Pancreatic Cancer Support Group

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Comments (865)

I find that with each day removed from the treatment, my digestive system improves, but I...

https://connect.mayoclinic.org/comment/779040/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 30, 2022

I have had five Folferinox treatments to date for my stage 1 pancreatic cancer. Usually, for...

https://connect.mayoclinic.org/comment/778630/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 29, 2022

Hi Yaya, as another commenter has said, everyone reacts differently to chemo. Fatigue is consistent, but...

https://connect.mayoclinic.org/comment/797903/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 17, 2023

The discomfort could be post Whipple as much as Chemo. I did about 2-3 weeks post...

https://connect.mayoclinic.org/comment/677872/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Feb 5, 2022

Hi all, I guess I should post an intro since I jumped in with other posts...

https://connect.mayoclinic.org/comment/285194/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 20, 2020

Yes, my wife was originally a candidate in the Johns Hopkins vaccine clinical trial but after...

https://connect.mayoclinic.org/comment/285192/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 20, 2020

She was taking Creon. Started taking around her 8th folfironox cycle (she had 9 total) then...

https://connect.mayoclinic.org/comment/208586/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 19, 2020

I hope all went well. I had modified Folferinox for six months recently. The Zofran helped...

https://connect.mayoclinic.org/comment/849034/

Discussion: First chemo tomorrow--tips, suggestions, cautions?

Support Group: Pancreatic Cancer

Posted: Apr 25, 2023

Good suggestions. When I was on Folferinox, the Friday that I had pump removed, I had...

https://connect.mayoclinic.org/comment/892562/

Discussion: What to expect from Gemcitibine chemo/radiation?

Support Group: Pancreatic Cancer

Posted: Jul 9, 2023

Another option is to reduce the dosage from 100% Maximum Tolerable Dose to 75% or 80%...

https://connect.mayoclinic.org/comment/904304/

Discussion: Changing chemo regimen after 4 cycles of Folfirinox?

Support Group: Pancreatic Cancer

Posted: Jul 29, 2023

Did he do chemo prior to the surgery? Great that he is able to go right...

https://connect.mayoclinic.org/comment/905513/

Discussion: Anyone had pancreatic cancer mets to lymph nodes only?

Support Group: Pancreatic Cancer

Posted: Aug 1, 2023

Like you my markers increased. Had a meet with my oncologist today and bad news. A...

https://connect.mayoclinic.org/comment/857761/

Discussion: 12 months free of disease with clear CT scans: What is next?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

Thank you Markymark for that info. My husband had 7 rounds of fulfironox, which didn't reduce...

https://connect.mayoclinic.org/comment/872491/

Discussion: Giving hope: 5 year celebration pancreatic cancer-free

Support Group: Pancreatic Cancer

Posted: Jun 4, 2023

@kjc12 , Yes, I did 12 rounds of biweekly mFolfirinox in the six months before the...

https://connect.mayoclinic.org/comment/896793/

Discussion: CEA and CA19-9 Results as Predictors of Treatment Outcome

Support Group: Pancreatic Cancer

Posted: Jul 16, 2023

I am 2/3rd’s of the way done with my mFolfirinox regimen. The first one was the...

https://connect.mayoclinic.org/comment/920718/

Discussion: He starts chemo: Now what do I expect?

Support Group: Pancreatic Cancer

Posted: Aug 29, 2023

Everybody is different, no cases it seems are identical, but my experience is that in July...

https://connect.mayoclinic.org/comment/922478/

Discussion: Monitoring a Pancreatic Cyst?

Support Group: Pancreatic Cancer

Posted: Sep 1, 2023

On the topic of platelets, the chemo brought mine down extremely low, below 10, several times....

https://connect.mayoclinic.org/comment/869061/

Discussion: Low Platelets: Anyone else go through this?

Support Group: Pancreatic Cancer

Posted: May 30, 2023

Did they discuss Gemzar for your mom? Folfurinox can be very tough but most find Gemzar...

https://connect.mayoclinic.org/comment/1053339/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 18 7:52pm

I completely agree with all of your comments regarding the importance of hydration. Unfortunately, my husband...

https://connect.mayoclinic.org/comment/850571/

Discussion: Pancreatic Cancer - Has anyone had experience with Metabolic Oncology?

Support Group: Pancreatic Cancer

Posted: Apr 27, 2023

My dad began on the Folfurinox 5fu- chemo regimen. Then switched to the Gem/Abrax. We tried...

https://connect.mayoclinic.org/comment/958875/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2023

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