Support Groups

Pancreatic Cancer Support Group

Public Support Group
951 total results
Discussions (86)
First chemo tomorrow--tips, suggestions, cautions?
I'll do my first chemo tomorrow (Mon 4/24)--modified FOLFIRINOX, with all the additional meds and the infusion pump coming home with me for a couple...
Support Group: Pancreatic Cancer
Last active: Jun 3, 2023
chemo round 2 or radiation after aborted Whipple
My wife was diagnosed borderline resectable PDAC in Oct 2023. Her 13 cycle Folfirinox chemo ended 5/31/24. CT suggested surgery. Her Whipple was aborted 7/22/24...
Support Group: Pancreatic Cancer
Last active: Sep 6 4:38pm
Importance of genetic testing for treatment
69 year old male with either pancreatic or periampullary cancer. Tumor is not well seen or measured by ct or pet scans which I guess...
Support Group: Pancreatic Cancer
Last active: Aug 20, 2023
Extreme loss of appetite since starting chemo for pancreatic cancer
My husband had Whipple surgery Feb 2, 2023 for a Stage 1B pancreatic tumor. He is receiving the Folfirinox chemo regimen. The 1st round was...
Support Group: Pancreatic Cancer
Last active: May 26, 2023
Occasional sharp back pain after whipple
Hello! I had Whipple for cancerous tumor in head of my pancreas on February 9th. Some lymph node and nerve tissue involvement, but margins clear....
Support Group: Pancreatic Cancer
Last active: Sep 10 10:13am
Multi-part question (chemo brain; returning to work)
Hello, and thank you for your generosity in replying to my questions. I've had eight rounds of Folfirinox (the last was on 8-2-23, and it...
Support Group: Pancreatic Cancer
Last active: Aug 30, 2023
Successful treatment of recurrence?
I had successful treatment in 2021, completing in 2022. Whipple, adjuvant Folfirinox 6 1/2 months, brief SBRT for undetermined hazy mass in pancreatic bed. I...
Support Group: Pancreatic Cancer
Last active: Mar 9, 2023
What to expect from Gemcitibine chemo/radiation?
I was diagnosed with stage III pancreatic cancer in Jan 2021. Whipple surgery was performed the following month, followed by 12 treatments of Folfirinox. All...
Support Group: Pancreatic Cancer
Last active: Jul 11, 2023
Biomarker mutations question
Hello I recently had the Tempus 684 gene panel done to identify biomarker mutations. I would be interested in hearing from others who have had...
Support Group: Pancreatic Cancer
Last active: Aug 7 12:06pm
Father's Recurrence After 4 Years
Hello, Thank you for the opportunity to join this group. I'm here because we found out last month that my father has had a recurrence...
Support Group: Pancreatic Cancer
Last active: Jun 24, 2021
Looking for Clinical Trial for MRD (min. resid. disease) Immunotherapy
I have been NED for 10 months following a Whipple (2021) and chemo (Folfirinox). In January, tumor markers rose and ctDNA because positive (after being...
Support Group: Pancreatic Cancer
Last active: Mar 27, 2023
Bone (Skeletal) Metastases
At the end of January my mother was diagnosed with ductal adenocarcinoma in the head of the pancreas measuring no more than 3 cm. All...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2023
Has anyone been able to have surgery for tumor in the tail?
Has anyone been able to have surgery for tumor in the tail of the pancreas, stage 4, metastasized to the lymph nodes. My husband's oncologist...
Support Group: Pancreatic Cancer
Last active: 8 hours ago
Time between chemo and radiation
Hello all, My mom has gone through 13 sessions of Folfirinox and was found to have had a complete metabolic response. We went to Mayo...
Support Group: Pancreatic Cancer
Last active: Mar 27, 2023
My Sister's Battle with pancreatic ductal adenocarcinoma (PDAC)
Well, we are now at about 10 months from the time she became jaundiced. We got to Mayo within ten days or so, had full...
Support Group: Pancreatic Cancer
Last active: Mar 28, 2023
Suggestions for tracking medications, etc?
Hello, my mother just finished her first cycle of Folfirinox. Today is day 7. Does anyone have suggestions for tracking medications and fluids? She's rotating...
Support Group: Pancreatic Cancer
Last active: May 6 12:18am
StageIV with Peripheral Neuropathy
My spouse was diagnosed with stageVI Pancreatic cancer on July 3, 2023, the tumor is located on an artery which means no whipple. Her C19...
Support Group: Pancreatic Cancer
Last active: Jan 17 5:11pm
Oxaliplatin & Nab-paclitaxel Neuropathy - Longer Infusion Time?
My dad was diagnosed with pancreatic cancer in late January 2023 with encasement of PV/SMV and abutment/180degree encasement of SMA (he was deemed to be...
Support Group: Pancreatic Cancer
Last active: May 28 8:37pm
Pancreatic cancer and CA19-9
I have just finished my 13th Folfirinox regimen for pancreatic cancer stage IV. I was diagnosed in May of 2022. I still have no symptoms...
Support Group: Pancreatic Cancer
Last active: Feb 5, 2023
Which questions should I ask my surgeon? (I think Whipple is likely.)
Hello and thanks. I had my 8th (of 8) Folfirinox infusions last week and will soon meet with my surgeon. I have no idea what...
Support Group: Pancreatic Cancer
Last active: Aug 30, 2023