Support Groups

Pancreatic Cancer Support Group

Public Support Group
496 total results
Discussions (40)
If you had Whipple surgery, what are you eating or not eating?
I am looking for help with diet after the whipple. I had the whipple 8 months ago. I am taking enzymes with meals and snacks...
Support Group: Pancreatic Cancer
Last active: Jun 5, 2023
Problems with enzymes and supplements
I am back again, 2 year survivor of Whipple. Have been unable to take Creon so started Metagentics spectra zyme pan 9x pancreatic enzyme. Help!!!...
Support Group: Pancreatic Cancer
Last active: Apr 8, 2023
Diarrhea tips?
Hello all, My mom (74/F) was diagnosed with pancreatic cancer a couple months ago. She has started chemo and is fighting hard. Her quality of...
Support Group: Pancreatic Cancer
Last active: Dec 25, 2022
Return of exocrine function?
As one of those currently having a love-hate relationship with Creon I'm wondering if anyone here has experienced any return of their own exocrine function...
Support Group: Pancreatic Cancer
Last active: Nov 27, 2023
How are others with pancreatic cancers managing diarrhea?
I am wondering how others with pancreatic cancers are managing diarrhea. I am using CREON and titrating it according to the amount of fat and...
Support Group: Pancreatic Cancer
Last active: Jul 5, 2020
Phantom smells?
Sorry to have yet another question for this group, but has anyone else experienced phantom smells? I'm on gemcitabine and abraxane for inoperable pancreatic adenocarcinoma,...
Support Group: Pancreatic Cancer
Last active: Mar 19, 2023
Has anyone had any experience taking the drug Ursodiol?
I am looking for feedback from anyone who has taken Ursodiol. My oncologist prescribed 300 mg twice a day for one month in the hopes...
Support Group: Pancreatic Cancer
Last active: 2 days ago
Sucrose intolerance in EPI?
Since being diagnosed with EPI, I have had an almost continuous feeling of bloating & gassiness. This is made much worse by Stevia, so that...
Support Group: Pancreatic Cancer
Last active: Jul 17, 2023
How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?
Husband was diagnosed with Pancreatic Cancer 2 days before Thanksgiving, 2023. Had the Whipple surgery 2 day before Christmas. He did quite well. Is on...
Support Group: Pancreatic Cancer
Last active: May 3, 2023
ongoing pain 1+ years post-whipple
My spouse was dx with pancreatic cancer almost 2 years ago. 2cm, no lymph node involvement. He had 7 rounds of FULFIRONOX prior to his...
Support Group: Pancreatic Cancer
Last active: Aug 20 10:47am
Chocolate &/or sugar cravings Stage IV Pancreatic AdenenoCA
Chocolate and/or sugar cravings in the setting of Stage IV Pancreatic Adenocarcinoma requiring Creon for E P I Has anyone “cracked this nut?” Sugar cravings...
Support Group: Pancreatic Cancer
Last active: Aug 25, 2023
"Cranky gut"
Background: 74 yo F diagnosed with pancreatic adenocarcinoma with lung mets last year; no certain risk factors, but as a retired doc I have my...
Support Group: Pancreatic Cancer
Last active: Sep 1, 2023
What's next after folfirinox?
My husband is on #11 (next Monday) of 12 cycles of folfirinox. Dr has said he is throwing the whole kitchen sink at him with...
Support Group: Pancreatic Cancer
Last active: May 6 10:28am
Skin sensory sensitivity
Background: now 74 yo previously reasonably healthy with history of I B S managed by diet; diagnosed last year with inoperable pancreatic adenocarcinoma; now being...
Support Group: Pancreatic Cancer
Last active: Apr 21, 2023
Digestive issues and pancreatic cancer
I was diagnosed with endocrine pancreatic carcinoma in late December, 2017. I began Gemcitibine/abraxane to, hopefully, shrink the tumor on the tail of my pancreas...
Support Group: Pancreatic Cancer
Last active: Sep 15, 2022
Total Pancreatectomy
Hello everyone! I am brand new to this site so please bear with me! I am a 31 year old female and here is my...
Support Group: Pancreatic Cancer
Last active: Apr 1, 2023
What is it like after Whipple surgery plus 1 1/2 years?
<p>Hello to everyone! I have not posted on this site for some time, but realize there are continually those folks who are facing pancreatic cancer,...
Support Group: Pancreatic Cancer
Last active: Aug 8, 2023
Duct to pancreas has narrowed: Need a stent
I have a narrowed duct and scar tissue on the duct to pancreas. That is why the Ceron and eating has been so painful. Tuesday...
Support Group: Pancreatic Cancer
Last active: May 24, 2023
Problems with Dehydration: What do you do to keep hydrated?
A two year whipple survivor having problems with enzymes. Ceron. Because of my issues, bloating, bowel dumping, stomach pain. I become dehydrated and have to...
Support Group: Pancreatic Cancer
Last active: Jul 6, 2023
Having constant pancreatic attacks
Reaching out to others to see if any of the pc community has attacks, I just had one for 9 days. My dr is going...
Support Group: Pancreatic Cancer
Last active: Sep 7, 2023