Pancreatic Cancer Support Group

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Comments (555)

I got diagnosed with Stage 4 PDAC May 2023 with primary in pancreas body and numerous...

https://connect.mayoclinic.org/comment/1062837/

Discussion: What's next after folfirinox?

Support Group: Pancreatic Cancer

Posted: May 5, 2024

Just was wondering if anyone cancer is adenocarcinoma this is the type I had in my...

https://connect.mayoclinic.org/comment/1236779/

Discussion: Pancreatic Cancer Recurrence after Whipple

Support Group: Pancreatic Cancer

Posted: Feb 14 11:33am

A have a basic familiarity with a new trial testing lurbenectedin heading by Dr. Erkut Borazanci...

https://connect.mayoclinic.org/comment/878797/

Discussion: Clinical trial (third line treatment) lurbinectedin and irinotecan

Support Group: Pancreatic Cancer

Posted: Jun 15, 2023

We, I, am here to support you and your wife in any way we can. I...

https://connect.mayoclinic.org/comment/678766/

Discussion: Cancer: Nothing about this is normal.

Support Group: Cancer: Managing Symptoms

Posted: Feb 8, 2022

Revolution Medicines’ clinical trials for RMC-6236 and RMC-9805 primarily focus on patients with advanced or metastatic...

https://connect.mayoclinic.org/comment/1219492/

Discussion: Anyone participate in RMC9805 and RMC6236 clinical trials?

Support Group: Pancreatic Cancer

Posted: Jan 23 8:01am

The government website https://clinicaltrials.gov/ usually lists a coordinator or other contact person for each clinical trial,...

https://connect.mayoclinic.org/comment/1252617/

Discussion: Fear pancreatic cancer oncologist may discontinue care

Support Group: Pancreatic Cancer

Posted: Mar 7 1:37pm

Hello I was a stage 2 in September 2022 and had surgery at which point DNA...

https://connect.mayoclinic.org/comment/1042651/

Discussion: Anyone have experience with liver lesions from pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Mar 30, 2024

Everyone responds differently, but I was confirmed Stage-4 last January, and have spent the last 8...

https://connect.mayoclinic.org/comment/941492/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Oct 3, 2023

Disclaimer: I have zero medical training. I'm just a patient who has been stage-4 for a...

https://connect.mayoclinic.org/comment/1220944/

Discussion: Recently Diagnosed with Stage IV Adenocarcinoma

Support Group: Pancreatic Cancer

Posted: Jan 25 12:00am

stageivsurvivor, Was your cancer pancreatic cancer? Also, was it ductal cell pancreatic cancer or acinar cell...

https://connect.mayoclinic.org/comment/1113792/

Discussion: Anyone with BRCA 2 mutation taking Olaparib?

Support Group: Pancreatic Cancer

Posted: Jul 29, 2024

I did take Creon, up to 3*4 per meal but as I improved, I find that...

https://connect.mayoclinic.org/comment/667454/

Discussion: Post Whipple: how long before your stomach "woke up"?

Support Group: Pancreatic Cancer

Posted: Jan 3, 2022

Sitting in the chemo chair getting GAC #30 as I type. Just got my CA19-9 result...

https://connect.mayoclinic.org/comment/1037817/

Discussion: CA 19-9, sensitivity and responsiveness to treatment

Support Group: Pancreatic Cancer

Posted: Mar 21, 2024

Was the additional opinion at an NCI designated center of excellence or a National Pancreas Foundation...

https://connect.mayoclinic.org/comment/1120041/

Discussion: Why wait for Chemo???????

Support Group: Pancreatic Cancer

Posted: Aug 8, 2024

Hi all, I had Whipple February 2024 with clear margins, 12 rounds of Folfirinox April to...

https://connect.mayoclinic.org/comment/1221052/

Discussion: Recurrence after Whipple, Folfirinox and radiation (SBRT)

Support Group: Pancreatic Cancer

Posted: Jan 25 7:28am

I advocated for aggressive chemotherapy of Folfirinox. This was the formulation used from 2011-2018…not the (m)Folfirinox...

https://connect.mayoclinic.org/comment/882727/

Discussion: Clinical trial (third line treatment) lurbinectedin and irinotecan

Support Group: Pancreatic Cancer

Posted: Jun 21, 2023

I was diagnosed with stage 1 pancreas cancer last year my symptoms were everything I ate...

https://connect.mayoclinic.org/comment/1263584/

Discussion: What were your symptoms of pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Mar 21 2:26pm

Thanks so much for your response. The requirements of the present study are that you have...

https://connect.mayoclinic.org/comment/819412/

Discussion: Pancreatic Cancer Recurrence after Whipple

Support Group: Pancreatic Cancer

Posted: Mar 1, 2023

Dear Breki, thanks for sharing more about your situation. I'm genuinely interested in what you have...

https://connect.mayoclinic.org/comment/808271/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 8, 2023

Your story is inspiring. I am so happy you have been able to beat this and...

https://connect.mayoclinic.org/comment/868145/

Discussion: Giving hope: 5 year celebration pancreatic cancer-free

Support Group: Pancreatic Cancer

Posted: May 28, 2023

So sorry to hear about the clinical trial not moving forward! That is a huge bummer....

https://connect.mayoclinic.org/comment/903585/

Discussion: Protein Powders, Calorie Boosters, Appetite Stimulation?

Support Group: Pancreatic Cancer

Posted: Jul 28, 2023

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