Support Groups

Pancreatic Cancer Support Group

Public Support Group
694 total results
Discussions (46)
Fear pancreatic cancer oncologist may discontinue care
My relative has had radiation and multiple standard chemo treatments. We are interested in exploring clinical trials. There are dozens offered currently at the facility...
Support Group: Pancreatic Cancer
Last active: Mar 18 9:18pm
Anyone in Clinical trial for MEK Inhibitor IMM-1-104. NCT05585320?
Has anyone participated or currently participating in this clinical trial? Everything I have found looks promising. I’m considering participating in this study. The good thing...
Support Group: Pancreatic Cancer
Last active: 6 days ago
ONIVYDE irinotecan liposome
Has anyone here been treated with Onivyde? After 10 treatments with gemcitibine/abraxane/cisplaten and 8 treatments with gemcitibine/abraxane, my wife's CA19-9 is still climbing and a...
Support Group: Pancreatic Cancer
Last active: Dec 20, 2021
Clinical trial for AOH1966 targeting "all" solid tumors
"City of Hope scientists develop targeted chemotherapy able to kill all solid tumors in preclinical research" It's only early in a phase-1 trial at two...
Support Group: Pancreatic Cancer
Last active: Nov 25, 2023
Do you record your appointments?
I know my limitations. While I’m with my wife/patient, I think about how to spell Flowfirnox and Oxoliplatin and neuropathy and Whipple surgery. What do...
Support Group: Pancreatic Cancer
Last active: May 13 2:52pm
Met my new oncologist yesterday
I've posted twice about my frustrations with my first oncologist. I asked for a referral to another MD, and yesterday (Fri 7/14) we met for...
Support Group: Pancreatic Cancer
Last active: Jul 16, 2023
Has anyone had Folfirinox stop working and had to start a new chemo dr
I have stage IV pancreatic cancer. I had a cyst which turned out to be cancerous. Long story short, I had 20 sessions of Folfirinox...
Support Group: Pancreatic Cancer
Last active: May 10, 2024
Promising news on targeting KRAS G12D mutations
[Edit: As noted in another thread, the Guardant 360 blood test never identified a KRAS G12D mutation in my sample, but a Tempus tissue test...
Support Group: Pancreatic Cancer
Last active: Jan 8 8:51am
Pediatric neuroblastoma in the pancreas
mi child 5 year old has a bib mas of neuroblastoma in the pancreas i want to avoid surgery can any one help me get...
Support Group: Pancreatic Cancer
Last active: Jul 13 5:37pm
Anyone had CAR-T therapy for solid tumors? (pancreatic cancer)
Hello! I am a probable candidate for a clinical trial of CAR-T cell therapy for pancreatic cancer. Is there anyone who has experience with this...
Last active: Mar 15 12:04am
Searching for Suburban Cancer Clinics
I am looking for suburban cancer clinics that are situated where patients in rural areas and under-served communities would have access. An additional plus would...
Support Group: Pancreatic Cancer
Last active: Aug 1, 2024
Question about CT scan
Hello everyone, my Mom has a very rare form of pancreatic cancer and is currently on a clinical trial targeting the genetic fusion driving her...
Support Group: Pancreatic Cancer
Last active: May 25, 2023
Any experiences with Nivolumab and/or Ipilimumab treatment?
Hi everyone, my Mom is supposed to start a clinical trial next week that involves the use of two immunotherapy drugs- Nivolumab and Ipilimumab. Does...
Support Group: Pancreatic Cancer
Last active: Dec 17, 2023
Change of Chemo
Question...brother has been on folfirinox for about 9.5 months. Recently...although no new spots...a couple of spots have grown a tiny bit. We are contemplating doing...
Support Group: Pancreatic Cancer
Last active: Mar 24, 2024
treatment for liver mets
recap: my wife had aborted Whipple 7/22/24 due to SMV involvement. We decided on SMART radiation therapy for 9/6/24, but this had to be cancelled...
Support Group: Pancreatic Cancer
Last active: Sep 19, 2024
Negative Turn in a Long Journey
I was diagnosed with PC in March 2023 just after my 60th birthday, and have frequently checked this forum, read most of the posts and...
Support Group: Pancreatic Cancer
Last active: 5 hours ago
Help with low albumin numbers
Hello everyone, my Mom has advanced pancreatic cancer and is currently on an immunotherapy/vaccine clinical trial. Her latest blood results last week showed very low...
Support Group: Pancreatic Cancer
Last active: Jul 10, 2023
Successful treatment of recurrence?
I had successful treatment in 2021, completing in 2022. Whipple, adjuvant Folfirinox 6 1/2 months, brief SBRT for undetermined hazy mass in pancreatic bed. I...
Support Group: Pancreatic Cancer
Last active: Mar 9, 2023
Protein Powders, Calorie Boosters, Appetite Stimulation?
Hi, all. Looking for recommendations on protein powders, calorie boosters, appetite stimulators. My father has metastatic disease and has been off of therapy for 2...
Support Group: Pancreatic Cancer
Last active: Aug 9, 2023
Advice needed about my Mom
Hello everyone, my Mom was diagnosed with a rare form of pancreatic cancer (arising from an Intraductual Oncocytic Papillary Neoplasm) in July 2020. She had...
Support Group: Pancreatic Cancer
Last active: Mar 20, 2023