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Pancreatic Cancer Support Group

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Discussions (117)
frustrated to no end with friend
so... from friend has had his CA-19 drop drastically which is great... (33k-3k in a month) what isn't great is the fact he refuses to...
Support Group: Pancreatic Cancer
Last active: Nov 27, 2023
Apparently my friend's cancer has spread: How can I help him?
For those of you who had been following my friend's journey, after his surgery they told us they believed they got it all, wanted him...
Support Group: Pancreatic Cancer
Last active: Aug 17 12:39pm
There is hope!
Hi everyone, It's been a while since I've posted here. My mom was diagnosed with pancreatic cancer in July 2022 and underwent 6.5 months of...
Support Group: Pancreatic Cancer
Last active: Jul 27, 2023
Does a change in CA19-9 indicate change in tumor?
is there a formula which converts % change in CA19-9 values to change in tumor dimensions?For example: if the difference between two CA19-9 readings is...
Support Group: Pancreatic Cancer
Last active: Nov 16, 2024
CA19 increase, gaining weight and feeling better - Confused
Diagnosed in Dec. 2023 - Stage 3 borderline resectable - CA19 217. Did 6 rounds of 5FU and CA19 went down to a low of...
Support Group: Pancreatic Cancer
Last active: May 11 10:57am
Pre-Whipple CA 19.9 levels. What was yours?
For those willing to share, what your CA 19.9 level just prior to Whipple surgery? Diagnosed about 10 months with pancreatic cancer at Stage 1B...
Support Group: Pancreatic Cancer
Last active: Mar 18, 2024
radiation begins next week
So my friend came through surgery ok, healed up good etc..got set up for radiation beginning next Wed...for 5.5 weeks.. he'll also be doing oral...
Support Group: Pancreatic Cancer
Last active: May 3, 2024
Pancreatic mass
Because of a BRCA gene variant, I had a pancreatic ultrasound done with my endoscopy. He found a mass on the pancreatic tail and did...
Support Group: Pancreatic Cancer
Last active: Sep 25, 2023
Questions about maintenance chemotherapy
After 6 rounds of chemo and my gallbladder surgery, my pancan stats are looking good--so of course, now I have more questions! As a reminder,...
Support Group: Pancreatic Cancer
Last active: Nov 7, 2023
Have had 38 cycles with Abraxane & Gemczar. CA19-9 rising.
I have had 3 years of chemo with Abraxane & Gemczar: 75 treatments with a break of 4 months 2024. My CA19-9 seems to have...
Support Group: Pancreatic Cancer
Last active: Aug 16 7:06am
PAC-MANN, New Diagnostic Blood Test?
I’ve have been reading about a number of new diagnostic blood tests for early detection of cancer, including PAC. Specifically a test called PAC-MANN which...
Support Group: Pancreatic Cancer
Last active: Apr 18 5:54pm
Who else has had Gem-Abraxane chemo regimen and for how long?
I am understanding this disease as I journey with my husband who had a distal pancreatectomy and splenectomy. No signs of active cancer activity anywhere...
Support Group: Pancreatic Cancer
Last active: Jan 4 12:00pm
CA19-9 going up and back pain at night - recurrence?
I was diagnosed with pancreatic cancer in July 2022 - stage III, borderline resectable. I had 12 treatments of FOLFIRINOX and followed by a Whipple...
Support Group: Pancreatic Cancer
Last active: Nov 16, 2023
Interesting case of new lesions, pain, but decreasing CA19-9
Yesterday I went to ER with intense and acute pain in my right side. After CT&US it was found that my previous lesion in liver...
Support Group: Pancreatic Cancer
Last active: Dec 31, 2024
How high a CA19-9 have you had/seen?
I’ve done a little reading to see general thoughts on prognosis with really high pre treatment CA19-9 levels. The highest I have seen was an...
Support Group: Pancreatic Cancer
Last active: May 28, 2024
Is it possible to have very high CEA and CA19-9 without cancer?
Hi, My husband was hospitalized with a mild stroke a couple of weeks ago. While admitted, they did a CT scan, which caught just enough...
Support Group: Pancreatic Cancer
Last active: Mar 9 3:48pm
I'm back: increasing CA19-9 was accurate indicator of recurrence.
I had posted back in mid-November that my CA19-9 levels had been increasing and I was experiencing back pains at night, but there was no...
Support Group: Pancreatic Cancer
Last active: Jun 3 3:49pm
Mom not responding to chemo
my mom just got her latest scans back and no change in tumor size. background story: my mom was dx with pc 3 years ago....
Support Group: Pancreatic Cancer
Last active: Dec 12, 2022
Lung Opacity seen on Chest CT scan
I had CTs of the chest and abdomen Wednesday (1/3). The abdomen report looks good. The radiologist said there are no new issues, and the...
Support Group: Pancreatic Cancer
Last active: Jan 14, 2024
Size of Cyst & Surgery?
In viewing a video from a doctor surgeon from St. Joseph’s (don’t remember the location), he mentioned that if the Cyst is larger than 5cm,...
Support Group: Pancreatic Cancer
Last active: Nov 5, 2023