Pancreatic Cancer Support Group

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Comments (865)

Folfirinox seems to get almost everyone with the chemo-induced peripheral neuropathy (CIPN). It can get worse...

https://connect.mayoclinic.org/comment/991034/

Discussion: Neuropathy in feet after completing Chemotherapy

Support Group: Pancreatic Cancer

Posted: Jan 3 8:56pm

I've been receiving chemo (Folfirinox/Folfiri) since last August. I will begin 5 radiosurgery treatments to the...

https://connect.mayoclinic.org/comment/194047/

Discussion: Exploring options for inoperable pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Apr 2, 2018

A personal friend of my family had surgery at JH and had an excellent experience. He...

https://connect.mayoclinic.org/comment/881596/

Discussion: Nothing left to offer in the way of therapy?

Support Group: Pancreatic Cancer

Posted: Jun 19, 2023

I too have become obsessed with my CA-19, but repeatedly told by doctors to relax. Do...

https://connect.mayoclinic.org/comment/1142277/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Sep 16 7:30am

The Whipple procedure since 1935 was considered the only method of cure and that was if...

https://connect.mayoclinic.org/comment/868263/

Discussion: Giving hope: 5 year celebration pancreatic cancer-free

Support Group: Pancreatic Cancer

Posted: May 28, 2023

I also had a small pulmonary embolism discovered in a CT scan during my folfirinox treatment....

https://connect.mayoclinic.org/comment/1168329/

Discussion: Is there an early way to detect blood clots?

Support Group: Pancreatic Cancer

Posted: Nov 5 6:19am

So it turns out Abraxane is publicly funded when it's used as first line treatment. Since...

https://connect.mayoclinic.org/comment/942744/

Discussion: Cancer drug cost in Ontario, Canada

Support Group: Pancreatic Cancer

Posted: Oct 6, 2023

Thanks so much for your replies! Was your oncologist (overseeing the chemo & radiation) with Mayo...

https://connect.mayoclinic.org/comment/1090522/

Discussion: Can radiation be given between finishing chemo and having Whipple?

Support Group: Pancreatic Cancer

Posted: Jun 20 2:01pm

@tpl where or who is giving you radiation treatments? My care plan started 9/30 with first...

https://connect.mayoclinic.org/comment/755903/

Discussion: Pancreatic Cancer - No signs of spread, Whipple Candidate

Support Group: Pancreatic Cancer

Posted: Oct 1, 2022

I only did 2 rounds folfirinox. But 6 rounds of Gem/abrax (with no breaks) made my...

https://connect.mayoclinic.org/comment/1105757/

Discussion: When does your hair grow back?

Support Group: Pancreatic Cancer

Posted: Jul 15 6:00am

Slower infusion of a platin or taxane may lessen the chemo induced peripheral neuropathy (CIPN) but...

https://connect.mayoclinic.org/comment/1075716/

Discussion: Oxaliplatin & Nab-paclitaxel Neuropathy - Longer Infusion Time?

Support Group: Pancreatic Cancer

Posted: May 27 11:53am

When my Husband was on Folfirinox we saw his Ca19 increase at first also. His Dr....

https://connect.mayoclinic.org/comment/827219/

Discussion: 2 questions: Interpretation of CA19-9. SBRT methods.

Support Group: Pancreatic Cancer

Posted: Mar 16, 2023

I am DonnaMichelle and was diagnosed with pancreatic cancer on November 7, 2022. I have had...

https://connect.mayoclinic.org/comment/842741/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 13, 2023

Thank you for this. My onc. said that oral chemo might be called for after surgery....

https://connect.mayoclinic.org/comment/912514/

Discussion: Which questions should I ask my surgeon? (I think Whipple is likely.)

Support Group: Pancreatic Cancer

Posted: Aug 13, 2023

I cannot thank you enough, stageIV survivor for taking the time and effort to post your...

https://connect.mayoclinic.org/comment/1062922/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5 10:53pm

@jlmclain , Short answer: On chemo for the recurrence since late Jan 2023, and responding well....

https://connect.mayoclinic.org/comment/871738/

Discussion: Giving hope: 5 year celebration pancreatic cancer-free

Support Group: Pancreatic Cancer

Posted: Jun 3, 2023

I too am curious as to what determines the number of rounds needed. My husband had...

https://connect.mayoclinic.org/comment/882938/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Jun 22, 2023

So very helpful. Thank you so much. We will be asking all these questions and whatever...

https://connect.mayoclinic.org/comment/888994/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Jul 2, 2023

Thank you, I worry because he is now nearing the end of his 1 week off...

https://connect.mayoclinic.org/comment/780290/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 3, 2022

Hello, while I am not a doctor, I think BRCA has precision medicines that can target...

https://connect.mayoclinic.org/comment/794178/

Discussion: Pancreatic cancer stage 4: Mom moved to palliative care

Support Group: Pancreatic Cancer

Posted: Jan 9, 2023

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