 4 Years
Hello, Thank you for the opportunity to join this group. I'm here because we found out last month that my father has had a recurrence...
Support Group: Pancreatic Cancer
Last active: Jun 24, 2021
Looking for Clinical Trial for MRD (min. resid. disease) Immunotherapy
I have been NED for 10 months following a Whipple (2021) and chemo (Folfirinox). In January, tumor markers rose and ctDNA because positive (after being...
Support Group: Pancreatic Cancer
Last active: Mar 27, 2023
Is this monitoring regimen too “hands off?”
Diagnosed with pancreatic adenocarsinoma in 2023 after acknowledging that coffee colored urine and yellow skin were not normal. Had Whipple November 2023 to remove small...
Support Group: Pancreatic Cancer
Last active: Jul 27 11:55am
My Sister's Battle with pancreatic ductal adenocarcinoma (PDAC)
Well, we are now at about 10 months from the time she became jaundiced. We got to Mayo within ten days or so, had full...
Support Group: Pancreatic Cancer
Last active: Mar 28, 2023
Has anyone been able to have surgery for tumor in the tail?
Has anyone been able to have surgery for tumor in the tail of the pancreas, stage 4, metastasized to the lymph nodes. My husband's oncologist...
Support Group: Pancreatic Cancer
Last active: Mar 10 1:19am
Stage IV Adenosquamous pancreatic ca: finished SBRT, what's next?
Hello! It's Dale Gantous here again, 67 year old female. Briefly, I was diagnosed Stage 1 or 2 pancreatic cancer December 2023, had Whipple February...
Support Group: Pancreatic Cancer
Last active: Mar 18 3:50pm
StageIV with Peripheral Neuropathy
My spouse was diagnosed with stageVI Pancreatic cancer on July 3, 2023, the tumor is located on an artery which means no whipple. Her C19...
Support Group: Pancreatic Cancer
Last active: Jan 17, 2024
Oxaliplatin & Nab-paclitaxel Neuropathy - Longer Infusion Time?
My dad was diagnosed with pancreatic cancer in late January 2023 with encasement of PV/SMV and abutment/180degree encasement of SMA (he was deemed to be...
Support Group: Pancreatic Cancer
Last active: May 28, 2024
Suggestions for tracking medications, etc?
Hello, my mother just finished her first cycle of Folfirinox. Today is day 7. Does anyone have suggestions for tracking medications and fluids? She's rotating...
Support Group: Pancreatic Cancer
Last active: May 6, 2024
Success stories and working
Hi All, I am new here. I was diagnosed last year with Pancreatic Cancer (adenocarcinoma). I had a distal pancreatectomy with splenectomy and was staged...
Support Group: Pancreatic Cancer
Last active: May 22 12:44pm
Pancreatic cancer and CA19-9
I have just finished my 13th Folfirinox regimen for pancreatic cancer stage IV. I was diagnosed in May of 2022. I still have no symptoms...
Support Group: Pancreatic Cancer
Last active: Feb 5, 2023
My dad (76) was diagnosed with stage iv pancreatic cancer
My dad (76) was diagnosed with stage iv pancreatic cancer with several liver mets. Did 5 cycles of FOLFIRINOX 5-FU. Progression scan this week showed...
Support Group: Pancreatic Cancer
Last active: May 4, 2023
Help with Low WBC Count and Seizures
Hello Everyone, my father, 64yrs is a stage-3 pancreatic cancer patient with a history of pancreatitis and diabetes. He has had two rounds of Chemo...
Support Group: Pancreatic Cancer
Last active: Nov 12, 2023
Switching to chemoradiation (Xeloda + radiation): What to expect?
To address chemo resistance and hopefully lower my CA 19-9, we are likely going to switch my regimen from modified Folfiri (no oxali) to radiation...
Support Group: Pancreatic Cancer
Last active: Mar 30, 2024
Which questions should I ask my surgeon? (I think Whipple is likely.)
Hello and thanks. I had my 8th (of 8) Folfirinox infusions last week and will soon meet with my surgeon. I have no idea what...
Support Group: Pancreatic Cancer
Last active: Aug 30, 2023