Pancreatic Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

707 total results

Comments (659)

Our son had a surgery in Belgrade, Serbia, Whipple, and we bought Creon there, it is...

https://connect.mayoclinic.org/comment/1397180/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Sep 20, 2025

For me the desire to eat got better with Creon treatment. I am now up to...

https://connect.mayoclinic.org/comment/866404/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 25, 2023

@johnny1955 - Absolutely - from AbbVie's site - Signs of not taking enough Creon may include...

https://connect.mayoclinic.org/comment/1457131/

Discussion: Belly pain, cramps and painful gas months after Whipple: Thoughts?

Support Group: Pancreatic Cancer

Posted: Dec 9, 2025

@azsunshine7 my surgeon told me how to get it free. Go to Abbvie.com.pas and ask for...

https://connect.mayoclinic.org/comment/1460470/

Discussion: Belly pain, cramps and painful gas months after Whipple: Thoughts?

Support Group: Pancreatic Cancer

Posted: Dec 14, 2025

@icelander19 I take creon to aid with digestion. Dose is based on my weight and/or amount...

https://connect.mayoclinic.org/comment/857494/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 10, 2023

@johnny1955 I just take a womens health probiotic from costco, your Dr. or nurse may have...

https://connect.mayoclinic.org/comment/1498981/

Discussion: Newly diagnosed. What helps control symptoms of gas and bloating?

Support Group: Pancreatic Cancer

Posted: Feb 5 6:03pm

I found that I had to take additional Creon when I was going to eat fatty...

https://connect.mayoclinic.org/comment/1200278/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 30, 2024

Yes, I had the same experience. When my oncologist recommended creon, I called my insurance company...

https://connect.mayoclinic.org/comment/1084198/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Jun 10, 2024

I live in California and had no problem getting Creon; my only problem was the cost...

https://connect.mayoclinic.org/comment/947792/

Discussion: Can’t seem to locate Creon - 36000 units

Support Group: Pancreatic Cancer

Posted: Oct 14, 2023

Rexan, you may be interested in this discussion about Creon and pancreatic enzyme replacement: - Pancreatic...

https://connect.mayoclinic.org/comment/657623/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 26, 2021

I take creon twice a day. I eat often and little by little. I have diarrhea,...

https://connect.mayoclinic.org/comment/1122318/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 12, 2024

I am on Creon 8 a day severe stomach cramps watery diarrhea Have to wear a...

https://connect.mayoclinic.org/comment/1121716/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 11, 2024

https://connect.mayoclinic.org/comment/1026891/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Mar 3, 2024

Yes, diarrhea is a regular visitor. I had the whipple in April and my last (twelfth)...

https://connect.mayoclinic.org/comment/907889/

Discussion: Diarrhea frequently during Chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 5, 2023

I take creon and it causes gas and bloating. I tried cutting back and I lose...

https://connect.mayoclinic.org/comment/1498310/

Discussion: Newly diagnosed. What helps control symptoms of gas and bloating?

Support Group: Pancreatic Cancer

Posted: Feb 4 7:45pm

My husband lost 10kgs after having had 66% of his pancreas removed. Surgeon put him on...

https://connect.mayoclinic.org/comment/1179540/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Nov 25, 2024

I get two different doses of Creon from the Abbvie company for free by mail. I...

https://connect.mayoclinic.org/comment/1084758/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Jun 11, 2024

Yes, I was upset with my PCP response and made it known. I’ve learned a lot...

https://connect.mayoclinic.org/comment/939910/

Discussion: Why CA-19-9 Test not included in annual lab tests

Support Group: Pancreatic Cancer

Posted: Oct 1, 2023

It's been 5 1/2 years since I had my Whipple. I started by taking 1 Creon...

https://connect.mayoclinic.org/comment/291992/

Discussion: Struggling to eat with pancreatic cancer: How do you manage?

Support Group: Pancreatic Cancer

Posted: Feb 6, 2020

I would not recommend the Whipple..it has been over 2 months since my surgery. Pain almost...

https://connect.mayoclinic.org/comment/1453530/

Discussion: Is Whipple surgery recommended for 81-year old?

Support Group: Pancreatic Cancer

Posted: Dec 5, 2025

Transplants

4388

1 minute ago

Neuroendocrine Tumors (NETs)

3192

4 minutes ago

Digestive Health

18674

7 minutes ago

Visiting Mayo Clinic

6926

22 minutes ago

Cancer

10258

40 minutes ago