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Discussions (88)
Treatment for lymph nodes?
My husband's latest CT scan showed no progression of disease, except "Enlarging centrally necrotic appearing retroperitoneal lymph nodes". His CA19-9 numbers had gone up after...
N.E.D. And other things that go bump in the night
Just wondering .. for those with the NED status … what kind of CA19-9 numbers are you showing?
Has anyone had lung metastases?
My CT scan report notes two modules in my right lobe “suspicious for….” A small one had been seen in the past and then disappeared....
12 months free of disease with clear CT scans: What is next?
My husband has been clear of disease for 12 months with clear CT scans. The cancer disappeared after 12 sessions of chemo which the oncologist...
Bone (Skeletal) Metastases
At the end of January my mother was diagnosed with ductal adenocarcinoma in the head of the pancreas measuring no more than 3 cm. All...
Anyone experiencing malabsorption?
While my CA19 numbers are trending down, I have had malabsorption for almost a month. Not sure if chemo related, or disease progression. Stage 4...
Nausea when eating during Folfirinox Adjuvant Chemotherapy
Hi guys, My relative has been suffering from nausea right during eating , and he is taking a three week break during the 6th Folfirinox...
treatment for liver mets
recap: my wife had aborted Whipple 7/22/24 due to SMV involvement. We decided on SMART radiation therapy for 9/6/24, but this had to be cancelled...
ONIVYDE irinotecan liposome
Has anyone here been treated with Onivyde? After 10 treatments with gemcitibine/abraxane/cisplaten and 8 treatments with gemcitibine/abraxane, my wife's CA19-9 is still climbing and a...
Anyone have experience with mRNA trials for pancreatic cancer?
Hi! I was diagnosed December 2023, had modified Whipple February 2024 with clear margins, completed 12 rounds of Folfirinox in September. CA19-9 and CT scans...
Update on my father's issue
From looking at the reports that I was finally given access to, my father (62) now officially 1 year post whipple, the 'spot' they were...
Is there an early way to detect blood clots?
I’m stage 4 PC patient who recently completed MRIdean (mapped) radiation to a small lesion in my liver, my CA19-9 tumor marker is now within...
More Tests Required?
For the last 4 weeks I have been suffering from a lot of symptoms associated with pancreatic cancer ( except for the jaundice & itching)...
Change of Chemo
Question...brother has been on folfirinox for about 9.5 months. Recently...although no new spots...a couple of spots have grown a tiny bit. We are contemplating doing...
What to expect from Gemcitibine chemo/radiation?
I was diagnosed with stage III pancreatic cancer in Jan 2021. Whipple surgery was performed the following month, followed by 12 treatments of Folfirinox. All...
Question regarding “dead” tumor
I’ve read several posts mentioning dead tumors and was wondering how do you know it’s dead and what treatment did you receive. My husband was...
Contrast and MRI: Did you have a reaction? How was it handled?
Months ago I had a MRI with contrast and had a terrible reaction. Yesterday, July 13, 2023, I refused the CT scan with contrast. Consequently,...
Best early diagnosis
Hey all i am 28female. Diabetes runs in my maternal family and i got diagnosed with type 2 two months ago because of unintended weight...
Is a 2-week break between adjuvant radiotherapy & chemo okay?
My relative has been diagnosed with stage 2b and has undergone whipple on July with 3/15 nodes positive and one area with close margin. Adjuvant...
Dilation on pancreas- what should have been done?
Hi! My mom had a dilation on her pancreas. She had been complaining about pain in that area for a while. It was discovered while...