Support Groups

Pancreatic Cancer Support Group

Public Support Group
1,153 total results
Discussions (109)
New, overwhelmed: What's microsatellite stable?
My best friend, who i'm a caregiver and driver for, received a positive confirmation of an adenocarcinoma on the tail of the pancreas through a...
Support Group: Pancreatic Cancer
Last active: Aug 27, 2023
How did you pick a hospital for pancreatic cancer care?
Hi-I just found out that my aunt has a high probability of having pancreatic cancer. They detected a cyst in her pancreas while screening for...
Support Group: Pancreatic Cancer
Last active: Nov 25, 2024
Stage IV Adenosquamous pancreatic ca: finished SBRT, what's next?
Hello! It's Dale Gantous here again, 67 year old female. Briefly, I was diagnosed Stage 1 or 2 pancreatic cancer December 2023, had Whipple February...
Support Group: Pancreatic Cancer
Last active: Mar 18 3:50pm
Clinical trial video from PANCAN- questions about first time treatment
Yesterday I watched a very informative video on clinical trials from the PANCAN network. Stageivsurvivor was a guest speaker and have an excellent presentation! Here’s...
Support Group: Pancreatic Cancer
Last active: Jun 1, 2024
Digestive issues and pancreatic cancer
I was diagnosed with endocrine pancreatic carcinoma in late December, 2017. I began Gemcitibine/abraxane to, hopefully, shrink the tumor on the tail of my pancreas...
Support Group: Pancreatic Cancer
Last active: Sep 15, 2022
2nd opinion would require a diag. lap within 90 days of last one
I am 70 and was diagnosed with Stage 1 pan can 9/23. Initially took Abraxane/Gemzar for 2 months, then stopped due to chemo- induced pneumonia/pneumonitis...
Support Group: Pancreatic Cancer
Last active: Jan 19, 2024
My Sister's Battle with pancreatic ductal adenocarcinoma (PDAC)
Well, we are now at about 10 months from the time she became jaundiced. We got to Mayo within ten days or so, had full...
Support Group: Pancreatic Cancer
Last active: Mar 28, 2023
Recent diagnosis: Have questions about treatment options?
I am getting diagnosed with pancreatic cancer after an abdominal CT last week. I’m 45 male, South Asian, and married with 8yo twins. I have...
Support Group: Pancreatic Cancer
Last active: Dec 22, 2024
Abort chemo Rx & go straight to surgery while I am still Stage 1?
I was very fortunate in how my stage one pancreatic cancer was diagnosed. In August 2023, I had an unrelated intestinal surgery and three weeks...
Support Group: Pancreatic Cancer
Last active: Apr 12, 2024
Help: Struggling with Wife's Pancreatic Cancer issues
Its been just over a year now that my wife and I started this fight with nonoperational Pancreatic cancer. We are now on a new...
Support Group: Pancreatic Cancer
Last active: Oct 18, 2024
Locally advanced pancreatic tumor started growing and kidney function
CA19-9 reduced from 16,000 to 74 then stopped responding to chemo so we did stereotactic radiation after that it started aggressively growing and CA19-9 is...
Support Group: Pancreatic Cancer
Last active: Sep 18, 2023
Pancreatic cancer recurrence at 2 years: Treatment change
I haven't checked in for a while... My wife was diagnosed in July 2019 right after her 61st birthday. Had 9 rounds of Folfirinox, then...
Support Group: Pancreatic Cancer
Last active: Jun 28, 2021
Oxaliplatin & Nab-paclitaxel Neuropathy - Longer Infusion Time?
My dad was diagnosed with pancreatic cancer in late January 2023 with encasement of PV/SMV and abutment/180degree encasement of SMA (he was deemed to be...
Support Group: Pancreatic Cancer
Last active: May 28, 2024
N.E.D. And other things that go bump in the night
Just wondering .. for those with the NED status … what kind of CA19-9 numbers are you showing?
Support Group: Pancreatic Cancer
Last active: Jul 16, 2023
Bone (Skeletal) Metastases
At the end of January my mother was diagnosed with ductal adenocarcinoma in the head of the pancreas measuring no more than 3 cm. All...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2023
What's next?
Folfirinox showed resistance after about 9 or 10 months. Now gem/abrax may be going the same route as CA19-9 numbers have gone from 300 to...
Support Group: Pancreatic Cancer
Last active: Mar 11 6:16pm
Anyone experiencing malabsorption?
While my CA19 numbers are trending down, I have had malabsorption for almost a month. Not sure if chemo related, or disease progression. Stage 4...
Support Group: Pancreatic Cancer
Last active: Apr 10, 2024
12 months free of disease with clear CT scans: What is next?
My husband has been clear of disease for 12 months with clear CT scans. The cancer disappeared after 12 sessions of chemo which the oncologist...
Support Group: Pancreatic Cancer
Last active: Jun 6, 2023
Nausea when eating during Folfirinox Adjuvant Chemotherapy
Hi guys, My relative has been suffering from nausea right during eating , and he is taking a three week break during the 6th Folfirinox...
Support Group: Pancreatic Cancer
Last active: Feb 7, 2024
Recurrence at SMA Lymph node
Hi all, My father is currently suffering from recurrent pancreatic cancer (moderately differentiated adenocarcinoma). He is diagnosed and underwent Whipple surgery in July 2023 which...
Support Group: Pancreatic Cancer
Last active: Jan 27 7:51am