Pancreatic Cancer Support Group

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Comments (418)

My husband celebrated his one year Whipple surgery in February. He had a “rarest of rare...

https://connect.mayoclinic.org/comment/257698/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Apr 11, 2019

My husband was diagnosed with pancreatic cancer in May 1025. He had the whipple surgery. Very...

https://connect.mayoclinic.org/comment/1579045/

Discussion: What tips do you have for the caregiver after a total pancreatectomy?

Support Group: Caregivers

Posted: 2 days ago

My husband just finished his Chemo treatments w/ Folfirinox 3 weeks ago. He had the Whipple...

https://connect.mayoclinic.org/comment/946924/

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: Oct 13, 2023

I don’t know what worked. The Imodium did make a difference. Maybe increasing the Zenpep helped....

https://connect.mayoclinic.org/comment/1033408/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Mar 14, 2024

P.S. to my reply to you. If you take 2/3 Imodium each day. When are you...

https://connect.mayoclinic.org/comment/891715/

Discussion: Post Whipple Surgery incontinence - Underwear?

Support Group: Pancreatic Cancer

Posted: Jul 7, 2023

@beachdog, @fassbinder, @marvinjsturing, and others. I know you have all been discussing supplements to help with...

https://connect.mayoclinic.org/comment/208595/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 20, 2020

Where are you being treated? I am currently at Mayo in Rochester. My oncologist is "driving...

https://connect.mayoclinic.org/comment/1230664/

Discussion: Recently Diagnosed with Stage IV Adenocarcinoma

Support Group: Pancreatic Cancer

Posted: Feb 6, 2025

That’s interesting. I stay away from processed foods as much as possible, I read every label...

https://connect.mayoclinic.org/comment/1189965/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Dec 13, 2024

My husband had 4 cycles of Nalirifox. He had unrelenting diarrhea and was in a continuous...

https://connect.mayoclinic.org/comment/1442176/

Discussion: NALIRI(FOX): What side effects are you experiencing?

Support Group: Pancreatic Cancer

Posted: Nov 18, 2025

I have been told by my surgeon that I need to get a Whipple due to...

https://connect.mayoclinic.org/comment/1057465/

Discussion: Expert help with proper dosing of Zenpep enzymes after Whipple

Support Group: Pancreatic Cancer

Posted: Apr 26, 2024

I just finished 25 treatments of this combination. It was easier than any of the other...

https://connect.mayoclinic.org/comment/972051/

Discussion: Your experience with IMRT (radiation) + capecitebine (oral chemo)?

Support Group: Pancreatic Cancer

Posted: Nov 29, 2023

Wow. You are amazing. Thanks for sharing. I have gone from 145 to 107 and have...

https://connect.mayoclinic.org/comment/850786/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: Apr 28, 2023

@katieliz Hi! My mom had platelets and RBC infusion fur to having to severe bleeding rather...

https://connect.mayoclinic.org/comment/1429364/

Discussion: Pancreatic Cancer Recurrence after Whipple

Support Group: Pancreatic Cancer

Posted: Nov 2, 2025

My understanding is that if you have PC your pancreas may not be putting out enough...

https://connect.mayoclinic.org/comment/1405425/

Discussion: Creon - am I taking too much or too little?

Support Group: Pancreatic Cancer

Posted: Sep 30, 2025

According to my husband’s Oncologist, oily stools mean an increase in Enzymes is needed. He had...

https://connect.mayoclinic.org/comment/934777/

Discussion: Lots of oil when going to the bathroom?

Support Group: Pancreatic Cancer

Posted: Sep 23, 2023

Disconnecting the pump is only if we want to do so, and we do, given the...

https://connect.mayoclinic.org/comment/871349/

Discussion: Nothing left to offer in the way of therapy?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2023

My whipple was preformed almost 9 1/2 years ago and lost over 100lbs within a few...

https://connect.mayoclinic.org/comment/326774/

Discussion: Digestive issues and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Feb 12, 2021

I was prescribed Vital Nutrients pancreatic enzymes by the naturopathic doctor when I was first diagnosed....

https://connect.mayoclinic.org/comment/208606/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 12, 2020

I don't qualify for the Whipple, but I can relate to being so sick after chemo...

https://connect.mayoclinic.org/comment/860963/

Discussion: So sick after first round of chemo: What can I do to help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

I worked with a naturopathic doctor (holistic health professional) and an acupuncturist and had one to...

https://connect.mayoclinic.org/comment/833488/

Discussion: Navigating the chemotherapy window between treatments: Your tips

Support Group: Pancreatic Cancer

Posted: Mar 28, 2023

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