Pancreatic Cancer Support Group

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Comments (456)

May I ask how much creon are you taken per meal? Do you have bloating, belly...

https://connect.mayoclinic.org/comment/971188/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2023

As for the expense of pancreatic enzymes…..I have used Creon and am now using Zenpep. There...

https://connect.mayoclinic.org/comment/986745/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Dec 26, 2023

if you can contact me I may be able to help. My wife passed away July...

https://connect.mayoclinic.org/comment/769292/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2022

@lgk2948 If you are not able to get reduced cost through the Creon website, you might...

https://connect.mayoclinic.org/comment/953290/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Oct 24, 2023

I’m so sorry she’s having so much trouble. I take up to 4 Creon pills every...

https://connect.mayoclinic.org/comment/981949/

Discussion: How to deal with stomach problems

Support Group: Pancreatic Cancer

Posted: Dec 17, 2023

Thanks. PC has made me diabetic type 2. I will have to learn how to balance...

https://connect.mayoclinic.org/comment/985313/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

My sister tried getting Creon from our small town pharmacy and they want $1500!!! stupid crazy!...

https://connect.mayoclinic.org/comment/1031870/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Mar 11 3:56pm

My wife isn't a good barometer for judging the effectiveness of digestive drugs. She only has...

https://connect.mayoclinic.org/comment/736735/

Discussion: How can I help my husband face the possibility he may not survive?

Support Group: Pancreatic Cancer

Posted: Aug 12, 2022

I tried to get hepf but don’t meet requirements 1,900 is way too much any suggested....

https://connect.mayoclinic.org/comment/938421/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Sep 28, 2023

I see a hepatobiliary dietician at MSKCC. She has been very helpful especially with dealing with...

https://connect.mayoclinic.org/comment/860592/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

@gardenlady1116 , You are way tougher than I am! I had no true complications from my...

https://connect.mayoclinic.org/comment/1013790/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 11 12:55pm

For the first year and a half I lost a tremendous amount of weight after my...

https://connect.mayoclinic.org/comment/1173213/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: 4 days ago

Creon as well as any of the pancrealipase products need to be optimized based on the...

https://connect.mayoclinic.org/comment/982329/

Discussion: How to deal with stomach problems

Support Group: Pancreatic Cancer

Posted: Dec 17, 2023

My oncologist prescribed the Creon. Saved my life my body was melting down. The hepato pancreatic...

https://connect.mayoclinic.org/comment/1045152/

Discussion: Anyone experiencing malabsorption?

Support Group: Pancreatic Cancer

Posted: Apr 4 8:52am

All the luck to you and your bucket list. I was able to do the things...

https://connect.mayoclinic.org/comment/1090330/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 20 9:05am

Is he taking creon before he eats? I ate chicken noodle soup to start and egg...

https://connect.mayoclinic.org/comment/951682/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Oct 21, 2023

If you go to creon website you can get it ay a discount. We've gotten 2...

https://connect.mayoclinic.org/comment/285220/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jul 14, 2020

I had a complete pancreatectomy, spleen, duodenum, partial stomach, etc. Take Creon with any food. Doing...

https://connect.mayoclinic.org/comment/1101401/

Discussion: Bird picking at food after Whipple surgery and Creon

Support Group: Pancreatic Cancer

Posted: Jul 8 6:57am

Did creon help you with the cost? We have gotten a coupon for 5/month. Don't know...

https://connect.mayoclinic.org/comment/208596/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 1, 2020

So far, I have not had any recovery of exocrine function (-almost 2 1/2 years since...

https://connect.mayoclinic.org/comment/884033/

Discussion: Return of exocrine function?

Support Group: Pancreatic Cancer

Posted: Jun 24, 2023

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