Pancreatic Cancer Support Group

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Comments (656)

Hi @djfone - sorry to hear your husband is having trouble with food post his surgery....

https://connect.mayoclinic.org/comment/1565279/

Discussion: Adding digestive enzyme supplements: What's your experience?

Support Group: Pancreatic Cancer

Posted: May 3 7:19am

How are things going with the pancrelipase (Creon)? Are you finding it is still triggering IBS...

https://connect.mayoclinic.org/comment/1564059/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: May 1 10:43am

I have not tried anything else. The Creon seems to work fine for me .

https://connect.mayoclinic.org/comment/1578162/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: 2 days ago

@luke333 After I had the Whipple procedure, I experienced painful GI cramping. It was being triggered...

https://connect.mayoclinic.org/comment/1574932/

Discussion: Spasms after Whipple

Support Group: Pancreatic Cancer

Posted: 6 days ago

@marymichaels - it took me a little bit to get it dialed in so hang in...

https://connect.mayoclinic.org/comment/1565918/

Discussion: Adding digestive enzyme supplements: What's your experience?

Support Group: Pancreatic Cancer

Posted: May 3 9:30pm

I could never fully define what triggered my IBS. Since starting Creon, there has been a...

https://connect.mayoclinic.org/comment/1563716/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: May 1 4:52am

I started taking Creon after my PC diagnosis. After my Whipple, 10 months later, my Creon...

https://connect.mayoclinic.org/comment/1578260/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: 2 days ago

Hi, my symptoms are better but I'm still taking the Creon. I will ask my provider...

https://connect.mayoclinic.org/comment/1564115/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: May 1 11:47am

ABSOLUTELY take Creon!!! You will have side effects if you don't take Creon. Creon will allow...

https://connect.mayoclinic.org/comment/1244214/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Feb 24, 2025

@djfone I had that chemo, too, for 24 weeks, but it was before my Whipple surgery....

https://connect.mayoclinic.org/comment/1568897/

Discussion: Adding digestive enzyme supplements: What's your experience?

Support Group: Pancreatic Cancer

Posted: May 7 9:39am

I also had constipation with Creon. When that happened, I took one capsule of stool softener...

https://connect.mayoclinic.org/comment/1475109/

Discussion: Creon - am I taking too much or too little?

Support Group: Pancreatic Cancer

Posted: Jan 5 12:01pm

Has anyone with Pancreatic Cancer had the Whipple & not take Creon? Husband's not having any...

https://connect.mayoclinic.org/comment/1557816/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 23 2:30pm

@caryns If there's an issue getting a prescription for Creon ( or the cost is too...

https://connect.mayoclinic.org/comment/662610/

Discussion: Post Whipple: how long before your stomach "woke up"?

Support Group: Pancreatic Cancer

Posted: Dec 15, 2021

I am on Creon. Very expensive. Does anyone know of any drugs to replace the Creon....

https://connect.mayoclinic.org/comment/805821/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 3, 2023

Have you checked with Abbvie Assist to see if you are eligible for Creon free. Abbvie...

https://connect.mayoclinic.org/comment/854808/

Discussion: Life after Pancreatectomy: How was your recovery?

Support Group: Pancreatic Cancer

Posted: May 5, 2023

I started with ZenPep because the pharmacy was out of Creon. With my next prescription I...

https://connect.mayoclinic.org/comment/983157/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Dec 19, 2023

Recently prescribed Creon. I am 66 female weight 195 - nearly impossible for me to lose...

https://connect.mayoclinic.org/comment/1469038/

Discussion: Creon - am I taking too much or too little?

Support Group: Pancreatic Cancer

Posted: Dec 28, 2025

@stageivsurvivor That is great information and confirms I am doing some things correctly. I take my...

https://connect.mayoclinic.org/comment/1571178/

Discussion: Adding digestive enzyme supplements: What's your experience?

Support Group: Pancreatic Cancer

Posted: May 10 9:06am

From what I’ve read, the Creon doesn’t impact the results of the elastase test, as the...

https://connect.mayoclinic.org/comment/696115/

Discussion: Concerned: I'm beginning to suspect I have pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Apr 4, 2022

You take creon if you get gas a lot. And if your stools are floating, if...

https://connect.mayoclinic.org/comment/882102/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jun 20, 2023

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