Support Groups

Pancreatic Cancer Support Group

Lock icon Public Support Group
Clear Search
1,370 total results
Discussions (125)
CEA and CA19-9 Results as Predictors of Treatment Outcome
I had a distal pancreatectomy and splenectomy on May 17 following a diagnosis of pT2N2 ductal adenocarcinoma. Surgery was done utilizing laproscopic/robotic method at MGH...
Support Group: Pancreatic Cancer
Last active: Aug 16, 2023
Does a change in CA19-9 indicate change in tumor?
is there a formula which converts % change in CA19-9 values to change in tumor dimensions?For example: if the difference between two CA19-9 readings is...
Support Group: Pancreatic Cancer
Last active: Nov 16, 2024
How long after CA19-9 shows a rise will imaging show a recurrence?
How long after rising ca199 did ct scan or imaging capture recurrence ? My Ct Scan was clear but ca199 has been rising and now...
Support Group: Pancreatic Cancer
Last active: 14 hours ago
frustrated to no end with friend
so... from friend has had his CA-19 drop drastically which is great... (33k-3k in a month) what isn't great is the fact he refuses to...
Support Group: Pancreatic Cancer
Last active: Nov 27, 2023
Pre-Whipple CA 19.9 levels. What was yours?
For those willing to share, what your CA 19.9 level just prior to Whipple surgery? Diagnosed about 10 months with pancreatic cancer at Stage 1B...
Support Group: Pancreatic Cancer
Last active: Mar 18, 2024
CA19 increase, gaining weight and feeling better - Confused
Diagnosed in Dec. 2023 - Stage 3 borderline resectable - CA19 217. Did 6 rounds of 5FU and CA19 went down to a low of...
Support Group: Pancreatic Cancer
Last active: May 11, 2025
There is hope!
Hi everyone, It's been a while since I've posted here. My mom was diagnosed with pancreatic cancer in July 2022 and underwent 6.5 months of...
Support Group: Pancreatic Cancer
Last active: Jul 27, 2023
Lung Nodules: Anyone monitoring these in regular scans?
I was diagnosed at stage 3 in May 2023 at 69 y.o.. I had a distal pancreatectomy and splenectomy followed by 12 rounds of Folfirinox...
Support Group: Pancreatic Cancer
Last active: Apr 6 11:43am
Stage 1B pancreatic tail cancer - surgical removal, now chemo
On Dec 9, 2025 I had an unrelated CT chest test for cardiac reason. It identified a mass in my pancreatic tail. A 4 cm...
Support Group: Pancreatic Cancer
Last active: Jan 28 8:32am
Apparently my friend's cancer has spread: How can I help him?
For those of you who had been following my friend's journey, after his surgery they told us they believed they got it all, wanted him...
Support Group: Pancreatic Cancer
Last active: Aug 17, 2025
radiation begins next week
So my friend came through surgery ok, healed up good etc..got set up for radiation beginning next Wed...for 5.5 weeks.. he'll also be doing oral...
Support Group: Pancreatic Cancer
Last active: May 3, 2024
PAC-MANN, New Diagnostic Blood Test?
I’ve have been reading about a number of new diagnostic blood tests for early detection of cancer, including PAC. Specifically a test called PAC-MANN which...
Support Group: Pancreatic Cancer
Last active: Apr 18, 2025
Questions about maintenance chemotherapy
After 6 rounds of chemo and my gallbladder surgery, my pancan stats are looking good--so of course, now I have more questions! As a reminder,...
Support Group: Pancreatic Cancer
Last active: Nov 7, 2023
Who else has had Gem-Abraxane chemo regimen and for how long?
I am understanding this disease as I journey with my husband who had a distal pancreatectomy and splenectomy. No signs of active cancer activity anywhere...
Support Group: Pancreatic Cancer
Last active: Jan 4, 2025
Pancreatic mass
Because of a BRCA gene variant, I had a pancreatic ultrasound done with my endoscopy. He found a mass on the pancreatic tail and did...
Support Group: Pancreatic Cancer
Last active: Sep 25, 2023
How high a CA19-9 have you had/seen?
I’ve done a little reading to see general thoughts on prognosis with really high pre treatment CA19-9 levels. The highest I have seen was an...
Support Group: Pancreatic Cancer
Last active: May 28, 2024
Interesting case of new lesions, pain, but decreasing CA19-9
Yesterday I went to ER with intense and acute pain in my right side. After CT&US it was found that my previous lesion in liver...
Support Group: Pancreatic Cancer
Last active: Dec 31, 2024
CA19-9 going up and back pain at night - recurrence?
I was diagnosed with pancreatic cancer in July 2022 - stage III, borderline resectable. I had 12 treatments of FOLFIRINOX and followed by a Whipple...
Support Group: Pancreatic Cancer
Last active: Nov 16, 2023
Travel & timing after local recurrence
Hello. I have appreciated people's openness and support on this site. This is my first time posting. My 64-year-old husband was diagnosed with PDAC in...
Support Group: Pancreatic Cancer
Last active: Apr 15 7:19am
Have had 38 cycles with Abraxane & Gemczar. CA19-9 rising.
I have had 3 years of chemo with Abraxane & Gemczar: 75 treatments with a break of 4 months 2024. My CA19-9 seems to have...
Support Group: Pancreatic Cancer
Last active: Aug 16, 2025