Pancreatic Cancer Support Group

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Comments (418)

Just a personal comment about the Whipple: after surgery, you expect to get better every day,...

https://connect.mayoclinic.org/comment/1192189/

Discussion: Having chemo: What can I expect during and after Whipple surgery?

Support Group: Pancreatic Cancer

Posted: Dec 17, 2024

Thank you! Yes I'm expecting tough sledding with the Folfirinox, just gotta do it! Answers to...

https://connect.mayoclinic.org/comment/1042740/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 30, 2024

Thank you beths77. I have had my symptoms exacerbated by stevia, so that is not an...

https://connect.mayoclinic.org/comment/917711/

Discussion: Chocolate &/or sugar cravings Stage IV Pancreatic AdenenoCA

Support Group: Pancreatic Cancer

Posted: Aug 23, 2023

I was diagnosed w stage 4 pancreatic CA January 2nd this year. Because of small liver...

https://connect.mayoclinic.org/comment/280300/

Discussion: Can someone help...terrified: Need info on pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Nov 2, 2019

I'll be 71 next month, stage 4, inoperable adenocarcinoma in the body and some abdominal lesions,...

https://connect.mayoclinic.org/comment/915113/

Discussion: Unclear on whether to use GemCap or GemCis only for chemo

Support Group: Pancreatic Cancer

Posted: Aug 18, 2023

Opinion...on the numbers. That is very well put for this question. From my reading over the...

https://connect.mayoclinic.org/comment/718498/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Jun 17, 2022

Thanks to you all! I survived in OK shape. The MD reduced the dosage to 80%...

https://connect.mayoclinic.org/comment/849120/

Discussion: First chemo tomorrow--tips, suggestions, cautions?

Support Group: Pancreatic Cancer

Posted: Apr 25, 2023

Ask your doctor about cholestyramine powder. It's a prescription, at least mine was. Also, everyone else's...

https://connect.mayoclinic.org/comment/1195205/

Discussion: Does anyone with pancreatic cancer have chronic diarrhea?

Support Group: Pancreatic Cancer

Posted: Dec 22, 2024

Hello Ben, (@benr) and welcome to Mayo Connect. I'm so glad that you posted about your...

https://connect.mayoclinic.org/comment/255396/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2019

I experienced diarrhea from the Irinotecan component of Folfirinox which targets fast dividing cells which the...

https://connect.mayoclinic.org/comment/788349/

Discussion: Diarrhea tips?

Support Group: Pancreatic Cancer

Posted: Dec 24, 2022

Hi, I'm @mscarano and was diagnosed with pancreatic cancer in October 2019. However, biopsy was not...

https://connect.mayoclinic.org/comment/285263/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Sep 22, 2020

Move fast! Get the Invitae germline DNA test done asap by anyone who will order it...

https://connect.mayoclinic.org/comment/966169/

Discussion: Indeterminant cystic lesion in the pancreas....where to go from here

Support Group: Pancreatic Cancer

Posted: Nov 16, 2023

Hi @mnewland99, thank you so much for your reply! Very encouraging and that is so helpful....

https://connect.mayoclinic.org/comment/1259522/

Discussion: Stage IV Adenosquamous pancreatic ca: finished SBRT, what's next?

Support Group: Pancreatic Cancer

Posted: Mar 16, 2025

Bloating which is caused by gas production is from undigested food mixing with intestinal bacteria and...

https://connect.mayoclinic.org/comment/1193480/

Discussion: Are any of you taking probiotics?

Support Group: Pancreatic Cancer

Posted: Dec 19, 2024

altc321, christinekaranges, I was put on Creon 24k units 2 with meals and my gastro doc...

https://connect.mayoclinic.org/comment/1121815/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 11, 2024

Sorry about your brother's diagnosis! I'm a newbie at this, just being diagnosed at stage 4...

https://connect.mayoclinic.org/comment/886745/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Jun 28, 2023

Christie, My wife went through a total pancreatectomy almost 9 years ago. It was accidentally found...

https://connect.mayoclinic.org/comment/1270770/

Discussion: Total pancreatectomy challenges

Support Group: Pancreatic Cancer

Posted: Mar 31, 2025

We spoke to our dr last night to review my husband's scan. He is stage 4....

https://connect.mayoclinic.org/comment/853778/

Discussion: My dad (76) was diagnosed with stage iv pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 3, 2023

@aceman66 Chronic constipation 5 weeks post-Whipple is surprising to me; I'm almost jealous! Seriously though, if...

https://connect.mayoclinic.org/comment/906524/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 2, 2023

Hello, I was diagnosed with locally advanced PDAC in July 2024, with an ~4cm tumor in...

https://connect.mayoclinic.org/comment/1450871/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 1, 2025

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