Support Groups

Pancreatic Cancer Support Group

Public Support Group
529 total results
Discussions (37)
Met my new oncologist yesterday
I've posted twice about my frustrations with my first oncologist. I asked for a referral to another MD, and yesterday (Fri 7/14) we met for...
Support Group: Pancreatic Cancer
Last active: Jul 16, 2023
Has anyone had Folfirinox stop working and had to start a new chemo dr
I have stage IV pancreatic cancer. I had a cyst which turned out to be cancerous. Long story short, I had 20 sessions of Folfirinox...
Support Group: Pancreatic Cancer
Last active: May 10 11:52am
Promising news on targeting KRAS G12D mutations
[Edit: As noted in another thread, the Guardant 360 blood test never identified a KRAS G12D mutation in my sample, but a Tempus tissue test...
Support Group: Pancreatic Cancer
Last active: Mar 23 11:08pm
Searching for Suburban Cancer Clinics
I am looking for suburban cancer clinics that are situated where patients in rural areas and under-served communities would have access. An additional plus would...
Support Group: Pancreatic Cancer
Last active: Aug 1 12:42pm
treatment for liver mets
recap: my wife had aborted Whipple 7/22/24 due to SMV involvement. We decided on SMART radiation therapy for 9/6/24, but this had to be cancelled...
Support Group: Pancreatic Cancer
Last active: Sep 19 10:18am
Question about CT scan
Hello everyone, my Mom has a very rare form of pancreatic cancer and is currently on a clinical trial targeting the genetic fusion driving her...
Support Group: Pancreatic Cancer
Last active: May 25, 2023
Any experiences with Nivolumab and/or Ipilimumab treatment?
Hi everyone, my Mom is supposed to start a clinical trial next week that involves the use of two immunotherapy drugs- Nivolumab and Ipilimumab. Does...
Support Group: Pancreatic Cancer
Last active: Dec 17, 2023
Change of Chemo
Question...brother has been on folfirinox for about 9.5 months. Recently...although no new spots...a couple of spots have grown a tiny bit. We are contemplating doing...
Support Group: Pancreatic Cancer
Last active: Mar 24 12:11pm
Help with low albumin numbers
Hello everyone, my Mom has advanced pancreatic cancer and is currently on an immunotherapy/vaccine clinical trial. Her latest blood results last week showed very low...
Support Group: Pancreatic Cancer
Last active: Jul 10, 2023
Successful treatment of recurrence?
I had successful treatment in 2021, completing in 2022. Whipple, adjuvant Folfirinox 6 1/2 months, brief SBRT for undetermined hazy mass in pancreatic bed. I...
Support Group: Pancreatic Cancer
Last active: Mar 9, 2023
Protein Powders, Calorie Boosters, Appetite Stimulation?
Hi, all. Looking for recommendations on protein powders, calorie boosters, appetite stimulators. My father has metastatic disease and has been off of therapy for 2...
Support Group: Pancreatic Cancer
Last active: Aug 9, 2023
Advice needed about my Mom
Hello everyone, my Mom was diagnosed with a rare form of pancreatic cancer (arising from an Intraductual Oncocytic Papillary Neoplasm) in July 2020. She had...
Support Group: Pancreatic Cancer
Last active: Mar 20, 2023
New diagnosis: locally advanced pancreatic cancer
I'm new to the Mayo board, but not a Mayo patient and not in MN. This week I received a new diagnosis of locally advanced...
Support Group: Pancreatic Cancer
Last active: Aug 17, 2023
PARP inhibitors and Maintenance Drugs
I have stage 4 pancreatic cancer and have just completed my 11th round of chemo. I have a BRCA2 gene mutation. So far, the chemo...
Support Group: Pancreatic Cancer
Last active: Jun 2 1:11am
Tumour on pancreas 6cm, tumour markers 120,000: Need advice
My husband had a mass on pancreas 1-1/2 yrs ago but we were told to leave it and monitor by mri. 9 months after last...
Support Group: Pancreatic Cancer
Last active: Jun 19 7:54am
Questions about maintenance chemotherapy
After 6 rounds of chemo and my gallbladder surgery, my pancan stats are looking good--so of course, now I have more questions! As a reminder,...
Support Group: Pancreatic Cancer
Last active: Nov 7, 2023
Biomarker mutations question
Hello I recently had the Tempus 684 gene panel done to identify biomarker mutations. I would be interested in hearing from others who have had...
Support Group: Pancreatic Cancer
Last active: Aug 7 12:06pm