Pancreatic Cancer Support Group

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Comments (776)

pendesk, do you mind if I ask whether you mean Kimmel Center at U of MD?...

https://connect.mayoclinic.org/comment/891281/

Discussion: Struggling with my MD's style

Support Group: Pancreatic Cancer

Posted: Jul 6, 2023

thanks for that connection. I usually do try and write down my questions for drs and...

https://connect.mayoclinic.org/comment/888114/

Discussion: Anyone have experience with total parenteral nutrition with PC?

Support Group: Pancreatic Cancer

Posted: Jul 1, 2023

The number of rounds for Folfirinox being 12 is based on a committee of pancreatic oncologists...

https://connect.mayoclinic.org/comment/884186/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Jun 24, 2023

'Hi @johnbc, like @mayoconnectuser1 said, all major cancer centers are researching new treatment options for cancer....

https://connect.mayoclinic.org/comment/867267/

Discussion: Pancreatic Cancer Vaccine Therapy (Immunotherapy): What are the facts?

Support Group: Pancreatic Cancer

Posted: May 26, 2023

I had a BD-IPMN discovered 5 years ago during a routine surveillance scan as I had...

https://connect.mayoclinic.org/comment/862501/

Discussion: Anyone have/had BD-IPMN (branch duct intraductal papillary mucinous)?

Support Group: Pancreatic Cancer

Posted: May 19, 2023

I'd like to add some resources here that outline the research thus far from evidence-based medical...

https://connect.mayoclinic.org/comment/855512/

Discussion: Pancreatic Cancer - Has anyone had experience with Metabolic Oncology?

Support Group: Pancreatic Cancer

Posted: May 6, 2023

It does seem like 5 treatments should be enough to show progress if the meds are...

https://connect.mayoclinic.org/comment/852890/

Discussion: My dad (76) was diagnosed with stage iv pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 1, 2023

Thank you for the feedback. I saw my oncologist today and she said my swollen abdomen...

https://connect.mayoclinic.org/comment/829210/

Discussion: Irinatican side effects for pancreatic cancer recurrence

Support Group: Pancreatic Cancer

Posted: Mar 20, 2023

The Pancreatic Cancer Action Network (PanCan.org) is a large patient advocacy organization supporting patients and caregivers...

https://connect.mayoclinic.org/comment/813892/

Discussion: Finding a Whipple Expert

Support Group: Pancreatic Cancer

Posted: Feb 19, 2023

Thank you. We are awaiting results of the gene testing. Good to know about your experience...

https://connect.mayoclinic.org/comment/811942/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 15, 2023

Hello,…they have been monitoring my 4.0cm Cyst since June 2022. Recently did another contrast MRI @...

https://connect.mayoclinic.org/comment/809599/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 10, 2023

I know how he feels.I was first diagnosed in July 2022.One told me I could get...

https://connect.mayoclinic.org/comment/804686/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Feb 1, 2023

So, a lot has happened in a short period of time. For those following my story,...

https://connect.mayoclinic.org/comment/793068/

Discussion: Pancreatic cancer stage 4: Mom moved to palliative care

Support Group: Pancreatic Cancer

Posted: Jan 6, 2023

clinical trials.gov has the approved trials and a list of inclusions and exclusions. I am looking...

https://connect.mayoclinic.org/comment/773864/

Discussion: How to find Clinical Trials for Pancreatic Cancer?

Support Group: Pancreatic Cancer

Posted: Nov 16, 2022

Hi All, My second Floforinox was pushed back one week due to low WBC. Is time...

https://connect.mayoclinic.org/comment/762134/

Discussion: Is anyone participating in a clinical trial for pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Oct 17, 2022

@199 My wife is on a new trial for another first in human KRAS targeted drug....

https://connect.mayoclinic.org/comment/1513476/

Discussion: Care Plans or Protocols

Support Group: Pancreatic Cancer

Posted: Feb 24 9:30am

@val64 That is funny! Mice not born with pancreatic cancer mutations so clinical trials don't always...

https://connect.mayoclinic.org/comment/1496023/

Discussion: New study - 100% success, zero recurrence, and low toxicity

Support Group: Pancreatic Cancer

Posted: Feb 2 1:22am

Our experience is with Dr Evan Walker at UCSF. He and his team were our second...

https://connect.mayoclinic.org/comment/1446996/

Discussion: San Francisco Bay Area doctor recommendation

Support Group: Pancreatic Cancer

Posted: Nov 25, 2025

@keepingoptimistic , I think your reply was specifically for @ekaptur. In the meantime, here are some...

https://connect.mayoclinic.org/comment/1442108/

Discussion: Help with clinical trials (RMC-6236 and it's variations)

Support Group: Pancreatic Cancer

Posted: Nov 18, 2025

For those with IPMN’s, consider the following clinical study which recently reopened and is being conducted...

https://connect.mayoclinic.org/comment/1441599/

Discussion: Does having several IPMNs increase the chance for malignancy?

Support Group: Pancreatic Cancer

Posted: Nov 18, 2025

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