Pancreatic Cancer Support Group

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Comments (509)

I did OK on 12 rounds of Folfirinox before Whipple, and just finished my 12th round...

https://connect.mayoclinic.org/comment/887888/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Jun 30, 2023

My mom was dx with stage 2b pancreatic adenocarcinoma in 2019. The gold standard these days...

https://connect.mayoclinic.org/comment/795855/

Discussion: Need advice: Stage 2 pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jan 12, 2023

To answer question #1, all pancrealipase brands require they be optimized after being prescribed an initial...

https://connect.mayoclinic.org/comment/885355/

Discussion: Color me confused (2 questions)

Support Group: Pancreatic Cancer

Posted: Jun 26, 2023

I thought it might be the most readable if I post my answers below your questions...

https://connect.mayoclinic.org/comment/878565/

Discussion: My HIPEC experience and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

Did they do a biopsy on the liver spots, or only the pancreas? What was my...

https://connect.mayoclinic.org/comment/968827/

Discussion: Newly diagnosed with pancreatic mass — What questions to ask?

Support Group: Pancreatic Cancer

Posted: Nov 21, 2023

I have no medical training, but will share some thoughts, partly in backward order. I also...

https://connect.mayoclinic.org/comment/914835/

Discussion: Chances without whipple

Support Group: Pancreatic Cancer

Posted: Aug 17, 2023

Some update. Meet with Dr. Ahmad again. I was in better shape to ask questions. He...

https://connect.mayoclinic.org/comment/1089484/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 19, 2024

You need to be strong going in to surgery. Do what you can to stay physically...

https://connect.mayoclinic.org/comment/841671/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 11, 2023

There is an on-line dosing calculator at https://digestthis.ca that makes it easier to optimize the dose...

https://connect.mayoclinic.org/comment/1042180/

Discussion: Expert help with proper dosing of Zenpep enzymes after Whipple

Support Group: Pancreatic Cancer

Posted: Mar 29, 2024

I finally found out my insurance plan (BCBS FEP 106) has retail and mail order different...

https://connect.mayoclinic.org/comment/922977/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Sep 2, 2023

I thought so too but the gastroenterologist is watching them. My blood sugars are high at...

https://connect.mayoclinic.org/comment/910261/

Discussion: Anyone have high liver numbers in bloodwork after Whipple?

Support Group: Pancreatic Cancer

Posted: Aug 9, 2023

Yes I am feeling better off of the ceron but getting a side ache I have...

https://connect.mayoclinic.org/comment/836956/

Discussion: Problems with Dehydration: What do you do to keep hydrated?

Support Group: Pancreatic Cancer

Posted: Apr 3, 2023

Thank you for responding and glad this is helping you and continues to help. I was...

https://connect.mayoclinic.org/comment/829217/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Mar 20, 2023

I am also interested in Pure enzymes. I am having stomach issues with Ceron and also...

https://connect.mayoclinic.org/comment/822185/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Mar 7, 2023

I am having trouble with meal planning, seems everything bothers my stomach. Very painful I can...

https://connect.mayoclinic.org/comment/931510/

Discussion: What to eat when diagnosed with pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Sep 17, 2023

I am a 2 year survivor but recently spent 2 weeks in hospital with a blocked...

https://connect.mayoclinic.org/comment/891737/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 7, 2023

@howleegirl , 5 creons might be a bit much, especially depending on the size (content) of...

https://connect.mayoclinic.org/comment/860665/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

Mark ! Gracias por responderme con tu valiosa experiencia sobre whipple. Te admiro y me inspiras...

https://connect.mayoclinic.org/comment/1026295/

Discussion: Has anyone consumed red wine after their Whipple Surgery?

Support Group: Pancreatic Cancer

Posted: Mar 2, 2024

I am having belly pain but no diarrhea, but I am in only one week, I...

https://connect.mayoclinic.org/comment/971273/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2023

Yes I believe so and understand is common and Ceron is hard on stomach

https://connect.mayoclinic.org/comment/948540/

Discussion: Dilaudid for pancreatic attacks.

Support Group: Pancreatic Cancer

Posted: Oct 16, 2023

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