Pancreatic Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

552 total results

Comments (510)

We have been watching for 3 years. 3 cysts on head. Body and tail shot from...

https://connect.mayoclinic.org/comment/1242090/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 21 9:42am

Husband 4.5 years post pancreatectomy, with excision of the duodenum, pylorus, spleen, gallbladder and also has...

https://connect.mayoclinic.org/comment/1072741/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Thank you for the information. A little more background on me. I have been on Creon...

https://connect.mayoclinic.org/comment/1083257/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 8, 2024

I did not have any nausea, vomiting, or diarrhea. I was already on a good dose...

https://connect.mayoclinic.org/comment/1058161/

Discussion: Expert help with proper dosing of Zenpep enzymes after Whipple

Support Group: Pancreatic Cancer

Posted: Apr 27, 2024

I’ve been taking Creon for the past 5 years. It has vastly improved my quality of...

https://connect.mayoclinic.org/comment/918177/

Discussion: Chocolate &/or sugar cravings Stage IV Pancreatic AdenenoCA

Support Group: Pancreatic Cancer

Posted: Aug 24, 2023

Hi Judithbramson. This website is a Godsend. Thank you for your post. I’m having similar issues...

https://connect.mayoclinic.org/comment/1092594/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 23, 2024

Hi Tim, good luck with your treatment and surgery. My wife seems to be at the...

https://connect.mayoclinic.org/comment/612269/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 28, 2021

My wife is 9 months post surgery and using Creon, cholestyramine, and immodium and still has...

https://connect.mayoclinic.org/comment/208605/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 11, 2020

So I read about the vit C IVs it sounds very promising! I had 8 rounds...

https://connect.mayoclinic.org/comment/1217656/

Discussion: For those with pancan, did you drink lots of Diet Coke or Coke?

Support Group: Pancreatic Cancer

Posted: Jan 20 4:59pm

I had Whipple surgery 11/23 when I was 72 years old for an IPMN in the...

https://connect.mayoclinic.org/comment/1231976/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 8 6:05am

Thank you so much for sharing your experience. We had not heard about Enterade, so I...

https://connect.mayoclinic.org/comment/733241/

Discussion: How can I help my husband face the possibility he may not survive?

Support Group: Pancreatic Cancer

Posted: Aug 1, 2022

I have Medicare and my medications are very expensive. After I go thru the basic $4800...

https://connect.mayoclinic.org/comment/983731/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Dec 20, 2023

Mayo Rochester had me do 8 rounds of fulfirinox then 3 weeks of radiation, the higher...

https://connect.mayoclinic.org/comment/914912/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Aug 18, 2023

In my experience, Zenpep is about 20-25% more efficient than Creon. It costs about that much...

https://connect.mayoclinic.org/comment/1091698/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 22, 2024

Beano sold in North America is an OTC product which is the enzyme alpha-d-galactosidase. It is...

https://connect.mayoclinic.org/comment/1206032/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 7 11:45am

@luckyone4321, You're welcome. I know how difficult it is to find a doctor and/or gastroenterologist that's...

https://connect.mayoclinic.org/comment/291115/

Discussion: Total Pancreatectomy

Support Group: Pancreatic Cancer

Posted: Jan 26, 2020

@tww60223, you may find further tips regarding weight loss and enzymes in these related discussions (even...

https://connect.mayoclinic.org/comment/1111077/

Discussion: severe weight loss with pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jul 24, 2024

I didn't have really good control of my symptoms until I got my dose up to...

https://connect.mayoclinic.org/comment/935158/

Discussion: Lots of oil when going to the bathroom?

Support Group: Pancreatic Cancer

Posted: Sep 23, 2023

Hi @christie4re Sorry to hear you are going through all of this. I can certainly share...

https://connect.mayoclinic.org/comment/1271645/

Discussion: Total pancreatectomy challenges

Support Group: Pancreatic Cancer

Posted: Apr 1 10:18am

My doctor actually said the same thing. I just have to remember to eat one thing...

https://connect.mayoclinic.org/comment/1095477/

Discussion: Why surgery first vs chemo/radiarion first?

Support Group: Pancreatic Cancer

Posted: Jun 27, 2024

Cancer

7905

7 minutes ago

Transplants

3608

27 minutes ago

Cancer: Managing Symptoms

4245

28 minutes ago

Diabetes & Endocrine System

6319

1 hour ago

Neuroendocrine Tumors (NETs)

2419

2 hours ago