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Pancreatic Cancer Support Group

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Discussions (125)
I'm back: increasing CA19-9 was accurate indicator of recurrence.
I had posted back in mid-November that my CA19-9 levels had been increasing and I was experiencing back pains at night, but there was no...
Support Group: Pancreatic Cancer
Last active: Jun 3, 2025
Is it possible to have very high CEA and CA19-9 without cancer?
Hi, My husband was hospitalized with a mild stroke a couple of weeks ago. While admitted, they did a CT scan, which caught just enough...
Support Group: Pancreatic Cancer
Last active: Mar 9, 2025
Mom not responding to chemo
my mom just got her latest scans back and no change in tumor size. background story: my mom was dx with pc 3 years ago....
Support Group: Pancreatic Cancer
Last active: Dec 12, 2022
Lung Opacity seen on Chest CT scan
I had CTs of the chest and abdomen Wednesday (1/3). The abdomen report looks good. The radiologist said there are no new issues, and the...
Support Group: Pancreatic Cancer
Last active: Jan 14, 2024
CA19-9 View trends Normal value: < 37 U/ML Value 1563
Starting the steps to find if mass in my pancreas is cancer. I have an EUS scheduled Monday . I had Esophageal cancer in 2022
Support Group: Pancreatic Cancer
Last active: Jun 17, 2025
Size of Cyst & Surgery?
In viewing a video from a doctor surgeon from St. Joseph’s (don’t remember the location), he mentioned that if the Cyst is larger than 5cm,...
Support Group: Pancreatic Cancer
Last active: Nov 5, 2023
Bile Duct Cancer suspected - ERCP today
Hi. I don't know if I belong in this group yet, but I have a few symptoms and image results and blood work that seems...
Support Group: Pancreatic Cancer
Last active: Apr 5, 2023
Recurrence after Whipple, Folfirinox and radiation (SBRT)
Hi all, my mom, 73, had Whipple in Feb 2023. Whipple was successful, totally resected but there WAS lymph node involvement. Did adjuvant Folfirinox for...
Support Group: Pancreatic Cancer
Last active: May 10, 2025
Liver biopsy damage as seen on CT scan?
Greetings: Bear with me; I need to provide some background before asking my question… In September 2023, after 8 rounds of neoadjuvant chemotherapy (Folrifinox), I...
Support Group: Pancreatic Cancer
Last active: Sep 21, 2024
Any successful experiences with GemAbrax after awful side effects?
My dad was diagnosed 12/20/2024 with Stage 2 Adenocarcinoma Pancreatic Cancer. We were told originally it was only 2cm and he was the perfect candidate...
Support Group: Pancreatic Cancer
Last active: May 13, 2025
Switching to chemoradiation (Xeloda + radiation): What to expect?
To address chemo resistance and hopefully lower my CA 19-9, we are likely going to switch my regimen from modified Folfiri (no oxali) to radiation...
Support Group: Pancreatic Cancer
Last active: Mar 30, 2024
Help with Low WBC Count and Seizures
Hello Everyone, my father, 64yrs is a stage-3 pancreatic cancer patient with a history of pancreatitis and diabetes. He has had two rounds of Chemo...
Support Group: Pancreatic Cancer
Last active: Nov 12, 2023
How did you pick a hospital for pancreatic cancer care?
Hi-I just found out that my aunt has a high probability of having pancreatic cancer. They detected a cyst in her pancreas while screening for...
Support Group: Pancreatic Cancer
Last active: Nov 25, 2024
New, overwhelmed: What's microsatellite stable?
My best friend, who i'm a caregiver and driver for, received a positive confirmation of an adenocarcinoma on the tail of the pancreas through a...
Support Group: Pancreatic Cancer
Last active: Aug 27, 2023
Stage IV Adenosquamous pancreatic ca: finished SBRT, what's next?
Hello! It's Dale Gantous here again, 67 year old female. Briefly, I was diagnosed Stage 1 or 2 pancreatic cancer December 2023, had Whipple February...
Support Group: Pancreatic Cancer
Last active: Mar 18, 2025
Clinical trial video from PANCAN- questions about first time treatment
Yesterday I watched a very informative video on clinical trials from the PANCAN network. Stageivsurvivor was a guest speaker and have an excellent presentation! Here’s...
Support Group: Pancreatic Cancer
Last active: Jun 1, 2024
Digestive issues and pancreatic cancer
I was diagnosed with endocrine pancreatic carcinoma in late December, 2017. I began Gemcitibine/abraxane to, hopefully, shrink the tumor on the tail of my pancreas...
Support Group: Pancreatic Cancer
Last active: Sep 15, 2022
2nd opinion would require a diag. lap within 90 days of last one
I am 70 and was diagnosed with Stage 1 pan can 9/23. Initially took Abraxane/Gemzar for 2 months, then stopped due to chemo- induced pneumonia/pneumonitis...
Support Group: Pancreatic Cancer
Last active: Jan 19, 2024
Recent diagnosis: Have questions about treatment options?
I am getting diagnosed with pancreatic cancer after an abdominal CT last week. I’m 45 male, South Asian, and married with 8yo twins. I have...
Support Group: Pancreatic Cancer
Last active: Dec 22, 2024
My Sister's Battle with pancreatic ductal adenocarcinoma (PDAC)
Well, we are now at about 10 months from the time she became jaundiced. We got to Mayo within ten days or so, had full...
Support Group: Pancreatic Cancer
Last active: Mar 28, 2023