Pancreatic Cancer Support Group

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Comments (660)

I am on Medicare and I get Creon from Abbvie Assist free each month. They sent...

https://connect.mayoclinic.org/comment/861704/

Discussion: Life after Pancreatectomy: How was your recovery?

Support Group: Pancreatic Cancer

Posted: May 18, 2023

My husband has had 2 severe cases of pancreas. He has also been prescribed creon and...

https://connect.mayoclinic.org/comment/818048/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 27, 2023

Hi, My Husband was diagnosed with PDAC in June 2025. Fortunately operable T1N0M0. He completed 9...

https://connect.mayoclinic.org/comment/1454522/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 6, 2025

I went to my doctor appointment today with a full list of questions and concerns and...

https://connect.mayoclinic.org/comment/291117/

Discussion: Total Pancreatectomy

Support Group: Pancreatic Cancer

Posted: Jan 27, 2020

I am struggling with the same thing. I am around 100 and want to be at...

https://connect.mayoclinic.org/comment/871078/

Discussion: If you had Whipple surgery, what are you eating or not eating?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2023

Have you looked into Abbvie Assist? Mayo Pharmacy suggested it for me and I get Creon,...

https://connect.mayoclinic.org/comment/921937/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Aug 31, 2023

I don't take Creon because I haven't had the Whipple; I don't qualify due to the...

https://connect.mayoclinic.org/comment/917372/

Discussion: Chocolate &/or sugar cravings Stage IV Pancreatic AdenenoCA

Support Group: Pancreatic Cancer

Posted: Aug 22, 2023

Hi huilium, I underwent a whipple surgery in 2012. I was discharged after 28 days post...

https://connect.mayoclinic.org/comment/680379/

Discussion: Life after Pancreatectomy: How was your recovery?

Support Group: Pancreatic Cancer

Posted: Feb 13, 2022

I have chronic pancreatitis from alcohol abuse. I started using pure encapsulations 4 years ago, and...

https://connect.mayoclinic.org/comment/208603/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 2, 2020

@luckyguy - I usually take a few bites of food and then I take the creon....

https://connect.mayoclinic.org/comment/257740/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Jul 27, 2020

Thank you so much for your reply. I am on Creon right now and I've gained...

https://connect.mayoclinic.org/comment/971776/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

I was on a clinical trial that caused some intestinal issues and Creon was not really...

https://connect.mayoclinic.org/comment/673839/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 22, 2022

Hello I’m 2 years post Whipple surgery and doing very well. I started taking Creon for...

https://connect.mayoclinic.org/comment/1452927/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 4, 2025

Right now he is on Creon, so he is able to digest food and get nutients....

https://connect.mayoclinic.org/comment/1044455/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 2, 2024

I am reading all this and wondering if cancer was diagnosed. Surgeon told Gary if he...

https://connect.mayoclinic.org/comment/326775/

Discussion: Digestive issues and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Feb 26, 2021

@val64 I did start with a reduced dose and felt fine until 2 days later. The...

https://connect.mayoclinic.org/comment/1480798/

Discussion: Anyone had success with gemcitabine and capecitabine (GemCap) chemo?

Support Group: Pancreatic Cancer

Posted: Jan 12 5:16pm

My understanding is that if you have PC your pancreas may not be putting out enough...

https://connect.mayoclinic.org/comment/1405425/

Discussion: Creon - am I taking too much or too little?

Support Group: Pancreatic Cancer

Posted: Sep 30, 2025

I took Creon and, when it became very difficult to obtain, switched to Zenpep. I was...

https://connect.mayoclinic.org/comment/1244439/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Feb 24, 2025

I would assume a pancrealipase was prescribed to address Pancreas Enzymes Insufficiency (EPI). When the dosage...

https://connect.mayoclinic.org/comment/739636/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Aug 20, 2022

Hello @rexsan20 You ask a good question about diagnosing pancreatic cancer. Does your doctor do MRIs...

https://connect.mayoclinic.org/comment/628262/

Discussion: Pancreatic cancer recurrence: Anyone else?

Support Group: Pancreatic Cancer

Posted: Aug 20, 2021

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