Pancreatic Cancer Support Group

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@dmac70 , I don't recall if you've had a germline test like Invitae done to identify...

https://connect.mayoclinic.org/comment/986790/

Discussion: More Tests Required?

Support Group: Pancreatic Cancer

Posted: Dec 26, 2023

markymarkfl - Thanks so much for your helpful reply. FYI, I will have PET scan, CT...

https://connect.mayoclinic.org/comment/985888/

Discussion: What are the symptoms to look for for pancreatic recurrence?

Support Group: Pancreatic Cancer

Posted: Dec 24, 2023

@wjk , I was tracking my CA19-9 at 3 different labs (for weird reasons), but was...

https://connect.mayoclinic.org/comment/985555/

Discussion: What are the symptoms to look for for pancreatic recurrence?

Support Group: Pancreatic Cancer

Posted: Dec 23, 2023

Thank you . Ca19-9 dropped drastically but is still higher than normal range. That is great...

https://connect.mayoclinic.org/comment/985376/

Discussion: What are the symptoms to look for for pancreatic recurrence?

Support Group: Pancreatic Cancer

Posted: Dec 23, 2023

How often are you getting chemo and the CA19-9 tests? It sounds like you're a good...

https://connect.mayoclinic.org/comment/984518/

Discussion: CA-19 numbers continuing downward

Support Group: Pancreatic Cancer

Posted: Dec 21, 2023

Two amazing results (tumor shrinkage and CA19-9). Congrats and Merry Christmas to you and your patient...

https://connect.mayoclinic.org/comment/982933/

Discussion: CA-19 numbers continuing downward

Support Group: Pancreatic Cancer

Posted: Dec 18, 2023

(previous post continued) As you've probably already learned, about 80% of people diagnosed with PC catch...

https://connect.mayoclinic.org/comment/978125/

Discussion: Tumor can’t be removed: What are chances of survival now?

Support Group: Pancreatic Cancer

Posted: Dec 10, 2023

I had distal pancreatectomy and spleenectomy last October 2022. Ultrasound and other scans show 1 lymph...

https://connect.mayoclinic.org/comment/975669/

Discussion: Anyone had pancreatic cancer mets to lymph nodes only?

Support Group: Pancreatic Cancer

Posted: Dec 6, 2023

Thank you very much for all the responses. Ca19.9 was taken every week during radiotherapy and...

https://connect.mayoclinic.org/comment/974134/

Discussion: Is a 2-week break between adjuvant radiotherapy & chemo okay?

Support Group: Pancreatic Cancer

Posted: Dec 2, 2023

Hi, Have you heard, in your experience, what other causes besides recurrence can drive up that...

https://connect.mayoclinic.org/comment/972472/

Discussion: Oxaliplatin: What are the effects of dropping it from FOLFIRINOX?

Support Group: Pancreatic Cancer

Posted: Nov 29, 2023

Hello Wheatley, Your question about the correlation between oxeplatin and chemo is one I’ve had myself....

https://connect.mayoclinic.org/comment/972257/

Discussion: Oxaliplatin: What are the effects of dropping it from FOLFIRINOX?

Support Group: Pancreatic Cancer

Posted: Nov 29, 2023

Pls take everything I'm about to write with a grain of salt, bc I'm one of...

https://connect.mayoclinic.org/comment/971980/

Discussion: Pseudo cyst / CA 19-9 trending up

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

@kirdyk , Have they done any genetic testing on your dad (germline and somatic) to determine...

https://connect.mayoclinic.org/comment/967219/

Discussion: Switch from Folfirinox to Gem/Abrax due to non response

Support Group: Pancreatic Cancer

Posted: Nov 18, 2023

Hello @ncteacher ! I was stage II 2.8 cm tumor in the tail section of pancreas...

https://connect.mayoclinic.org/comment/964058/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 13, 2023

Please forgive me I'm repeating myself once too often here, but for readers who may not...

https://connect.mayoclinic.org/comment/962169/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 10, 2023

Thank you for your response. I am not sure why the attachment did not appear, but...

https://connect.mayoclinic.org/comment/961716/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 9, 2023

@gamaryanne , did you have any evidence of mets elsewhere when they did the Y-90? I've...

https://connect.mayoclinic.org/comment/961519/

Discussion: Seeking input re: questions to ask my oncologist 5 weeks post-Whipple

Support Group: Pancreatic Cancer

Posted: Nov 9, 2023

Thanks for providing the list of hospitals; I might need them in the future if it...

https://connect.mayoclinic.org/comment/958843/

Discussion: Abort chemo Rx & go straight to surgery while I am still Stage 1?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2023

I am so grateful for your posts and encouragement on this site. I had 20 sessions...

https://connect.mayoclinic.org/comment/957815/

Discussion: Question regarding “dead” tumor

Support Group: Pancreatic Cancer

Posted: Nov 2, 2023

@robee , You're very welcome, and... I might lean toward the opinion of MSK over a...

https://connect.mayoclinic.org/comment/954152/

Discussion: Has anyone had Folfirinox stop working and had to start a new chemo dr

Support Group: Pancreatic Cancer

Posted: Oct 26, 2023

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