Pancreatic Cancer Support Group

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Comments (549)

There are five Rx pancrealipase products in the US with Creon being the most frequently prescribed....

https://connect.mayoclinic.org/comment/1175890/

Discussion: Has any one found an alternative to Creon?

Support Group: Pancreatic Cancer

Posted: Nov 18, 2024

Hello jillysmity, are you taking Creon before you eat? That may help; it’s by rx only....

https://connect.mayoclinic.org/comment/1077573/

Discussion: Does anyone else have digestive issues? Hard and distended abdomen?

Support Group: Pancreatic Cancer

Posted: May 30, 2024

Thanks!! I struggled many years to be thin or thinner than I was....finally now after my...

https://connect.mayoclinic.org/comment/275831/

Discussion: Whipple procedure: What is the recovery like?

Support Group: Pancreatic Cancer

Posted: Sep 27, 2019

Hi Colleen Creon 25000 mg 3 x a day and 10000 mg in between meals (snacks)...

https://connect.mayoclinic.org/comment/957951/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Nov 2, 2023

Hello steveskolnick! I took Creon (36k units) 5-7 months after surgery, then tried OTC papaya enzymes...

https://connect.mayoclinic.org/comment/971760/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

I found an excellent Nutritionist. She taught me so much about Creon. How much you can...

https://connect.mayoclinic.org/comment/1081274/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Jun 5, 2024

He takes 5 Creon throughout his meal, and yes, has a lot of gas!! Maybe that's...

https://connect.mayoclinic.org/comment/860524/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

altc321, christinekaranges, I was put on Creon 24k units 2 with meals and my gastro doc...

https://connect.mayoclinic.org/comment/1121815/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 11, 2024

Undigested fat from lack of lipase enzyme is not the only cause for floating stool. Eating...

https://connect.mayoclinic.org/comment/852481/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 1, 2023

You are on the right track by finding NET specialist! Relax, and give him your support!...

https://connect.mayoclinic.org/comment/1291405/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 27 5:02pm

I was recently diagnosed with pancreatic cancer. I’ve been seeing a functional doctor for treatment. My...

https://connect.mayoclinic.org/comment/1228639/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 3 12:24pm

I was diagnosed with 5 pancreatic neuroendocrine tumors (not adenocarcinoma). They were up to 5 cm...

https://connect.mayoclinic.org/comment/1305343/

Discussion: Main Duct-IPMN: Conflicted about what to do

Support Group: Pancreatic Cancer

Posted: May 16 10:08am

My husband was also put on Zenpep and we are wondering if Creon would work better....

https://connect.mayoclinic.org/comment/878176/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

One thing you can expect is for things to be different than before pancreatic cancer! I...

https://connect.mayoclinic.org/comment/917812/

Discussion: Chocolate &/or sugar cravings Stage IV Pancreatic AdenenoCA

Support Group: Pancreatic Cancer

Posted: Aug 23, 2023

Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had...

https://connect.mayoclinic.org/comment/1046358/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

Creon seems permanent with me. The CT scans have shown atrophic pancreas, I believe this means...

https://connect.mayoclinic.org/comment/987589/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

I had pancreas, spleen, and gallbladder removed in July. I have a great appetite, but 3-4...

https://connect.mayoclinic.org/comment/971058/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2023

Have you tried gummies? For me, they seem to help, but I do not have a...

https://connect.mayoclinic.org/comment/1342169/

Discussion: New stage 4 diagnosis for my wife

Support Group: Pancreatic Cancer

Posted: Jul 6 10:12am

I finally feel that my gut is not ruling my life since I got up to...

https://connect.mayoclinic.org/comment/871929/

Discussion: If you had Whipple surgery, what are you eating or not eating?

Support Group: Pancreatic Cancer

Posted: Jun 3, 2023

He might try a different brand like Creon. I would suggest he get a fecal fat...

https://connect.mayoclinic.org/comment/1194934/

Discussion: Does anyone have chronic diarrhea?

Support Group: Pancreatic Cancer

Posted: Dec 21, 2024

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