Pancreatic Cancer Support Group | Page 3

Not whole fair enough, It is supposed to be Folfirinox. I should have proof read before...

https://connect.mayoclinic.org/comment/851935/

Discussion: GemAbraxane Side Effects

Support Group: Pancreatic Cancer

Posted: Apr 30, 2023

Yes, I am on Olanzapine all the time. I am on modified folfirinox which is the...

https://connect.mayoclinic.org/comment/889028/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Jul 2, 2023

On immunotherapy: I started Folfirinox treatment together with clinical trial drug Nivolumab, an immunotherapy drug back...

https://connect.mayoclinic.org/comment/968642/

Discussion: Anyone have any experience with clinical trials or immunotherapy?

Support Group: Pancreatic Cancer

Posted: Nov 21, 2023

The Johns Hopkins tumor board will be reviewing my wife's case tomorrow. Next week, we'll have...

https://connect.mayoclinic.org/comment/291704/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Feb 15, 2021

Wife will complete 12 Folfirinox treatments. It has not determined if she is stage 3 or...

https://connect.mayoclinic.org/comment/1382811/

Discussion: Pancreatic Cancer Surgery Q&A w/ Dr. Stauffer on September 4

Support Group: Pancreatic Cancer

Posted: Aug 30, 2025

Cancer is back. Recent CT and CA19-9 confirm pancreatic cancer spread to lungs. Most of the...

https://connect.mayoclinic.org/comment/1569833/

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: May 8 11:54am

My wife received foot massages in her infusion center to help with neuropathy issues on the...

https://connect.mayoclinic.org/comment/1399522/

Discussion: Would massage be helpful to a pancreatic cancer patient?

Support Group: Pancreatic Cancer

Posted: Sep 23, 2025

I had thinning with FOLFIRINOX, but complete hair loss (entire body) by the 2nd treatment if...

https://connect.mayoclinic.org/comment/1491557/

Discussion: When did hair loss start with Abraxone/Gecitabine chemo?

Support Group: Pancreatic Cancer

Posted: Jan 27 6:39am

Its sheer hell. You describe it well. After 12 rounds of folfirinox the neuropathy got progressively...

https://connect.mayoclinic.org/comment/1373587/

Discussion: Neuropathy in feet after completing Chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 18, 2025

I have acinar cell pancreatic cancer. I've been on chemotherapy, Folfirinox, since late Sept. of last...

https://connect.mayoclinic.org/comment/1014048/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2024

After 12 rounds of Folfirinox, a Whipple, and now 11 rounds of GAC (Gem + Abraxane...

https://connect.mayoclinic.org/comment/881216/

Discussion: What to expect from Gemcitibine chemo/radiation?

Support Group: Pancreatic Cancer

Posted: Jun 19, 2023

No radiation. I did specifically mention that I was willing to go through it if necessary...

https://connect.mayoclinic.org/comment/816830/

Discussion: Pancreatic Cancer Recurrence after Whipple

Support Group: Pancreatic Cancer

Posted: Feb 24, 2023

Looking forward to hearing from others regarding this. My diagnosis is PCAC, metasticized to liver, with...

https://connect.mayoclinic.org/comment/927846/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Sep 10, 2023

@cbeard1 I started 6 mos., 12 sessions, of Folfirinox in Oct. of '23 after a diagnosis...

https://connect.mayoclinic.org/comment/1536512/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 27 10:23am

@jim1234 Can't speak for your Folfirinox treatment or dosages but for my 90 lb wife (was...

https://connect.mayoclinic.org/comment/1419668/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 20, 2025

Thank you for sharing! Sometimes we are our best advocates! I have always questioned my father's...

https://connect.mayoclinic.org/comment/882765/

Discussion: Clinical trial (third line treatment) lurbinectedin and irinotecan

Support Group: Pancreatic Cancer

Posted: Jun 21, 2023

I know you've got a lot on your plate, ma'am. But that folfirinox contains oxaliplatin which...

https://connect.mayoclinic.org/comment/1305221/

Discussion: 45 Y old husband got diagnosed with stage 4 pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 16, 2025

My sister completed the standard of care 12 rounds Folfirinox and her doc at Memorial Sloane-...

https://connect.mayoclinic.org/comment/1039650/

Discussion: Is anyone on Capecitabine for pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Mar 24, 2024

Hi all, I am a 74 yo married for 47 yrs retired MD diagnosed 11/11/24 and...

https://connect.mayoclinic.org/comment/1580333/

Discussion: Rising Ca19-9 and elevated Alkaline phosphatase

Support Group: Pancreatic Cancer

Posted: 8 hours ago

They call it FOLFIRINOX at 100% to start and see if he tolerates it. He also...

https://connect.mayoclinic.org/comment/996806/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 13, 2024