Pancreatic Cancer Support Group

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Comments (548)

Good luck on the neuropathy. Many people looking for answers. Some on drug combos with gabapetin...

https://connect.mayoclinic.org/comment/1392033/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: 2 days ago

There is a coupon through the creon website that gives a month for $5 instead of...

https://connect.mayoclinic.org/comment/208598/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 1, 2020

@beachdog I have not tried anything but Creon, but GoodRX has a list of drugs for...

https://connect.mayoclinic.org/comment/291997/

Discussion: Struggling to eat with pancreatic cancer: How do you manage?

Support Group: Pancreatic Cancer

Posted: Apr 20, 2020

I've been on Creon for a year. I can't eat without it. No more bad smelling...

https://connect.mayoclinic.org/comment/1279008/

Discussion: IPMNs, concerned for diffuse pancreatic parenchymal atrophy

Support Group: Pancreatic Cancer

Posted: Apr 10 11:23pm

Wow. You are amazing. Thanks for sharing. I have gone from 145 to 107 and have...

https://connect.mayoclinic.org/comment/850786/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: Apr 28, 2023

I showed my oncologist the Pancreatic Enzyme Formula (by Pure) Supplement Facts sheet and he said...

https://connect.mayoclinic.org/comment/901543/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 24, 2023

I get Creon from Abbvie Assist for free each month. You email them, they send you...

https://connect.mayoclinic.org/comment/897142/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 17, 2023

If you go to the Creon website, there is a link for co-pay assistance. I think...

https://connect.mayoclinic.org/comment/951564/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Oct 21, 2023

I have loose motion and high blood sugars from taking Creon. I am having to take...

https://connect.mayoclinic.org/comment/1079348/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2024

I was diagnosed with stage 3 pancreatic cancer in jan 2021. I have had Whipple surgery...

https://connect.mayoclinic.org/comment/852944/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 2, 2023

Thanks for sharing. I too have all kinds of trouble with Creon that I'm taking for...

https://connect.mayoclinic.org/comment/828961/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Mar 20, 2023

My results after 5 days hiding the over the counter enzyme replacement tablets…they seem to work...

https://connect.mayoclinic.org/comment/904444/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 30, 2023

Hello crickard70! Are you the one who had a total pancreatectomy around Nov. 21? I was...

https://connect.mayoclinic.org/comment/971744/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

May I ask how much creon are you taken per meal? Do you have bloating, belly...

https://connect.mayoclinic.org/comment/971188/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2023

Exactly! Being alive is what matters! I am also on Creon, b/c most of my pancreas...

https://connect.mayoclinic.org/comment/866063/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2023

As for the expense of pancreatic enzymes…..I have used Creon and am now using Zenpep. There...

https://connect.mayoclinic.org/comment/986745/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Dec 26, 2023

@lgk2948 If you are not able to get reduced cost through the Creon website, you might...

https://connect.mayoclinic.org/comment/953290/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Oct 24, 2023

if you can contact me I may be able to help. My wife passed away July...

https://connect.mayoclinic.org/comment/769292/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2022

How long can you go on Creon capsules ? Hubby taking it 25000 3 times a...

https://connect.mayoclinic.org/comment/953371/

Discussion: Creon capsule too large to swallow: Any tips?

Support Group: Pancreatic Cancer

Posted: Oct 24, 2023

Hi @ayeo - I have been using Creon for almost 6 years now post pancreatectomy. It...

https://connect.mayoclinic.org/comment/1244227/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Feb 24 6:08am

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