Support Groups

Pancreatic Cancer Support Group

Lock icon Public Support Group
Clear Search
1,277 total results
Discussions (126)
Splenectomy part of distal pancreatectomy
Stage 2 diagnosis in February, tumor in the tail of the pancreas, just finished 12 rounds of folfirinox with no issues. I am completely not...
Support Group: Pancreatic Cancer
Last active: Sep 24, 2025
Anyone have any experience with clinical trials or immunotherapy?
My husband (43) was diagnosed with stage 4 pancan on Sept 1. He’s had 4 rounds on chemo, Folfirinox with some dosage adjustments due to...
Support Group: Pancreatic Cancer
Last active: Nov 21, 2023
ONIVYDE irinotecan liposome
Has anyone here been treated with Onivyde? After 10 treatments with gemcitibine/abraxane/cisplaten and 8 treatments with gemcitibine/abraxane, my wife's CA19-9 is still climbing and a...
Support Group: Pancreatic Cancer
Last active: Dec 20, 2021
PIPAC for peritoneal metastasis
Hello. My husband was diagnosed with PDAC last year and has undergone six months of Folfirinox followed by SABR radiotherapy which kept the original mass...
Support Group: Pancreatic Cancer
Last active: Jun 2, 2025
How do you eat during chemo when everything tastes bad?
my wife was able to eat during Folfirinox chemo, but now she is on gemcitabine/abraxane and everything tastes awful so she is not eating.Lidocaine solution...
Support Group: Pancreatic Cancer
Last active: May 9 4:06pm
Clinical Trials Help
Hello, everyone. I was diagnosed with stage IV adenosquamous pancreatic cancer with liver lesions this past March. After courses of Folfirinox and then Gem-Abraxane, my...
Support Group: Pancreatic Cancer
Last active: Oct 7, 2025
Any experience with stroke and very low platelets?
My sister was dx'd Stage IV 11 months ago. Had 6 months Folfirinox and now oral capecitabine which was d/c'd last week. She suffered a...
Support Group: Pancreatic Cancer
Last active: Jun 9, 2024
Cancer drug cost in Ontario, Canada
Hi, I have been a member for few months but had not posted anything. But this forum has given me lot of information. I thank...
Support Group: Pancreatic Cancer
Last active: Oct 18, 2023
Anyone on Gemcitabine with Abraxane? How long? Effective?
Hi, I'm Helena from South Africa. I have been diagnosed with PC, stage 4, in March. Tumour between body and tail and with one lesion...
Support Group: Pancreatic Cancer
Last active: Dec 3, 2025
Does order of chemo drugs matter?
Just curious. My husband started on gemcitabine and Abraxane last month. Three weeks on, one off. He had been on folfirinox for the past year...
Support Group: Pancreatic Cancer
Last active: Dec 5, 2024
Is anyone participating in a clinical trial for pancreatic cancer?
Is anyone participating in a clinical trial for pancreatic cancer? My husband’s PC is not genetic. He has tried Folfirinox. He was allergic to Oxaliplatin...
Support Group: Pancreatic Cancer
Last active: Dec 12, 2025
Molecular profiling in Canada
Molecular profiling is not done in Canada unless you are in a clinical study. So for my husband we chose to have it done which...
Support Group: Pancreatic Cancer
Last active: Aug 4, 2024
Anyone with BRCA 2 mutation taking Olaparib?
My Dad was detected with pancreatic adenocarcinoma last year in January 2023. He had Whipple surgery in August 2023. He completed 12 cycles of FOLFIRINOX...
Support Group: Pancreatic Cancer
Last active: Oct 3, 2024
Pancreatic cancer became metastatic after cyberknife treatment
My husband has unresectable pancreatic cancer because tumor was wrapped around an artery. He had 6 months of folfirinox and oxyplatin. His ca 199 numbers...
Support Group: Pancreatic Cancer
Last active: May 3, 2022
Can Gemcitabine/Abraxane (GA) chemo cause delusions?
(Computer issues this morning, so sorry if this was already posted)My wife is in her off week of her first 3week on / 1 week...
Support Group: Pancreatic Cancer
Last active: Oct 1, 2024
Any experiences with Gemcitabine + Abraxane as second line treatment?
My 45yr old husband was diagnosed with stage IV pancreatic adenocarcinoma in Sept 2025. It had metastasized to his liver and spleen. He started out...
Support Group: Pancreatic Cancer
Last active: Apr 29 1:10pm
Who else has had Gem-Abraxane chemo regimen and for how long?
I am understanding this disease as I journey with my husband who had a distal pancreatectomy and splenectomy. No signs of active cancer activity anywhere...
Support Group: Pancreatic Cancer
Last active: Jan 4, 2025
First chemo tomorrow--tips, suggestions, cautions?
I'll do my first chemo tomorrow (Mon 4/24)--modified FOLFIRINOX, with all the additional meds and the infusion pump coming home with me for a couple...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2025
Thinking of pursuing a second opinion at Mayo Clinic
My wife was diagnosed 6/2024 with a penny sized malignant neoplasm of body of pancreas.Original Chemo cycle started July 15 and included Folfirinox and after...
Support Group: Pancreatic Cancer
Last active: Nov 29, 2024
Multi-part question (chemo brain; returning to work)
Hello, and thank you for your generosity in replying to my questions. I've had eight rounds of Folfirinox (the last was on 8-2-23, and it...
Support Group: Pancreatic Cancer
Last active: Aug 30, 2023