Pancreatic Cancer Support Group

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Comments (688)

No advice, but thank you for sharing your story. Finding out more about the trial seems...

https://connect.mayoclinic.org/comment/823356/

Discussion: Successful treatment of recurrence?

Support Group: Pancreatic Cancer

Posted: Mar 9, 2023

Just a note, the Naliri has not worked for me. Spread to multiple lesions in the...

https://connect.mayoclinic.org/comment/1371714/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Aug 16 8:02am

I’m going through the pre-testing required for a clinical trial at Mayo MN now. You may...

https://connect.mayoclinic.org/comment/1316405/

Discussion: I'm back: increasing CA19-9 was accurate indicator of recurrence.

Support Group: Pancreatic Cancer

Posted: May 30 9:36am

This is very very good news that the folfurinox worked so well for you. I am...

https://connect.mayoclinic.org/comment/1162463/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Oct 25, 2024

I've had the same problem with my oncologist.I've been looking for a clinical trial for almost...

https://connect.mayoclinic.org/comment/860567/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

I am in a Clinical Trial (you need a doctor's request for this). Talk to your...

https://connect.mayoclinic.org/comment/925336/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2023

I wish there were more leniency in accepting a few patients into trials that might benefit...

https://connect.mayoclinic.org/comment/1213970/

Discussion: Obstacles to clinical trials

Support Group: Pancreatic Cancer

Posted: Jan 15 3:06pm

I am doing well. My husband and I went in a 6000 mile driving trip to...

https://connect.mayoclinic.org/comment/166006/

Discussion: Talking Frankly about Living with Advanced Cancer

Support Group: Cancer

Posted: Sep 13, 2018

@amchurch, you may also be interested in these related discussions: - Anyone on Gemcitabine with Abraxane?...

https://connect.mayoclinic.org/comment/1039185/

Discussion: Change of Chemo

Support Group: Pancreatic Cancer

Posted: Mar 23, 2024

look for clinical trials.Sometimes thats our only hope other than a miracle intervention.I'm followong both.I found...

https://connect.mayoclinic.org/comment/870793/

Discussion: Nothing left to offer in the way of therapy?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2023

Thanks, Nae. Here’s the link to the study for anyone interested - A Study to Evaluate...

https://connect.mayoclinic.org/comment/690134/

Discussion: Anyone had Pancreatic Cancer in the head of the pancreas?

Support Group: Pancreatic Cancer

Posted: Mar 16, 2022

You're correct that BRCA1 and 2 are not mismatch repair genes. As far as I know,...

https://connect.mayoclinic.org/comment/1083936/

Discussion: Any clinical trial with Keytruda (pembrolumizab) for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jun 9, 2024

This is a good starting link for ATM and PARP inhibitors- https://www.facingourrisk.org/info/hereditary-cancer-and-genetic-testing/hereditary-cancer-genes-and-risk/genes-by-name/atm/cancer-treatment There are a number...

https://connect.mayoclinic.org/comment/835872/

Discussion: Treatment options for pancreatic cancer stage 4?

Support Group: Pancreatic Cancer

Posted: Apr 1, 2023

My pancreatic cancer metastasized to my peritoneal lining. I just had my 7th round of chemo...

https://connect.mayoclinic.org/comment/1339466/

Discussion: Anyone in Clinical trial for MEK Inhibitor IMM-1-104. NCT05585320?

Support Group: Pancreatic Cancer

Posted: Jul 2 4:33am

@cathyras, if you would like to inquire about a second opinion at Mayo Clinic, here's how...

https://connect.mayoclinic.org/comment/761470/

Discussion: Question on Chemo: How often? At Mayo or locally administered?

Support Group: Pancreatic Cancer

Posted: Oct 15, 2022

I am looking for a clinical trial so let us know how your test results turn...

https://connect.mayoclinic.org/comment/777493/

Discussion: Anyone been on a clinical trial of Immunotherapy and Niraparib?

Support Group: Pancreatic Cancer

Posted: Nov 26, 2022

Hello @nogginquest I was noticing that it has been a while since we had a post...

https://connect.mayoclinic.org/comment/166005/

Discussion: Talking Frankly about Living with Advanced Cancer

Support Group: Cancer

Posted: Sep 12, 2018

What are your thoughts on having SBRT performed on a handful of small liver lesions and...

https://connect.mayoclinic.org/comment/1313342/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 26 12:20pm

Hi, wpprescott ! I had my Whipple surgery in October of 2024 while I was open...

https://connect.mayoclinic.org/comment/1351065/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Jul 18 1:22pm

Oh, sorry. Forgot the other part of the question. She was diagnosed at state 2b. Had...

https://connect.mayoclinic.org/comment/1205339/

Discussion: Signatera CT DNA Test: What numbers have you seen on your tests?

Support Group: Pancreatic Cancer

Posted: Jan 6 12:32pm

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