Pancreatic Cancer Support Group

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Comments (657)

I seem to be stabilizing my weight with higher doses of Creon. I lost a lot...

https://connect.mayoclinic.org/comment/862233/

Discussion: Question about CT scan

Support Group: Pancreatic Cancer

Posted: May 18, 2023

Hello BB21, I appreciate your comments and feedback. I will definitely ask for a better solution...

https://connect.mayoclinic.org/comment/712329/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: May 28, 2022

Thank you for the information. A little more background on me. I have been on Creon...

https://connect.mayoclinic.org/comment/1083257/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 8, 2024

I did not have any nausea, vomiting, or diarrhea. I was already on a good dose...

https://connect.mayoclinic.org/comment/1058161/

Discussion: Expert help with proper dosing of Zenpep enzymes after Whipple

Support Group: Pancreatic Cancer

Posted: Apr 27, 2024

I’ve been taking Creon for the past 5 years. It has vastly improved my quality of...

https://connect.mayoclinic.org/comment/918177/

Discussion: Chocolate &/or sugar cravings Stage IV Pancreatic AdenenoCA

Support Group: Pancreatic Cancer

Posted: Aug 24, 2023

THANKSGIVING EATING TIPS With Thanksgiving upon us, those with Exocrine Pancreas Insufficiency (EPI) can take a...

https://connect.mayoclinic.org/comment/1448137/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 27, 2025

Thank you so much for all of the responses. I really appreciate you giving up your...

https://connect.mayoclinic.org/comment/1366513/

Discussion: Pancreas removal

Support Group: Pancreatic Cancer

Posted: Aug 8, 2025

Hi Judithbramson. This website is a Godsend. Thank you for your post. I’m having similar issues...

https://connect.mayoclinic.org/comment/1092594/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 23, 2024

Husband 4.5 years post pancreatectomy, with excision of the duodenum, pylorus, spleen, gallbladder and also has...

https://connect.mayoclinic.org/comment/1072741/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

My wife is 9 months post surgery and using Creon, cholestyramine, and immodium and still has...

https://connect.mayoclinic.org/comment/208605/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 11, 2020

Hi Tim, good luck with your treatment and surgery. My wife seems to be at the...

https://connect.mayoclinic.org/comment/612269/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 28, 2021

Hi! I have had 2 distal pancrectomies.,The first one 3 1/2 years ago was done robotically,...

https://connect.mayoclinic.org/comment/1550582/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14 3:56pm

I have Medicare and my medications are very expensive. After I go thru the basic $4800...

https://connect.mayoclinic.org/comment/983731/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Dec 20, 2023

Mayo Rochester had me do 8 rounds of fulfirinox then 3 weeks of radiation, the higher...

https://connect.mayoclinic.org/comment/914912/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Aug 18, 2023

@colleenyoung So far, so good. I have reduced the amount of Creon to 24,000 per meal,...

https://connect.mayoclinic.org/comment/1495278/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31 7:39pm

Beano sold in North America is an OTC product which is the enzyme alpha-d-galactosidase. It is...

https://connect.mayoclinic.org/comment/1206032/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 7, 2025

In my experience, Zenpep is about 20-25% more efficient than Creon. It costs about that much...

https://connect.mayoclinic.org/comment/1091698/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 22, 2024

@luckyone4321, You're welcome. I know how difficult it is to find a doctor and/or gastroenterologist that's...

https://connect.mayoclinic.org/comment/291115/

Discussion: Total Pancreatectomy

Support Group: Pancreatic Cancer

Posted: Jan 26, 2020

I didn't have really good control of my symptoms until I got my dose up to...

https://connect.mayoclinic.org/comment/935158/

Discussion: Lots of oil when going to the bathroom?

Support Group: Pancreatic Cancer

Posted: Sep 23, 2023

I am sorry to hear about your situation. I had a similar situation about 6 years...

https://connect.mayoclinic.org/comment/1285690/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2025

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