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Pancreatic Cancer Support Group

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Discussions (48)
Lots of oil when going to the bathroom?
Husband had Whipple surgery in December 2022 followed by chemo for 6 months. He's doing well..........the only problem is the huge amount of oil when...
Support Group: Pancreatic Cancer
Last active: Sep 24, 2023
If you had Whipple surgery, what are you eating or not eating?
I am looking for help with diet after the whipple. I had the whipple 8 months ago. I am taking enzymes with meals and snacks...
Support Group: Pancreatic Cancer
Last active: Jun 5, 2023
Pancreatic enzymes: They are expensive, any suggestions?
I had the Whipple procedure almost 3 years ago. I had no cancer. I read people who had this surgery should take creon or similar...
Support Group: Pancreatic Cancer
Last active: Jun 7, 2025
Whipple and changes in cholesterol
Had my Whipple November 23. Seem to be doing well with Creon and eating but have discovered my cholesterol which before the Whipple ran around...
Support Group: Pancreatic Cancer
Last active: Feb 21 8:40pm
Diarrhea tips?
Hello all, My mom (74/F) was diagnosed with pancreatic cancer a couple months ago. She has started chemo and is fighting hard. Her quality of...
Support Group: Pancreatic Cancer
Last active: Dec 25, 2022
Problems with enzymes and supplements
I am back again, 2 year survivor of Whipple. Have been unable to take Creon so started Metagentics spectra zyme pan 9x pancreatic enzyme. Help!!!...
Support Group: Pancreatic Cancer
Last active: Apr 8, 2023
Does anyone with pancreatic cancer have chronic diarrhea?
My husband was diagnosed with acinar cell pancreatic cancer of the head Oct 11 2024 he started with diarrhea prior to diagnosis May 2024 with...
Support Group: Pancreatic Cancer
Last active: Apr 18 1:07pm
How are others with pancreatic cancers managing diarrhea?
I am wondering how others with pancreatic cancers are managing diarrhea. I am using CREON and titrating it according to the amount of fat and...
Support Group: Pancreatic Cancer
Last active: Jul 5, 2020
Return of exocrine function?
As one of those currently having a love-hate relationship with Creon I'm wondering if anyone here has experienced any return of their own exocrine function...
Support Group: Pancreatic Cancer
Last active: Nov 27, 2023
Phantom smells?
Sorry to have yet another question for this group, but has anyone else experienced phantom smells? I'm on gemcitabine and abraxane for inoperable pancreatic adenocarcinoma,...
Support Group: Pancreatic Cancer
Last active: Mar 19, 2023
Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen
Please help, my son went to ED thought gallbladder found PNET pancreatic cancer in tail and spleen 8 cm tumor also in 4 lymph nodes...
Last active: Nov 25, 2025
Sucrose intolerance in EPI?
Since being diagnosed with EPI, I have had an almost continuous feeling of bloating & gassiness. This is made much worse by Stevia, so that...
Support Group: Pancreatic Cancer
Last active: Jul 17, 2023
Has anyone had any experience taking the drug Ursodiol?
I am looking for feedback from anyone who has taken Ursodiol. My oncologist prescribed 300 mg twice a day for one month in the hopes...
Support Group: Pancreatic Cancer
Last active: Nov 27, 2024
How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?
Husband was diagnosed with Pancreatic Cancer 2 days before Thanksgiving, 2023. Had the Whipple surgery 2 day before Christmas. He did quite well. Is on...
Support Group: Pancreatic Cancer
Last active: May 3, 2023
ongoing pain 1+ years post-whipple
My spouse was dx with pancreatic cancer almost 2 years ago. 2cm, no lymph node involvement. He had 7 rounds of FULFIRONOX prior to his...
Support Group: Pancreatic Cancer
Last active: Jul 25, 2025
Dizziness from SIBO, diet advice
I was diagnosed with Pancreatic Cancer 20 months ago, had the whipple, followed by 6 months of chemo. I have been cancer free for 19...
Support Group: Pancreatic Cancer
Last active: Aug 20, 2023
Chocolate &/or sugar cravings Stage IV Pancreatic AdenenoCA
Chocolate and/or sugar cravings in the setting of Stage IV Pancreatic Adenocarcinoma requiring Creon for E P I Has anyone “cracked this nut?” Sugar cravings...
Support Group: Pancreatic Cancer
Last active: Aug 25, 2023
"Cranky gut"
Background: 74 yo F diagnosed with pancreatic adenocarcinoma with lung mets last year; no certain risk factors, but as a retired doc I have my...
Support Group: Pancreatic Cancer
Last active: Sep 1, 2023
What's next after folfirinox?
My husband is on #11 (next Monday) of 12 cycles of folfirinox. Dr has said he is throwing the whole kitchen sink at him with...
Support Group: Pancreatic Cancer
Last active: May 6, 2024
Relationships with our doctors
Today I told my oncologist I was a 10-year survivor — it made her day. It made me think about our relationships with our doctors....
Support Group: Pancreatic Cancer
Last active: Feb 26 11:03am